13/10/2025
We haven’t posted here in awhile because there really hasn’t been much to update. Aurora is a full blown toddler with a large attitude, strong will, and a drive for independence. She’s been eating well and gaining weight, but she’s still a tiny peanut. She’s a little delayed in her speech development, so we will be getting an evaluation done for that soon.
HOWEVER, the big news that deserved a post is that she had a sleep study done on September 23rd. Aurora has remained on oxygen when she sleeps because a little over a year ago during her last sleep study she could not maintain her oxygen levels due to moderate sleep apnea.
Today we met with her pulmonologist to discuss this years sleep study results and we are THRILLED to share that she can officially discontinue use of oxygen when she sleeps. While she still has some mild sleep apnea she was able to maintain her oxygen levels during those events and has proven that oxygen is no longer necessary!!!
Next year she will have a repeat sleep study to check on her sleep apnea, and at that time we will discuss the option of removing her tonsils if we believe that will help her.
Today we are finally able to celebrate a huge win! Aurora is finally able to be a cordless little girl 24/7!!