The Ohemaa Sickle Cell Warrior

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The Ohemaa Sickle Cell Warrior My name is Ohemaa and and I was born with Sickle Cell. My page is to educate, support, and Advocate

It's September! It's SICKLE CELL Awareness month.EDUCATION IS KEY!!!!If you know a Warrior check on them!
01/09/2024

It's September! It's SICKLE CELL Awareness month.
EDUCATION IS KEY!!!!
If you know a Warrior check on them!

05/03/2024

Ohemaa Obenng

05/03/2024

Podcast on the way!
In the making

The Ohemaa (queen 👑) Warrior podcast 🎙

Future Segments
* Life living with SC
*How SC effects families
*Hospitalizations
*Dating with SC
*Ways to eliminate SC
* Medications
*SC trait
*Different types of SC
*SC communitys in different states
*SC walks in different states
*Physical changes in the body
*Ins-outs of trials that could help with quality & quantity of life. Qualifications
* Advocacy
* other health issues that SC patients are prone to.
* Interviews
* conversation circles
Ect

29/10/2023

When all this started back in 2019 I told myself don't get excited because not everything that is said is or going to happen. When they called my dad this year saying that the NIH is ready for you and they can help you, I was like ok cool. Still didn't get excited! Everyone around me is so excited and so sure of what the outcome wil be. I was Always realistic and would say I don't like to say this is a Cure for sc! Even tho I was going back and forth i would still tell myself this might not even work, I might not even get to the end result! For others I keep a smile on my face and stay upbeat and positive. It's easier to say im good with a smile on my face then explain why I maybe sad! I have watched 5 other people get their transplant and have good results! I made sure I didn't allow myself to get excited about mine until I heard we got enough stem cells! My last visit is when I started to let myself get excited! To know this will be my last trip and I won't be receiving my transplant really upsets me! I gotta go back to my mindset of my SC will stay the same or get worse 😕. Well now I can get my life back to what it was before this interruption. Back to over pushing myself for the life I want while having hospital visits every month! I have met Amazing people through this journey! I have new life long brothers and sisters now! I'm glad all of their transplants were successful! That all I could ask for!

Idk why God put me where I am an gave me this disease, I need to hurry and figure it out! I'm running out of steam for real! Smh I'm almost 30. We only live up to 52 fpe real

19/10/2023

Good Morning
UPDATE FOR PEOPLE FOLLOWING

The last cell collection I did in August has failed. They got enough cells but then ran into my cells having partials and clumps, in them which made it so they did not pass all Criteria. All my cells passed everything except for one check box. I was looking at late December for transplant but because of these findings it has been put on hold. This might be the end of the road for this study. My Dr is working with the team to see if there is anything they are able to do, but at this moment its
basically has came to a STOP. If there is anything that changes I'll give an update, when I go for one my last visit at the end of this month. Thank you to everyone once again! Please 🙏🏿 respect an give me some time to prosses the news I have received late yesterday 🙏🏿. I will still make videos and document my life living with Sickle Cell!!😌

22/09/2023

Quick Update. WE HAVE ENOUGH CELLS!!!!
YAY!!!........ BUT!!!
They have found clumps in my cells and are still waiting to find out if I can continue due to finding clumps. Because they have found clumps it makes it harder for them to do what they need for the editing process! This may cause more cell loss! So in limbo to see if they are able to remove the clumps, and continue to edit while not having to much cell loss. If they are SuccessfuI i will be doing my transplant late December! If they can't remove these clumps I'll be back at square one!!!! 😒
I know everyone has been waiting to hear what's going on. I just got this information yesterday. I will not know about the removal of the clumps till late October. Thank you to everyone following and preying for my success!

So close but yet soo far

11/09/2023

Just got off the phone with a women who is in charge of poster women for sickle cell!! She does rallys, conferences for DR's, walks for people with SC! Of course I would be interested In telling my life story with SC. of course I would be ok getting flown out to different cities to speak to others. Of course I'm ok with taking photos for a magazine or poster board! EDUCATION IS KEY! If I can have more EDUCATION out we will be Better off in our care of health!!!

01/09/2023

One extra day in the Hospital. Can leave tomorrow


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