Mason Daniel Golay

04/04/2026

Hi everyone, so sorry for the delay in our updates and this long update! Mason’s schedule is quite packed with therapies and doctor visits.

In March, Mason had his MRI, and the results were great—everything is still stable! It has been 2 years since his last brain surgery, and in May, it will be two years since he finished his radiation therapy. Since he has now been stable for two years, the Nero-oncologist have decided to do the MRIs every four months for the next year instead of every three as long as everything remains stable, which is a huge positive step!

Mason has been working incredibly hard with all his therapies! His vocabulary and communication with us has really blossomed since October last year. He’s mimicking a lot of what we say. He’s using his right hand more, but he’s still not fully using it. However, he uses it much more than he used to, and we don’t always have to prompt him to use it now. He’s still army crawling everywhere or he’ll butt scoot, getting on his knees and hands a lot to get himself into a sitting position. He’s not physically strong enough to walk on his own yet, but he walks a lot with us assisting him or in his walker, and boy does he love to walk!

Mason can count to 10 most of the time, though he might miss a number here and there—usually 7 and 8. He’s also been working on counting to 20! He almost knows his ABCs, knows a lot of his colors, and some shapes! He’s catching on to things a lot quicker.

Mason will be three on April 25th! He’ll start pre-k on April 27th, just once a week for half a day until school ends at the end of May, and then in August, when school starts again, he’ll be going three times a week for half a day. I’m so excited for him to be around kids his age and to be able to play, socialize, and learn more.

Mason will give fist bumps, high fives, and one of his newer ones is giving a thumbs up this one warms my heart so much and reminds me of our friend Sean. Sean would always give the biggest smile and 2 thumbs up!

Mason got to go to his first birthday party and his first Easter egg hunt. There have been a lot of first that he’s gotten to do and we are so excited to watch and see him experience even more.

We took a short trip back to Kansas for Mason’s aunt’s wedding. Unfortunately, we didn’t have enough time to see all of our family, but we did get to see some family, even if it was just for a short time.

Mason’s next MRI is in July, and we’ll do our best to give an update right around then.

We want to thank everyone for the continued prayers and support you have given our family.

10/10/2025

10/10/2025

Update 10/9/25

Mason has been doing really well and working very hard!

In August Mason had his MRI and everything came back stable still praise god!! Also in August Mason did an intensive Therapy called robotics therapy , this was a 2 week intensive 2 hour days of physical and occupational therapy. Robotics therapy is a type of rehabilitation that uses robotic devices to help people regain movement, strength, and coordination. Mason did so well and he started to use his right hand a little more. Robotics just woke up that right hand.

In September Mason had his eye surgery, it went well and he did amazing and handled everything so much better than we anticipated he would. At the end of September until now Mason has been busy doing another round of intensive therapy called constraint induced movement therapy, this is where they constrain his good arm which is the left arm and it makes him have to use his right. These are long therapy days he’s been doing this for 3 hours a day for 2 weeks and today is his last day! Today was his last day and they did a little ceremony for him.

We have a little break until December where he will doing another intensive for physical therapy this will also be 3 hour days for 2 weeks.

Videos will be posted separately.

30/05/2025

Update 5/30/2025

Hi everyone sorry we haven’t posted in a while. We meant to post when Mason had his last MRI back in February but time got away from us. Since the last time we posted mason has been doing amazing and finally got to meet Santa for the first time, got his first hair cut, saw and played in the snow for the first time, and got a puppy. Mason also turned 2 back at the end of April!! He’s been a very busy guy with all his therapies.

Mason just had his MRI one year post radiation and everything came back still stable!! He has been doing amazing and is such a happy guy!

Mason has a very busy summer schedule. He of course is still getting his PT, speech, and OT therapies weekly. On July 3 Mason’s having Strabismus eye surgery to correct the positioning of his left eye, also with doing the eye surgery the hope is it will correct his head tilt.

Then in August Mason is going for intensive robotics therapy this will be done to help strengthen his muscles. Then at the end of September Mason will be going for constraint induced movement therapy this is to help him to use his right hand as he should be.

Thank you everyone for the continued prayers,love and support!!

17/11/2024

Update 11/16/2024

Hi everyone it’s been awhile since we have posted. Mason is doing so good!

Mason had his MRI and it went well everything still looks stable and his oncologist are happy with what they have seen.

We have had a very busy last 3 months in between all the therapies, traveling, and doctor appointments.

At the end of August we were able to travel with Mason back home to Kansas and finally got to introduce him to all the family. We felt so blessed to be able to have Mason meet his aunts, uncles, cousins, great aunts & uncles, great grandma, etc. definitely was glad to be able to see everyone we were able to as always it was bittersweet to leave.

Once we got back to Georgia Mason started physical and occupational therapy twice a week and speech once a week. Mason has been working so hard and is making some progress and big strides. He graduated from feeding therapy to actual speech therapy. We can sit him up and he can stay sitting and hold it for a while until he either just gets tired or loses his balance. He is starting to push himself forward and pivots and rolls all over. He says bye, dada, mama, meow, and is working on go. He can sign more and all done. He is doing so much more.

At the end of September Mason got sick and we ended up taking him to the ER he had a ct scan and shunt series done everything came back good. He then later got admitted in to the hospital due to him being severely dehydrated from getting sick so much. I don’t think we will ever not be worried or scared when he gets sick or vomiting, our minds go automatically to something is horribly wrong.

