Tulip Paediatric Neurodisability Nursing Service

04/09/2025

Posted • Meet Dynamo! 🦖 🤗
Say hello to Dynamo, the friendly young dinosaur with a big heart and a brave spirit!
Dynamo has , just like some children do, and he’s here to help kids understand more about their condition in a fun and friendly way.
Dynamo knows what it’s like to live with dystonia. He’s been learning how to manage his symptoms and stay strong. He’s even had deep brain stimulation ( ) surgery, and he’s excited to share his story to help others feel less alone.
Read Dynamo’s story now via the link in our bio.

01/09/2025

With children and young people heading back to@school this week we thought we’d take the opportunity to share this post from

Posted
Going back to school often means new routines, meals, and pressures. For children with ARFID, that can be especially tough.

Too often, ARFID is dismissed as “just fussy eating.” The truth? ARFID (Avoidant/Restrictive Food Intake Disorder) is a recognised eating disorder that can cause real challenges with nutrition, growth, and emotional wellbeing.

This school year, let’s replace myths with facts, and judgement with understanding. Every child deserves compassion at the lunch table 🩵

13/08/2025

03/08/2025

Come along for a fun show and to support our Dramarama group!

Our talented performers will be dancing and singing to Grease and Abba songs! Come along and join us at this fabulous and fun rooftop fair!

12-1pm Tuesday August 5th at Costa Del Croydon at the Whitgift Centre

02/08/2025

Posted

🍴 Kids eat free (or for £1) this summer! Feeding the family over the holidays doesn’t have to break the bank.

We’ve rounded up some of the best kids meal deals from national chains, and there might be local offers near you too.

☺️ Swipe through to see where you can save
💚 Check dates & terms before you go
💬 Save or share to help another family this summer

01/08/2025

Posted • What is a ‘Special Needs’ Trust?

If you’ve heard the jargon, but don’t know what it all means, here’s the short version:

Special Needs Trusts are:

✨A legal way to hold money for a child who can’t manage it themselves
Rather than leaving money directly to your child, the trust holds it safely, with trustees managing it for their benefit.

✨A way of protecting vital benefits
If your child inherits money in their own name, it could stop means-tested support like Universal Credit or care funding. A trust keeps those benefits safe while still providing financial support.

✨ It’s usually the safest way to leave money to someone with SEND.
Even small inheritances can cause issues. A trust means their future is supported without putting their stability at risk.

If this sounds important but a bit overwhelming, you’re not alone. That’s exactly why I created Carers Academy.

Check out the free resources, or book onto a free wills and trusts webinar, link to all in bio.

29/07/2025

Posted

Family fun for all ages (0 to 14) and completely free!
Come and join our family hub fun day!
📍 Woodlands Family Hub (Site of Quest Primary School), Farnborough Avenue, South Croydon, CR2 8HD
🗓 Wednesday 30 July 2025
⏰ 10am to 11:30am - Crafting
🏏 1pm to 2:30pm - Games and Activities

No need to book, please come along ☀️

29/07/2025

Posted

Not every SEND provision is able to support autistic and SEND children during the holidays.. We have secured three days at Devas Club from 26 - 28 August, 11 - 3pm. (With access to our Tooting Autism Club 4th - 29th August)

For children to attend with their carers. Not a drop off provision.

Supported by Mia Care Services (based at Devas Club) https://miacareservices.co.uk/

Being part of we have been able to provide bespoke materials using symbols and words for our activities.

Best way for us to provide communication tools for all that may struggle with verbal communication or just need to know what’s happening next….

Brilliant to have Rebecca (Education Specialist from Widgit) providing online training with our volunteers.

More updates of what be taken place.

28/07/2025

Posted from for some ideas for your summer holidays and sensory seeking children and young people

Need ideas to keep your child occupied during the summer holidays? Save this post for some of my favourite activities which are not only fun, engaging and motivating for children but also target SO many OT skills ✨️

28/07/2025

Posted

During the resident doctor strike GP practices will continue to be open.

Please attend your GP and dental appointments unless you are contacted and told otherwise.

Please use https://111.nhs.uk/ and in life-threatening emergencies call 999.

20/07/2025

Posted

Each time we see this circulated across social media, it reminds us of exactly why parent carers of disabled children run our Listening Ear support service. They’ve been there before, they understand what it’s like, and they know how to get you out ❤️

Book a free call with them for practical advice, emotional support and a helping hand (link in bio)

You can also find fellow parent carers in our private Facebook group here (link in bio)

12/07/2025

Bromley Fire Station Open Day -Saturday, 12 July 2025 10.30am-3pm

Your chance to meet local firefighters and get fire safety advice.
See their latest fire and rescue service equipment.
Food and Drink Stands, family fun activities, Charity Raffle, BBQ, Bouncy Castles, Stalls from Age UK, Community Links Bromley.
For more info contact: 02085551200

Location
Bromley Fire Station
4 South Street
Bromley
BR1 1RH