He always stands up for what is right and will tell you if he doesn't agree with something. His laugh is infectious, and I could listen to it all day. He loves creating, building, and inventing with any supplies he can find. He loves baseball and all things Minecraft (of course). Finn will spit out unusual facts that I don't believe to be true, only to look them up and see that he was right. For over 9 years, he has been an absolute joy in our lives. He doesn't deserve this... none of these kids do. We are going to fight with all we have! My name is Carrie. I am Finn's mom and I mostly run this page along with my husband Greg. I read Finns medical chart almost every day and the phrase that stands out the most to me is "Finn is a previously healthy 9 year old boy newly diagnosed with DIPG". Yes, he was previously healthy just two short months ago, when, on November 16th we entered Children's National and had our world turned upside down. DIPG! Before that date, we had never heard of such a cancer. DIPG is coined a "rare" aggressive brainstem tumor that mostly affects children. It is inoperable and there is no cure, YET. As we get deeper into this world, we find that it's not so "rare". The term "rare" has kept the medical field from producing any changes in treatment for over 60 years. The last five years have shown the most interest from medical companies and medical professionals seeking to find a cure for DIPG, but we fear it could be too late as almost all of these studies are in Phase I. It truly is a race to the cure. We created this page for many reasons. Mostly to express our gratitude to those that have supported us in so many ways and see updates on our little warrior. But also to bring the necessary awareness that DIPG deserves. This monster needs to be defeated! Please join our fight!