Mason had an audiology appointment in September and didn’t pass the hearing on his left ear so they referred us to a ENT which found he had fluid build up so in October he had tubes placed, he had another audiology test done last week and he passed with his left ear except on a couple high pitch tones.

For Halloween Mason passed out candy with mom & dad and got to see all the kids dressed up which he enjoyed seeing.

Last year this time we were stuck in the hospital where we also spent Masons first Thanksgiving. This year we are so grateful to be able to be home and host thanksgiving and have grandpa and grandma come over.

Mason has come so far since last year we can’t thank you all enough for all the prayers, love, and support and continued prayers, love, and support! This year for Thanksgiving we are so grateful for all of you and so grateful that Mason is doing well.

02/08/2024

Update 8/2/24

Mason had his MRI 7/23/24 everything with his MRI came back good the spot their monitoring is still stable and has actually shrunk some. Mason’s next MRI will be in about three months.

Mason is still working hard on physical therapy, occupational therapy, and speech Therapy. He gets stronger and stronger every day and he has started using his right arm a little more. He’s still working hard at trying to sit up on his own and crawl.

Uncle Tim and cousin Teddy came down to see us and we enjoyed all of our time with them and so did Mason.

We officially feel comfortable enough to make a flight back home to Kansas, we have our flights booked for at the end of August and can’t wait to see family and friends in for family and friends to finally be able to meet Mason.

We can’t thank you enough for the prayers support and love you guys have shown us throughout this whole ordeal. We are just so thankful for all of you. God is good and prayer is powerful.

12/06/2024

Update 6/12/24

Mason has been doing great, today Mason is getting his CVL line taken out. Once Mason is completely healed back up he will be able to take baths and splash and get completely soaked, he will be able to go swimming, and will be able to eat with his hands and get dirty. Mason finally can do some normal baby things!! We celebrated Masons win on having stable scans! He is my superhero and amazes me more and more everyday. Masons next MRI scan is July 23rd.

Mason has still been working hard with his physical and occupational therapies he’s getting stronger and stronger everyday we are still working hard at sitting on our own and using our right hand.

Last week we got to watch our last little friend from our group of kiddos who started radiation therapy around the same time ring the bell. Maize and Mason have the same kind of tumor and her and her family flew over from New Zealand to get her radiation therapy.

Thank you everyone for the continued prayers, love, and support!

27/05/2024

Update 5/27/24

It has been an amazing 3weeks postop of radiation therapy. Mason has been doing so well, on Wednesday we had Masons MRI and received the results a few days later. The doctor said everything with Masons MRI looks stable 🥳, there is a spot that is about 1.9 cm that they will be monitoring in his next scans but the doctor did say it doesn’t look like there are any blood vessels going through it!

We have been enjoying being home, this week Nana and Papa came to visit with their new puppy. I haven’t seen Mason smile and laugh so much he finds the puppy so funny. We got to go to Medieval times in Atlanta and Mason had so much fun screaming and watching the horses. We definitely have an animal lover!

This Wednesday we have a follow up clinic appointment to see what the next steps are for Mason we have our fingers crossed we can get him scheduled to get his CVL line taken out which will be a small procedure. Then Mason would be able to do normal baby things like take a bath and splash around or get in the pool.

We can’t thank you guys enough for all the prayers, support, and love!

02/05/2024

02/05/2024

Update 5/2/2024

This morning has been amazing so far it was Masons last day of radiation!!! He got to ring the bell today.

On Tuesday we got to watch our radiation buddy Super Sean ring the bell for his last day of treatment, Mason and Sean started their treatment on the same day so we all got to know each other throughout these past 6 weeks. Sean and his mama drove an hour just to watch Mason ring the bell today.

We have about 3 weeks with no doctor appointments! May 22nd Mason has an MRI this MRI they will try to see if the radiation did it’s job, if everything comes back good the following week we will discuss having his CVL line removed and then we will have MRIs every 3 months for the first 2 years.

Over the weekend we celebrated Masons 1st birthday he loved his cake and presents.

As always we love and appreciate everyone for the continued prays and support through this journey.

25/04/2024

Update 4/25/23!

Today Mason turns 1 I still can’t believe it!! 🥲🥳💙🎊 Mason is going to get a cupcake for his birthday today and then this Sunday we will have a little party for him and he will get to have some cake and ice cream!

After today Mason has 5 days of radiation left! Last week Tuesday Mason got his anesthesia and later into his treatment his O2 started dropping, not anywhere close to them needing to stop his treatment. They thought that Mason might have been getting sick, the next day after he went under his O2 dropped again this time where they decided to stop his treatment. The next few treatments his O2 dropped again but they were able to get him through his treatment, since he never got sick and his lungs sounded clear they think it is due to allergies. They started giving him some breathing treatments before anesthesia and that seems to be doing the trick the last few days his O2 hasn’t dropped and has remained at normal levels.

We were blessed to receive some tickets to the Georgia Aquarium and was able to take Mason he loved it. He had a blast and loved all the colors.

Thank you everyone for the continued prayers, love, and support!!

06/04/2024

Update 4/6/2023

Mason has finished week 3 of radiation therapy and has reached the half way mark of being done with it!!

He is still doing great and rolling all over. He had a fun Easter at grandma and grandpa’s house. While we were at home he got to see the kitties which missed us all and wanted all kinds of love.

In 19 short days Mason is turning a whole 1 year old I still can’t believe it. I’m having all kinds of mixed emotions about definitely happy and little sad🥲🥲. It feels like time was stolen from us.