Paige Demmons Journey

28/08/2025

She is heading under for PET scan and CT hopefully we can get some answers

27/08/2025

We got our room on Monday. Paige has had quite a bit of pain fevers here and there and a few of
Our Boston Children’s Hospital friends
Visit for a game if UNO when she was up to it.

25/08/2025

Lots of pain and sleeping this weekend. Paige woke up with a fever this morning and we are waiting for a room at Boston Children’s Hospital. Hoping that this is just a sign that things are working.
💕😘🥰💪🦄💜

19/08/2025

Paige is doing pretty good. Lots of pain and being uncomfortable this past weekend but she was in a good spot so we we t to our first baseball game last night. She still having a hard time eating.
💕😘🥰🦄🌈💪💜

19/08/2025

https://www.youtube.com/live/lT0mxe4aIOE?si=lYOdF43_3SwSkvWT

We are at the 5hr mark.

Live from Fenway Park its the 2025 NESN/WEEI Jimmy Fund Telethon. Call 877-738-1234, go to jimmyfund.org or text KCANCER to 20222 to help donate!Subscribe on...

12/08/2025

We are getting discharged later today. Still have a lot of strength building to do along with Eating and drinking but we are getting there!
💕🥳💪🦄😍🥰💜

08/08/2025

We have gotten the fevers under control and are trying to help with the mucus sores inside that make it challenging to want to eat or swallow. She is doing good according to her bloodwork. Just need her levels to come up higher to help with the healing process and the pain meds are helpful.

05/08/2025

Lots of sleeping to overcome the pukies and nausea. No eating today but we will get there! Transplant doctor says all looks good! “You got this” kiddo! One step at a time! 💕🫶🦄💪💪😘💜

04/08/2025

Fevers and vomiting have started ..The fevers I have been waiting for. They said it could mean it’s working so we will take it as a good thing and not a bad thing. Rest up sweet girl YOU GOT THIS!
😘🫶💜🦄💪💪💜💕

01/08/2025

Heading into the weekend and she seems to be doing really well! Thank you for all the prayers support and positive vibes! If all continues we will be out on Tuesday. It will be a while before we know the true results of how this Car T is working in her body.

29/07/2025

29/07/2025

And we have “T” cells all infused!!!!
😍💜😘🥰💪🦄