Baby Girl Peters

14/11/2025

26/10/2025

❤️

14/10/2025

RSV season is here, and for families of Tiny Heroes, it can bring added worry. A little prevention goes a long way.

Learn how to keep your Tiny Hero safe and supported this season: tinyhero.org/resources/10-ways-to-protect-your-cdh-baby-from-rsv

13/10/2025

We haven’t posted here in awhile because there really hasn’t been much to update. Aurora is a full blown toddler with a large attitude, strong will, and a drive for independence. She’s been eating well and gaining weight, but she’s still a tiny peanut. She’s a little delayed in her speech development, so we will be getting an evaluation done for that soon.
HOWEVER, the big news that deserved a post is that she had a sleep study done on September 23rd. Aurora has remained on oxygen when she sleeps because a little over a year ago during her last sleep study she could not maintain her oxygen levels due to moderate sleep apnea.
Today we met with her pulmonologist to discuss this years sleep study results and we are THRILLED to share that she can officially discontinue use of oxygen when she sleeps. While she still has some mild sleep apnea she was able to maintain her oxygen levels during those events and has proven that oxygen is no longer necessary!!!
Next year she will have a repeat sleep study to check on her sleep apnea, and at that time we will discuss the option of removing her tonsils if we believe that will help her.
Today we are finally able to celebrate a huge win! Aurora is finally able to be a cordless little girl 24/7!!

27/04/2025

01/04/2025

April is CDH Awareness month.

Congenital Diaphragmatic Hernia.

It’s 1 in 2500-3000 births globally, with over 1600 babies diagnosed each year in the United States alone.

It’s relocation.

It’s MFM + care teams.

It’s NICU.

It’s ECMO.

It’s surgery.

It’s pokes and tubes and supplemental oxygen.

It’s trachs and Gtubes and nissen surgeries.

It’s reflux and GI issues and delays.

It’s hypertension.

It’s no known cause.

It’s devastating.

But it is not always fatal.

CDH is Aurora.

Aurora is HOPE!!



🩷💙💛

26/03/2025

Supporting families at every step

07/02/2025

The Center for Fetal Therapy will host a webinar on Congenital Diaphragmatic Hernia (CDH) care in the era of fetal therapy on Tuesday, February 18 from 12:00 PM to 1:00 PM.

Ahmet Baschat, director of the Center for Fetal Therapy, general pediatric surgeon Shaun Kunisaki, and neonatologist Suneetha Desiraju will discuss key aspects of CDH management, from prenatal diagnosis to postnatal surgery and pediatric follow-up.

This webinar is ideal for clinicians involved in high-risk pregnancies and neonatal care. Visit the link to register for the webinar: https://bit.ly/3CRRCPv

04/01/2025

Learn about Kai’s journey

01/01/2025

Happy New Year everyone!! Here is Aurora’s update after her very busy December.

Help ensure no one goes through a health journey alone.