Inland InAbilities

  • Home
  • Inland InAbilities

Inland InAbilities IEP talk in CA Special Education by day and Medical Mom ALWAYS for my son who is non-Ambulatory with a Trach, GTube, and severe Cerebral Palsy.

I’m a fierce warrior in Advocation for kids and parents and if advocating were a sport; I’d have a gold🏅medal!

02/01/2025

Lolol. I’m just venting. Then delete. This was a follow up post to a post in special needs groups. 💯IEP was done the beginning of December 2024. School started August 2024. I enrolled him June 2024.
Still hasn’t started because they can’t find any teachers.
The IEP was done with ppl who will not be able to teach him. It’s been 6 months and to me school is almost over by the time they find someone.
I’m looking for home hospital.
Going to school is not an option with all his medical fragilities.

Me trying to be his educator is not an option. I already do PT and OT at home as a mom and I know nothing except what I’ve taught myself from YouTube. I want real educators who when to school to teach special needs kids. I want and need help and this is what they get paid to do. He just turned 6 a couple days ago.

For five years I’ve already struggled trying to get Early Intervention which did nothing because educators were all fresh graduates and would YouTube things at my home or utilize his time to write notes and clean up.
I’m tired. I’m exhausted.
I see other parents getting what they need and I’m failing to provide because everyone I turn too doesn’t fall through. I’m tired. I’m hurt.
I have to deal with this for life. Friends don’t understand.
No one has a kid like mine who can’t do anything for himself. No one has a kid who can’t walk, talk, eat, breathe, sit up, or think for themselves. I’m exhausted with constant appts and searching for help. I do get breaks as my husband and kids help me.

I want the services that ppl always claim are available but every time I inquire and call they are not at all available.
He’s getting heavy. No wheelchair.
I won’t always be able to hold him. I’m getting older. I am tired. I usually post and delete because I am venting and tired.

I am exhausted. I just want my son to say mom but he can’t communicate. He can’t tell me if he is hurting or itching.
He can’t scratch himself if he itches.
He has to adapt to whatever his environment is because he relies on us to do all the thinking for him.
Friends who work in education claim they will help when they feel sorry but never ever fall through.
Close friends work in special ed but are unable to help or sometimes say things to me that make me feel like I must’ve done something in my life to deserve this like I’m being punished by God.

A few have even said weird things to me like that while I have sat in the hospital with them and their kid when their kids didn’t feel well even while my own was in the hospital so I could try and help them.
I’m tired of everyone. I don’t trust anyone other than my husband and kids.
I’m tired of fake friends.
I’m tired of reaching out.
I have no family.
My mom and dad are dead beats who weren’t great parents to me.
I moved out at 16 and I’m now almost 42.
I started working when I was 12 to move my family to California.
We moved here when I was 14.
I have worked all my life. 40 years of working.

I am successful but for some reason I have a kid who will not be success although I was blessed with 4 other kids who are independent and help me tremendously. This is not their fight.
My mom and dad and my siblings don’t know my kids. They’ve never seen my son. Or my daughter. The only one who tried is my sister. I am thankful for her. I am tired.

But I will continue to bounce back like I always do. Irebuke anyone who secretly plots on my family and in the name of Jesus.
Amen.

Lolol my other kid took this video when we weren’t looking.




























My daughter took this video unbeknownst to me. I just want my son to have a capable and happy life.











07/10/2024

Those of you (parents and caregivers) who are considering or doing Home Hospital Instruction

























I admit I haven’t posted in a very long time. I am often discouraged. I don’t have friends with a child in our situation so they don’t understand and it’s a lot dealing with 21 different specialist who are mostly and then adding school on top of that and all the with it taking so long to

I hope all the and and are giving themselves and I pray everything works itself out.

Dee
Severe profound, cp mom, developmentally delayed children’s advocate.

Address


Website

Alerts

Be the first to know and let us send you an email when Inland InAbilities posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Inland InAbilities:

  • Want your practice to be the top-listed Clinic?

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram