02/07/2025
Plant Babies are growing bigger every day. Asked my neighbor if they could water them while I’m camping this weekend. I didn’t want them to die in the heat.
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On a health note, I haven’t been able to stay accessed because it’s too hot and I’ll sweat my dressing and end up with a skin infection like the first time. That being said drinking my water with mineral salt and staying hydrated with hydrating foods I’ve been doing the best I ever have since 2019 when I flared severely. This last Monday I needed to be accessed so I could get monthly labs. I ran fluids for 6 hours since I was like I could probably use them (I’m prescribed 8hrs a day M-F.) Over the course of 6 hours I had bad brain fog, bad swelling in my ankles that wouldn’t go away, shortness of breath and racing heartbeats. I’ve never felt so awful on my infusions. I got so sluggish and tired and my mood tanked with just no spark of energy and severe irritability, to where my fiancé asked if I was okay and “What’s wrong? What happened? You’re not yourself.” Needless to say I’ve made note of these symptoms and I’ll be notifying my care team, I deaccessed because I needed to do housework and again the heats been rough and I don’t want to risk infection. Struggled a bit yesterday but overall was able to pick up my most recent routines. Today I feel almost back to normal, a little weepy from emotions but back to my somewhat normal self.
It seems that whatever I’m working on with functional medicine like moving me to more supplements, taking out the meds that aren’t working etc. staying hydrated without fluids running constantly, is doing wonders and helping tremendously. So maybe I’ve reached a point I don’t need infusions — which would be really cool because I’ve had doctors for years tell me i would be on them the rest of my life without question.
As one of my best friend’s used to say “Never tell me the odds.”
