Saving Ryan Book

20/03/2023

https://spectrumnews1.com/ca/san-fernando-valley-ventura/la-stories/2023/03/18/emil-kakkis-la-stories #

See a new in-depth interview with Dr. Emil Kakkis with the legendary Giselle Fernández for Spectrum News debuting today!

The book "Saving Ryan" is available at Amazon and Impositivity and also on Audiobook at your favorite Audiobook retailers.

"LA Stories" host Giselle Fernandez profiles Dr. Emil Kakkis

24/01/2023

Check out our interview with Pomona College Magazine!

In Saving Ryan, physician-scientist Emil Kakkis ’82 chronicles the 30-year journey to develop a first-ever treatment for the ultra-rare genetic disease mucopolysaccharidosis, known as MPS. At the center of the story are Ryan Dant, who was diagnosed with potentially fatal MPS type I at age 3, and h...

30/12/2022

Inspiring words from Ryan to end the year.

Wishing our community a very happy new year, full of success and dreams fulfilled. Never give up hope!

28/12/2022

This book is for anyone who wants to read about success against all odds and immerse themselves in multiple storylines of heroes on the quest for saving children's lives. ‘Saving Ryan’ shares the story of Clinician-Researcher, Dr. Emil Kakkis, as he worked to successfully find a treatment for the devastating disease, MPS-I.

Get your copy of Saving Ryan on Amazon.com to learn about Dr. Kakkis' work and Ryan's inspiring life.

27/12/2022

We're so excited to share that Dr. Emil Kakkis, Ryan Dant and Mark Dant will all be on this morning at 9 AM talking about the incredible journey of Saving Ryan.⁠
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Be sure to tune in this morning for the segment!

26/12/2022

Set your reminders! The Today Show will be
rebroadcasting the wonderful segment done with Dr. Emil Kakkis, Mark and Ryan Dant earlier this year.

If you missed it the first time it aired, now's your chance!

Tune in tomorrow, December 27 at 9am!

23/12/2022

Wishing a very Merry Christmas to our community. May you have a restful and joyful holiday, surrounded by those you love!

21/12/2022

By day, Mark Dant worked as a cop, and by night, he changed out of his uniform to knock on doors and shake hands. Over three years, he built awareness of the Ryan Foundation and helped it grow from bake sales to $100,000 golf tournaments, as it raised money for MPS-I research.

Now retired from police work, Mark is currently the Chairman of the Board of the Washington D.C.-based EveryLife Foundation for Rare Diseases, a science-based advocacy organization dedicated to accelerating biotech innovations for rare disease treatments. Mark is also the founder and Volunteer Executive Director of the Ryan Foundation and former President and CEO of the National MPS Society.

19/12/2022

10% of American families have children fighting rare diseases. ‘Saving Ryan’ serves as a reminder for them to never give up.

Read about Ryan Dant's incredible journey with MPS-I, and Dr. Kakkis' treatment that saved his life in Saving Ryan, available on Amazon.com.

17/12/2022

Dr. Kakkis takes a humanized approach to rare disease research by never taking no for an answer. He and his team continue to work towards finding a cure for rare diseases, like MPS-I, and we are forever grateful for the work he does.

Learn more about his life-saving discoveries in ‘Saving Ryan’, a heartwarming account of determination, available for purchase on our website: www.impositivity.com

16/12/2022

Listen to a sample from the acclaimed audiobook for “Saving Ryan”.

Available now through all of your favorite platforms:

Apple Books- download through Books App, Under Audiobook Store

Google Play - https://bit.ly/3Pt5F01

Barnes & Noble for Nook - https://bit.ly/3HJF3px

Spotify - https://bit.ly/3W2rw0J

Audiobooks.com- https://bit.ly/3V1CGBq

Rakuten for Kobo- https://bit.ly/3iW2fXd

14/12/2022

Years before this photo of Mark and Ryan Dant speaking at a genetic conference was taken, a doctor told Ryan’s parents that he probably would die before the age of 10. Diagnosed with mucopolysaccharidosis-1, Ryan was missing an enzyme that the body needs to break down certain waste materials. Over time, buildup of the waste material damages organs like the heart, stiffens the joints, affects breathing and stunts growth. In some cases, it can lead to severe brain damage.

Today, Ryan lives a fulfilling life. He has graduated college, married the love of his life, and continues to pursue his goals!

12/12/2022

Born with an untreatable and rare disease, Ryan Dant wasn’t expected to live into his teenage years. As his parents searched for any other possible outcome, they came across a young researcher who would go on to develop a new treatment to save their son. Thanks to the work of Dr. Kakkis, Ryan has lived, and continues to live, a very fulfilling life. Hundreds of other children with this disease also now have access to a treatment.

Written by Dr. Kakkis, ‘Saving Ryan’ brings to life the gritty story of determination against all odds.

09/12/2022

Ryan Dant was one of only 40 babies in the U.S. born each year with a condition called Mucopolysaccharidosis, or MPS-1. This diagnosis is part of a family of genetic diseases in which the patient is missing an enzyme necessary for the body to function properly, and it is nearly always fatal.

Ryan's parents, Mark and Jeanne Dant, were told they could do little more than wait for their son to die. The Dants, however, were unwilling to accept that, so they set out to save Ryan's life.

Listen to what happened next via the ‘Saving Ryan’ audiobook, available for purchase on our site: www.impositivity.com

07/12/2022

Searching for a new read? Written by Dr. Emil Kakkis, 'Saving Ryan' shines a much-needed spotlight on the many challenges involved with rare disease drug development. Dive into this firsthand account of Kakkis’ experience as he worked to provide a life-saving enzyme replacement therapy for MPS families, including Ryan Dant.

Available via audiobook and hardcover!

05/12/2022

Dr. Kakkis shares what MPS-I is and how it affects the body. Thanks to his hard work and perseverance, his team has been able to create a treatment to help those suffering from this rare genetic disease.

Visit our website to learn more about Dr. Kakkis' work in Saving Ryan, available for purchase! www.impositivity.com

02/12/2022

Our mission? To share the inspiring and insightful impositive stories that teach us about the impossible great good that can be accomplished for those with vision and perseverance.

30/11/2022

In 1995, the Dant family flew from Texas to Los Angeles to meet Dr. Kakkis, kicking off the first chapter of a long collaboration to expand MPS-I research.

"Meeting Ryan and Mark and Jeanne gave me an inspiration as to what this was really about. It’s not a science project. It’s a human project to save Ryan," Kakkis recalled.