Baby Girl Peters

27/04/2025

01/04/2025

April is CDH Awareness month.

Congenital Diaphragmatic Hernia.

It’s 1 in 2500-3000 births globally, with over 1600 babies diagnosed each year in the United States alone.

It’s relocation.

It’s MFM + care teams.

It’s NICU.

It’s ECMO.

It’s surgery.

It’s pokes and tubes and supplemental oxygen.

It’s trachs and Gtubes and nissen surgeries.

It’s reflux and GI issues and delays.

It’s hypertension.

It’s no known cause.

It’s devastating.

But it is not always fatal.

CDH is Aurora.

Aurora is HOPE!!



🩷💙💛

26/03/2025

Supporting families at every step

07/02/2025

The Center for Fetal Therapy will host a webinar on Congenital Diaphragmatic Hernia (CDH) care in the era of fetal therapy on Tuesday, February 18 from 12:00 PM to 1:00 PM.

Ahmet Baschat, director of the Center for Fetal Therapy, general pediatric surgeon Shaun Kunisaki, and neonatologist Suneetha Desiraju will discuss key aspects of CDH management, from prenatal diagnosis to postnatal surgery and pediatric follow-up.

This webinar is ideal for clinicians involved in high-risk pregnancies and neonatal care. Visit the link to register for the webinar: https://bit.ly/3CRRCPv

04/01/2025

Learn about Kai’s journey

01/01/2025

Happy New Year everyone!! Here is Aurora’s update after her very busy December.

Help ensure no one goes through a health journey alone.

07/12/2024

I had the pleasure of meeting this beautiful family during one of Aurora’s follow up appointments. Kai is so strong and amazing and so are her parents!
I am so thankful for Dr. Kays and the CDH team at Johns Hopkins All Children's Hospital Thank you for working so hard to save these babies!

Meet Kai: A Texas twin born with congenital diaphragmatic hernia (CDH). Kai arrived weighing a tiny 3 pounds, 14 ounces. Just a little after 12 hours after she was born, she was set to have CDH repair surgery. https://www.hopkinsmedicine.org/news/articles/2024/11/meet-kai-a-texas-twin-born-with-congenital-diaphragmatic-hernia

03/11/2024

CDH babies are worth saving and they are worth finding specialized care. The tiniest humans are the biggest fighters we know.
There is hope for CDH.

01/11/2024

Our little Aurora-saurus and her Jurassic Park crew hope everyone had a Happy Halloween!! 🦖 🦕 🎃