mejo (2025)

03/07/2025

New blog: “The Unexpected Path That Became Everything”

We’re honored to share Christi’s story, a mother of seven, including three incredible boys with disabilities whose lives have shaped her family in ways they never could have imagined.

“The day to day is all of it,” Christi says. “Hard + fun. Discouraging + encouraging. Happy + sad. Exhausting + exhilarating.”

With a household of nine—including a dog—Christi needed a way to stay organized that didn’t live in her head. That’s where mejo premium came in.

“We all have a mejo tab—even the dog!”

What she uses most:

Centralized profiles for each child (and pet!) with meds, provider info, and care notes 
Document storage for IEPs, family medical histories (including from biological families), and records 
Custom trackers for seizures, cyclic vomiting, lab visits, and feeding changes 
Printable journal logs she can hand off to new providers

Click the link in our bio to read the full blog.

Join our community today-simplify your journey, so you can focus on life’s moments.

24/06/2025

Blog: ER prepared while on an intensive trip.

Riding the Rare Disease rollercoaster comes with many unexpected twists and turns, sometimes we find ourselves in situations we never imagined. Such was the case for Blythe and her daughter Maggie, whose journey led them to an ER out of state. Blythe, a dedicated caregiver and advocate for Maggie, shares their remarkable experience with vulnerability and grace.

Read more about Blythe and Maggie’s Rare Disease story by clicking our new blog link in our bio.

09/06/2025

What happens when no one believes you?

For rare disease patients and their caregivers, being dismissed, ignored, or misdiagnosed isn’t the exception, unfortunately, it’s the norm.

In our latest blog, one resilient adult shares their powerful story of survival, self-advocacy, and learning to fight for their own care after years of medical gaslighting.

“As my body attempted to right itself, I realized I had to fight for my own medical attention and my own life. I remember having to beg my parents to take me to the ER or to a doctor when I was horribly ill, on the floor, too sick and stiff to push myself up. It took 22 years until the UCLA Neuromuscular Clinic diagnosed a severe variation of stiff-person syndrome (SPS) with the progression of my disease. The neurologist believed I had a form of self-correcting cerebral palsy at birth and it evolved into a type of vehement SPS.

My husband and I fought furiously for access to that clinic and to afford to stay in southern California until I obtained a diagnosis with a rare neuromuscular disease specialist at long last. With my husband’s rare love and help, I could keep fighting for myself, especially after an exceptional marriage of 27 years this July.”

This is what it looks like to live through it and rise above it.

Click the link in our bio to read the full story.

22/05/2025

Meet Maddie and her mom Adriene.

Madeleine, lovingly known as Maddie Lou. Maddie Lou is a bright, tenacious, and joyful four-year-old with a spirit that lights up every room she enters. She loves her classmates, and has built a community of caregivers, nurses, doctors, and therapists who have become part of her extended family.

But Maddie Lou’s journey is one marked by unexpected challenges. At 16 months old, she was a healthy, neurotypical toddler. Just four months later, she received a life-altering diagnosis: Atypical Rett Syndrome.

For Adrienne, being Maddie Lou’s mom and primary caregiver is a journey filled with every emotion imaginable.

“I go through every emotion every day, because I’m not just a caregiver. Maddie Lou is MY girl, my daughter, my one and only, my bestie for the restie.”

Finding Support with My Rett Ally powered by mejo.

“My Rett Ally has been a tool to help ease collaboration, solve communication issues, and bring peace of mind. It’s simplistically brilliant.”

Click the link in our bio to read the full blog.

Join our community today-simplify your journey, so you can focus on life’s moments.

*My Rett Ally powered by mejo is a platform built for the Rett syndrome community made possible by The International Rett Syndrome Foundation. It’s free for all Rett families in the US.

07/05/2025

Meet Tanmayee: A Story of Resilience, Reinvention, and the Power of Connection

For Madhura, life changed forever when her daughter, Tanmayee, was diagnosed with Lennox-Gastaut Syndrome (LGS). A severe form of epilepsy. Tanmayee’s journey has been filled with challenges, from relentless seizures to complex care decisions. But it is also a story of resilience, reinvention, and the strength of a family determined to give their daughter the best life possible.

