Lennox Strong

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Lennox Strong A page all about Lennox. All updates & milestones will be shared with his AGS6 journey �

another long day at Children's Hospital of Philadelphia seeing all my doctors 💙finally heading home with my mommy and po...
05/03/2026

another long day at Children's Hospital of Philadelphia seeing all my doctors 💙

finally heading home with my mommy and poppop!

i just got home from school! i’m sleepy but my mom wanted to take a picture of my haircut 😂
02/03/2026

i just got home from school! i’m sleepy but my mom wanted to take a picture of my haircut 😂

i went to the playground this weekend with my sissy and cousin paisley! i had so much fun! 🥹
02/03/2026

i went to the playground this weekend with my sissy and cousin paisley! i had so much fun! 🥹

28/02/2026

fun at the park!!!

MS CORRIE APPRECIATION POST 💙lennox has been with ms corrie for almost 6 months now - he spends the day with her and his...
21/02/2026

MS CORRIE APPRECIATION POST 💙

lennox has been with ms corrie for almost 6 months now - he spends the day with her and his friends on tuesdays and thursdays!

as everyone knows, lennox is in a wheelchair, so in order for lennox to be able to go outback and play with all his friends - his wheelchair needed to go down a few sets of stairs to get into the grass area.

ms corrie took it upon herself to purchase a ramp for him to easily get in & out of the backyard with his friends.

BEING INCLUDED IS SO IMPORTANT IN KIDS and she never forgot about lennox, not for a single SECOND.

the appreciation i have for this woman in such a short amount of time is just indescribable.

corrie - from the bottom of our hearts, THANK YOU and WE LOVE YOU!!!!!! 💙💙💙💙

(lennox had a tea party one day and another day all the girls lined up to give him hugs - yes, he reached out for every single one of them 🥹)

Aicardi-Goutières Syndrome : —A rare inherited disease that mainly affects the brain, immune system, and the skin. This ...
21/02/2026

Aicardi-Goutières Syndrome : —
A rare inherited disease that mainly affects the brain, immune system, and the skin. This disease affects the white matter in the brain leading to mild - severe intellectual or physical impairments in most children. The unneeded DNA and RNA may be mistaken by cells for the genetic material of viral invaders. This triggers an immune system reaction that includes the abnormal activation of interferon proteins, which play a critical role in the immune system including regulating inflammation, often known as autoimmune disease.

This year, rare disease day is held on 2/27/26
& september is leukodrystophy awareness month 🫶🏼

Please click the link below to order this years designs - we added tye-dye colors this year 💙

Thank you for your continuous support 🫶🏼

2026 rare disease day & leukodrystrophy awareness! . we have launched our lennox t-shirts for 2026! all proceeds go to lennox’s non-stop incoming medical bills. we truly...

just me & my mommy 💙
20/02/2026

just me & my mommy 💙

13/02/2026

only wants mommy to put him to bed 😭

fun at daycare with ms corrie 🫶🏼
13/02/2026

fun at daycare with ms corrie 🫶🏼

04/02/2026

this video was soooo funny! i couldn’t stop laughing 😂😂😂

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