A perfect kidney match

03/12/2023

{{fozzie}}

28/04/2023

Look at that pink! Beautiful!!

19/01/2023

2022 was the hardest year I have ever lived through! I started hemo dialysis last February on an emergency basis as I was hospitalized with another issue and my function plummeted to 13% the decision was made to put the port in and begin then and there

The perma cath was placed in my chest and I began doing dialysis in center. I truly hated every single second I was in that chair! Upon looking further into my options I discovered Peritoneal dialysis and decided this was the route for me. The day they took the perma cath out was the day they put the port in for PD. There was an awful lot of back and forth and appointments had to be canceled and rescheduled but I'v been doing PD since September!

I really want to point something out. We, as patients have had to " wait, " to do anything as our kidneys die. There is now a drug out that can help slow the progression of cysts but it's very new. SO I have been waiting since my early 40's to get listed for a kidney transplant!

I AM DONE WAITING! 2023 will be the year I get my perfect kidney match! It's my focus as I am sick and tired of being sick and tired! I want MY LIFE back and these damn kidneys are not going to interfere with that!

If you'd like to be tested to see if we match let me know and I will have the information after my initial transplant evaluation next month! And I want to be VERY clear here........I don't want anyone to feel bad if you can not help me! I'm not asking for a cup of sugar. I am asking for a body part and that is not lost on me!

2022 is in the rear view and 2023 is WIDE OPEN ROAD to make this happen! I am claiming it RIGHT THIS MINUTE!! Thank you JESUS!!

If you come across this if you wouldn't mind sharing it to get my need out there in the world I would appreciate it so very much!!!

03/10/2022

Learning to do PD dialysis at home has been fairly easy! It is what I've wanted for months now! Dialysis that fits into my life style. My training Nurse calls me " The poster child, " for PD! And I am thrilled!

But just like anything else I got hit with some pretty negative feelings so I'm going to express them and be done with them.

I'm doing the treatments in my bedroom which is my entire second floor. No bathroom/no sink so I have to come downstairs to wash my hands every time I touch something. I'm trying my hardest to keep my hands off until I'm done but you wouldn't believe how many things we touch without realizing it! When I'm done I have to lug the full drain bag to the bathroom down stairs! That sucks!

The other thing was as I was sitting there looking at my IV pole with the solution hanging from it and the line going into my body and it hit ME HARD! This is it! This is my life until I get that kidney. It's like touching death just enough to scare the crap out of yourself!

My goal is to get off dialysis and get that perfect kidney and resume the life I seemed to have left behind! If you made it this far THANK YOU! I feel a bit better!

10/09/2022

I spent most of yesterday trying to talk myself IN TO calling the transplant center. I managed to talk myself right out of it! What is wrong with me? MONDAY FOR SURE I will be calling to start the transplant list process! I'm not real sure why I didn't call? I've been waiting for this for twenty plus years!

09/09/2022

I am beginning the process of being listed for a kidney transplant. It's a scary time for me right now because knowing that without a transplant I could die is HARD! I have a lot of life left in me that I would like to live without the constant need for dialysis. While I am truly grateful for this life saving technology it SUCKS! I miss me! I miss being able to walk with purpose and intent, rather than praying I get from point A to point B without falling over! I really just miss myself! SO, thus begins this next step in my journey through PKD! I am asking for prayers that my perfect match will be found!

PS God told me to ask for the " PERFECT, " match! Who am I to argue with the LORD?

26/08/2022

What I wouldn't give for one small drop of energy! I think it is the worst symptom of chronic kidney disease. My brain still works at lightning speed. It's my body that can't keep up! It does not matter how much sleep I get I am always exhausted!

22/08/2022

Being on dialysis is HARD! It takes a lot of you. Energy is not there so everything I do on dialysis days is so much harder! Sitting in a chair for three and a half hours three days a week sucks! Tomorrow I will be on the phone getting this catheter placed so I can do it at home! While I'm asleep!

21/08/2022

I love this!

Last night, while waiting to board our plane, Carter Jean was being her usual inquisitive self wanting to meet and say “hi” to everyone she could, until she walked up on this man.

He reached out and asked if she wanted to sit with him.
He pulled out his tablet and showed her how to draw with it, they watched cartoons together, and she offered him snacks.

This wasn’t a short little exchange, this was 45 minutes.
Watching them in that moment, I couldn’t help but think, different genders, different races, different generations, and the best of friends.

This is the world I want for her.
In a country that is so deeply divided by beliefs, I want her life to be filled with moments like this... not liberal or conservative republican or democrat, socialist or capitalist, just HUMAN.

Joseph from Samsungus in Oklahoma, if this should happen to find you.
Thank you for showing my daughter what kindness and compassion looks like.
Continue to shine your light in the world.

Credit: Kevin Armentrout

21/08/2022

Yepper

21/08/2022

Right? Ugh

19/08/2022

I've been having issues with this perma-cath in my chest. They do not recommend these for prolonged use and mine is going. They had to put medication in at my last session and it had to sit in there for forty-five minutes before they could even hook me up! It was so aggravating!

Having a catheter placed to do peritoneal dialysis at home!

19/08/2022

I also have a long standing dream. I plan to act upon that dream once my perfect kidney is placed in my body I am trying out for the competition show BIG BROTHER! I have dreamed of being a contestant on this show since the very first season it aired! Watch out BIG BROTHER here I come!

19/08/2022

By way of introduction my name is Marie and I am a 58 year old wife, mother to five amazing people { a daughter and 4 boys } Nana to 10 wonderful grandbabies and Great Nana to an amazing little boy! I live for my family!

I was diagnosed with poly-cystic kidney disease around the age of forty. For a great amount of time PKD sort of sat in the background of my life. No-one in my immediate family had it but we did learn soon after that my Mom has it as well and two of her sisters passed away while on dialysis. They had it as well. I was told I could expect kidney failure, dialysis and a transplant. I did have a few cysts drained as they were causing pain but other than that nothing really changed. Kidney function declined slowly!

That all changed this past Feb ( 2022 ). After a serious kidney infection that required hospitalization my function plummeted to 13% and a perma-cath was placed and I have been on dialysis ever since.

I am beginning the process of being listed for a kidney transplant. And I am seeking my " perfect, " kidney match. Why a " perfect, " match you may wonder? It's because GOD told me to ask for the " perfect, " kidney match! I can't argue with the Lord.

Dialysis is HARD on the body and not something I want to continue doing for a long period of time. I will be having a catheter placed to do peritoneal dialysis at home until my perfect kidney is found. In the meantime I will be searching for that kidney!

This page is to assist in that endeavour. All I ask from you is that you share share share it so it can reach as many people as possible. I appreciate it so much!

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