One tool has made an unexpected difference, mejo, a digital care companion app designed for families navigating complex health conditions. The feature that has proven most valuable? The “Getting to Know Me” section.

Three years ago, during one of Tanmayee’s hospital stays, a misunderstanding led to a frightening experience. The medical team, unaware of what her typical seizures looked like, administered a rescue medication unnecessarily.

“It was a nightmare,” Madhura recalls. “Tanmayee was already dealing with so much, and then she was heavily sedated because the team didn’t realize her non-convulsive seizures are actually normal for her. That’s when I realized how critical it is for every provider to understand her unique presentation.”

Click the link in our bio to read the full blog.

Join our community today-simplify your journey, so you can focus on life’s moments.

02/05/2025

The caregivers who get it, choose mejo.

Say goodbye to binders, burnout, and repeating yourself 500 times. mejo is the care coordination platform built by caregivers, for caregivers—and families are calling it a game changer.

🧠 “It’s taken the mental load off me.”
🕒 “mejo saves me so much time.”
📚 “Goodbye binder!”
👏 “You can tell the mejo team gets us.”

Join thousands of families simplifying complex care with mejo.

Start your trial today at app.mymejo.com - Sign up takes 60 seconds.

28/04/2025

Details matter. Especially when you’re caring for someone you love.

Funny for a birthday.
Dangerous in healthcare.

When you’re managing meds, allergies, and care plans — vague answers and missing info aren’t just inconvenient. They’re life-threatening.

We know you want the world for your loved one’s birthday and in healthcare. We can help.

One missed detail can mean:
• The wrong medication
• A missed allergy
• A delay that changes everything

At mejo, we believe healthcare communication should never be an afterthought. Because behind every detail is a life depending on it.

In healthcare, precision isn’t optional. It’s survival.

22/04/2025

What would you do with an extra hour?

Be honest—how much time would you actually get back?

If you didn’t have to start from scratch every time someone asked for medical history… how many precious minutes (or hours) would you reclaim?

A yoga session.
A walk outside.
Grabbing coffee with a friend.
Finally hitting the gym.
Or just being fully present, playing with your child.

The possibilities? Endless.
And that’s the kind of everyday exhaustion Mejo was built to help with.

• No more repeating yourself
• Everything organized in one place
• Share it instantly with the people who need to know

Because your time matters.
Your energy matters.
And care shouldn’t mean doing the same thing over and over again.

16/04/2025

Real words from a mejo user who finally gave it a try… and instantly wished they’d started sooner.

If you’re juggling meds, appointments, updates, therapies, school notes, insurance docs (and your sanity)—mejo was built for you.

🎯 One place to track it all.
📤 Easy sharing with anyone on your care team.
🧠 Peace of mind, finally.

Don’t wait to dig in. Start now—and wonder how you ever lived without it.

👉 Sign up free at mymejo.com

14/04/2025

Hope With Lo: A Rare Journey of Courage, Care and Community

At mejo, we have the honor of supporting extraordinary families navigating some of the most complex and challenging medical journeys. Today, we’re proud to share the story of Lola, a radiant 5-year-old girl living with Zellweger Spectrum Disorder , a rare and life-limiting genetic condition that touches nearly every part of her body.

“Being a parent to a medically complex child is the most difficult and most beautiful thing I’ve ever done.”

There is no sugarcoating the reality; it is physically exhausting, emotionally overwhelming, and relentlessly complicated. From the constant stream of medical appointments and therapies to advocating within systems not designed for children like Lola, every day brings its own set of challenges. It means grieving the life you once imagined, while simultaneously finding beauty in the life you’ve been given.

As Lola’s mom, Sara puts it, “Lola teaches us every day what it means to be brave.”

Click the link in our bio to read the full blog.

Join our community today- simplify your journey, so you can focus on life’s joyful moments.

mejo

03/07/2025

24/06/2025

09/06/2025

22/05/2025

07/05/2025

02/05/2025

28/04/2025

22/04/2025

16/04/2025

14/04/2025

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