Multiple Sclerosis Information

26/09/2015

Happy Saturday :) Have a good , fatigue free day - all day :)

25/09/2015

This is me today....Anyone ever feel like this? Please share and like if you think so too :)

25/09/2015

BREAKING : http://www.startribune.com/minnesota-pot-producers-offer-patients-a-price-break/329327691/

Both of Minnesota’s medical ma*****na producers offered patients a price break this week.

25/09/2015

Happy Friday :) How are you today? Wishing you a great, fatigue-free day - all day :)

24/09/2015

WHAT DO YOU THINK? http://www.scientificamerican.com/article/melatonin-linked-to-seasonal-relapses-of-multiple-sclerosis/

A hormone involved in circadian rhythms could provide treatment for the autoimmune disease

24/09/2015

' HAS ANYONE BEEN THROUGH PIP ? Absolutely bloody fuming.
I was re-assessed for PIP and they decided that after only one year I no longer quality for the enhanced mobility rate. I requested a mandatory reconsideration, and in the meantime they have come and taken my Motability car away. Yesterday I received a letter saying they that have turned me down again. I have not yet been able to send them the letter that my MS nurse has dictated but not yet been able to get typed (and may not for some weeks due to backlog and no appointed secretary at present).
The decision on my reconsideration was turned around in 7 days, not giving me the requisite 28 days to provide evidence to support my case.
I spoke to the DWP today and they confirmed this and said I still have 2 weeks to supply said evidence. They also said that my MS nurse could phone them to provide verbal evidence as long as it was backed up in writing.
Absolute angel that she is, she called them this afternoon. She tells me they were utterly unhelpful and the only advice they gave her was that I should go to tribunal with her support!
They cocked up, they didn't follow protocol, and now they're trying to force me through the stress of a tribunal.
My anxiety is through the roof, my fatigue is crushing, and I'm having all kinds of symptom flares. I'm frightened I'm going to have a relapse.
The benefit system is appalling and it's the weakest and most vulnerable of is that are suffering the most. PLEASE HELP ME ! '

24/09/2015

HAPPY THURSDAY ! HOW ARE YOU TODAY? WISHING YOU A GOOD, FLARE-FREE DAY - ALL DAY :)

23/09/2015

http://www.invisiblems.com/spoons-are-great-in-theory-but-i-prefer-a-knife-2/

Most of us living with the crushing fatigue that accompanies chronic illness are familiar with Christine Miserandino’s Spoon Theory. (If not, read about it here: http://bit.ly/1DqtDfj.) She uses spoons to represent our limited supply of energy, and describes the choices that we make every day to use…

23/09/2015

HAPPY WEDNESDAY ! HOPE YOU HAVE A PAIN-FREE DAY - ALL DAY :)

22/09/2015

OF INTEREST : http://multiplesclerosisnewstoday.com/2015/09/21/review-explores-factors-influence-quality-life-patients-multiple-sclerosis/

Read more about the factors that influence the quality of life in patients with multiple sclerosis

22/09/2015

BREAKING:
http://multiplesclerosisnewstoday.com/2015/09/21/fingolimod-gilenya-found-effective-multiple-sclerosis-therapy-three-years-treatment/

Read about the finding that fingolimod is an effective multiple sclerosis therapy for up to three years of treatment.

22/09/2015

' What should I take to help control mood swings. I'm having them more and more. '

22/09/2015

HAPPY TUESDAY ! HOW ARE YOU TODAY ? WISHING YOU A PEACEFUL, PAIN-FREE DAY - ALL DAY :)

i

21/09/2015

' I have a problem with my left leg and both feet. My feet feel like I'm standing on cotton wool I have a little numbness in my calves but my left thigh is quite numb and there's muscle waste there too. At night in bed the left thigh cramps at the front terrible if I move and not get it in a good position. I am waiting for a follow up appointment with a neurologist after some electrical tests on my leg. I'm not sure if this is a back problem but in the back of my mind I'm worried about M. S. '

21/09/2015

' Hi everyone, I read somewhere that coffee may reduce the risk of getting MS - is this possible? Thank you '

21/09/2015

QUICK REMINDER :) http://multiplesclerosisnewstoday.com/2015/09/15/uk-multiple-sclerosis-society-proposes-urgent-revision-current-disability-benefits-system-ms-patients/

Read about the proposal from UK Multiple Sclerosis Society for an urgent revision of the current disability benefits system for MS patients.

21/09/2015

HAPPY MONDAY ! HOPE YOU HAVE A GREAT,PAIN-FREE DAY :)

20/09/2015

HAPPY SUNDAY :) GENTLE HUGS TO YOU :)