SOS Help Brittny Beat MS - Multiple Sclerosis

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SOS Help Brittny Beat MS - Multiple Sclerosis I am a stay at home mother and educator to two amazing, adventurous and kind children and a wife to an amazing, supportive husband. I’ll need to raise $60,000.

I’m going to get HSCT in January to stop my MS. gofundme.com/sos-help-brittny-beat-ms

26/07/2024

Contact us  Location 109 E. PinonFarmington, NM 87401  Call Us (505) 427-7734  Email desertriverguides@gmail.com Send a Message Name(Required) Email(Required) Subject(Required) Untitled(Required)Request Callback?(Required) Yes No PhoneCAPTCHA Desert River Guides Book A Trip 109 E Pinon St, ...

29/11/2023

Happy Wednesday 😁 We are now officially into our very slow season. That being said … come see us!!! We are not the typical restaurant in town that has that all day traffic passing by. We greatly depend on each and everyone of you to go that extra mile to enjoy our food. And we appreciate it immensely!!!! We couldn’t do it without you!!! So please if you want some good food that is prepared fresh that will help a small business please come see us. We’ll feed you and treat you right!!! Please like and share.

Hey all! I just got some exciting news today. I got a phone call from Denver, Colorado, for a program that I had signed ...
08/07/2022

Hey all! I just got some exciting news today. I got a phone call from Denver, Colorado, for a program that I had signed up for (that cancelled due to COVID) before I was able to go to Mexico to get my treatment. It is the BEAT MS trial, and they are offering the same type of treatment that I went to Mexico to get! Let folks you know about the trial, if they are affected by MS!

Interesting read.
06/04/2022

Interesting read.

The impact of childhood trauma can last a lifetime, and leave people feeling like shadows of their former selves. Victims of abuse also face unimaginable pain and very real health consequences, none of which is their fault.

03/11/2021

If you don’t have Google+, or you just think you might not get to watching the movie, here’s a glimpse. Her experience of the disease is different than mine. Her treatment was somewhat different than mine, but as a whole, I’d say they are more similar than different.

Happy to report that today is my 9 month stem cell bday, and Carol’s 6 month. We are inching our way back to our normal!...
19/10/2021

Happy to report that today is my 9 month stem cell bday, and Carol’s 6 month. We are inching our way back to our normal!

We spent a part of our day talking to a fellow woman who has MS, and has decided to go for the treatment. We are excited for her and to help spread the word about HSCT. ❤️ It’s currently the best shot we have at a “full” life.

Carol Clark of Durango realized her immune system was attacking her body in 2000. This year, she ditched it and got a new one. Clark, owner of Union Social House in Durango, is one of at least 3,000 m...

Tomorrow I’ll be 8 months post transplant. Here’s an article that came out the other data about the journey my friend an...
17/09/2021

Tomorrow I’ll be 8 months post transplant. Here’s an article that came out the other data about the journey my friend and I took to heat our MS.

Carol Clark of Durango realized her immune system was attacking her body in 2000. This year, she ditched it and got a new one. Clark, owner of Union Social House in Durango, is one of at least 3,000 m...

Well folks, it’s about time for an update. The 30th of July was 6 months since I returned home from my medical journey i...
01/08/2021

Well folks, it’s about time for an update. The 30th of July was 6 months since I returned home from my medical journey in Mexico, the 18th was 6 months since my stem cell transplant. The past few months have been full of ups and downs, but mostly it’s been pretty steady, in a low sort of way. We’ve gotten out and had some fun family adventures, but it’s been a pretty mellow summer.

My hair is growing back in like crazy and the chemo curls are definitely a thing. My hair color is a little lighter, but it’s gone from pretty blonde to getting more red. It’s been really nice enjoying short hair again

At the beginning of January I decided to fall and sprain my left wrist and injure my right heal. At first they told me it was broken, but upon further examination they said it was either a deep bone contusion or I burst my plantar fascia. Either way, the healing process is the same, so I’ve been on crutches for a month. Guess I was so accustomed to the empathy from chemo, I got desperate and dove off the top of the washing machine. Lol.

I found out that my heart has a valve that never closed, but it’s never caused me issues in the past. I’m still having heart issues (low BP and high resting heart rate) with no reason as to why. I’ve been to doctors and haven’t gotten any answers (or return phone calls 🤬) so that has been a major issue in the way I feel. Every so often it normalizes and then goes awry again. Perhaps it is part of this “rollercoaster” of recovery I am on, although the doctors say there is no correlation...

The rollercoaster! (See attached graph) My Mexico group is now on the upswing and moving back towards normalcy! Yay! I have seen some improvements with numbness and tingling dissipating, so I am hoping to improve and keep improving as so many do! We’re cautiously optimistic it was a success.

Know someone with MS that might be interested in looking into HSCT? These trials are going on in the US right now! You h...
22/05/2021

Know someone with MS that might be interested in looking into HSCT? These trials are going on in the US right now! You have to meet certain criteria, but look into it and pass the info on to anyone who may be interested.

Find a study location.For more information about the BEAT-MS study or to find out if you are eligible, please contact the site closest to you.

Well, it’s about time for an update, don’t you think? I am about four months post stem cell transplant. I got off of my ...
16/05/2021

Well, it’s about time for an update, don’t you think? I am about four months post stem cell transplant. I got off of my antibiotic and anti-viral because they were making me feel terrible, and completely useless. I feel so much better now, just being extra careful.

I have felt some improvements that come and go, but such is the life on this roller coaster we are on. We will be on a downhill slope until about six months and then we will gradually be coming back up to our base level and hopefully better than that!

My hair is coming back, though much lighter than before, and I really like having short hair again ❤️ The windows are all rolled down in the truck when I drive around, and my hair still looks fab. Another little thing to enjoy in life 🥰

It’s been awhile, folks! I’ve just been at home, resting, recuperating and trying to have a good time. Today is my 2 mon...
18/03/2021

It’s been awhile, folks! I’ve just been at home, resting, recuperating and trying to have a good time. Today is my 2 month stem cell birthday, so I thought I’d share a couple of photos of me and my new do...❤️

Your girl is back in the states, and it feels so good! Remembering to say yes instead of si is hard, and apparently my S...
29/01/2021

Your girl is back in the states, and it feels so good! Remembering to say yes instead of si is hard, and apparently my Spanish accent has gotten so good that the lady in customs gave me directions to my connecting flight in español. I nodded. Said muchos gracias, and buenos noches. Then I let the nice wheelchair es**rt push me to wherever she said. Lol.

Heading home from Albuquerque as we speak!

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