Sam Journey with CRPS

09/11/2022

Sometimes scans don’t show what’s really going on…but that doesn’t mean that pain is being made up. Sometimes you have to look deeper than just a scan or two..😭

09/11/2022

Another day another appt

10/10/2022

Hey guys, sorry it’s been so long since I last posted things have been crazy but here is the update on everything.

So I found out about a month ago that my L5 in my lower back is deteriorating and causing nerves to become pinched leaving my right leg and foot weak and in a lot of pain. Starting October 17th I will begin epidural spine injections to help (hopefully) relieve this pain.

And while all that is happening for my back we are looking into getting a spinal cord stimulator placed in my spine to help with my CRPS in my right arm/hand.

With everything happening I am looking on putting college on hold. I really don’t want too but it may be something I will have to end up doing in the near future.

Please keep me and my family in your prayers as we face this next step in this journey.

28/08/2022

First week of classes completed.

Already been a rocky start to the semester trying to juggle classes, Dr. Appts, work, and trying to hang out with friends (trying to be a part of college experiences). Trying so hard to push pass the pain and exhaustion and keep up with everyone around me constantly being reminded that no matter what I do that right now nothing will ease this chronic illness that no matter how hard I try my body isn’t strong enough to keep up with everything…

I’m so tired of being sick…

27/08/2022

MRI day, let’s see what they find…

30/07/2022

A week long of constant level 9 pain during my finals week of summer classes. I didn’t finish with the best scores in one of my classes but I passed with a high B in the other. No matter how much this disease tries to take over my life I will keep fighting.

24/07/2022

Going through an intense flare up leaving me weak and in so much pain but Bear cuddles always help lift my spirits ❤️

23/07/2022

Ran across this video today while researching treatment options ❤️
https://youtu.be/FhYgzqgaPt0

Chronically With A Cause presents CRPS/RSD Awareness Stories, a short film about a few chronic pain sufferers sharing their stories and why it's important to...

12/07/2022

CRPS flare up with a stomach virus and a paper and labs due tomorrow. Praying this all goes away soon my body is struggling to handle it all.

07/07/2022

Hey guys! Wanted to come on here with a small update since somethings have changed. I no longer have a second part time job due to my body was not able to handle it like I thought it would. We are still working on getting things organized for other donation projects and fundraisers that are currently in the works. But since starting fundraising we have raised a little over 500 dollars with the bracelets me and my family have made as well as the generous donations. I can’t thank you guys enough for the donations and even though we are far from our goal we are slowly growing closer and closer every single day. ❤️
I am still working on bracelets orders and will have those to you as soon as possible but I just wanted to hop on here and say thank you to everyone who has been praying, donating, or helping me and my family. I can’t thank you enough!! ❤️❤️

Shoutout to my amazing mother for helping me create bracelets and for being my rock during this entire illness❤️ You have been what has kept me going on days I wanted to give up because the pain got so bad you are the reason I am still here fighting

21/06/2022

I wanted to hop on here and share how quickly my hand is flared. This is almost two hours into my busy work job which mainly is laundry, sweeping, and making hot and cold towels ( really simple easy work)

I got this job because it is a way to help me get into treatment quicker. Also working on fundraising projects which are in the works but this is a way I can make some extra cash during the summer.

18/06/2022

I really wish this wasn’t my reality…

By the 6 hour mark at work my hand was shaking and my right side was on fire

17/06/2022

Well I started a new job today to help me and to hopefully get me into treatment sooner. Sadly, my body is not taking it to well the pain is spreading through my entire right side of my body leaving me in so much pain I’m not able to hold a pen to work on my studies. Hoping it stops soon or I’m looking at another ER visit for another toradol shot…praying that’s not the case 👏🏼

13/06/2022

Hey guys, so I am very camera shy and was very uncomfortable making this video so it is a tad shaky and rambly. I wanted to post though because I am working on stepping out of my comfort zone and pushing myself to do the things that terrify me so here it goes. Hope you like it and if you have any questions at all please feel free to reach out! ❤️

12/06/2022

Hey guys! So after a lot of thought and talking with some close family members I’ve decided to start a YouTube channel!!

This is going to be another way I can spread my story and help stay connected with everyone. Also, it’s another way for me to raise money for treatment. I am in the process of working on a few other ideas for raising money but this is what I will be starting off with.

The goal is to have my first several videos posted in a few weeks!!

Also, if you want a bracelet reach out and I’d be happy to make one for you, small ones are $3 and bigger ones are $5 all proceeds are going into raising money for the Spero Clinic!

Send a message to learn more

05/06/2022

A few more color variations !!

02/06/2022

It took me a long time to adjust my hand to water and even though it still changes colors I have adjusted to the pain. Since it spread to my foot I have been working on slowly adjusting my foot to being in water. These were a few different stages it went through at the water park today. This doesn’t mean I am pain free it just allows me to be able to enjoy a little time with family and friends without being in immense amount of pain.

29/05/2022

I was in a lot of pain so I asked if my bf could push me around on our short trip to Walmart. He happily helped pushed me around Wally World 😂❤️ much appreciated