Indian Osteogenesis Imperfecta Foundation IOIF

13/09/2025

💡Did you know?
An OI warrior may face hundreds of fractures in a lifetime, depending on the severity of the condition.
Yet, with the right medical care, therapies, and strong support, they continue to live with courage, resilience, and determination.
Together, we can spread awareness and build a supportive community for OI warriors.

👉Learn more: www.indianoifoundation.org

10/09/2025

💡 Did you know?
Physiotherapy and hydrotherapy are safe and effective for children and adults with Osteogenesis Imperfecta (OI).

They strengthen muscles, protect fragile bones, and improve mobility. With the right therapies, OI warriors gain more confidence and freedom in their everyday lives.

At IOIF, we believe every child and adult with OI deserves access to safe therapies and supportive care. Together, let’s spread awareness.

👉 Learn more: www.indianoifoundation.org

08/09/2025

💡 Did you know?
Children with Osteogenesis Imperfecta (OI) may have fractures even without a fall.

Something as small as a sneeze, turning in bed, or a gentle bump can lead to a break. This is the daily reality for OI families — and the reason awareness is so important.

Every share helps us spread the word and bring more understanding.
👉 Learn more: www.indianoifoundation.org

06/09/2025

💡 Did you know?
Many children with Osteogenesis Imperfecta (OI) use wheelchairs, but that doesn’t limit their potential.
With love, therapy, and the right support, they learn, play, and achieve just like other children. Their determination and spirit make them stronger than their bones.

Every share spreads awareness and helps families feel less alone.

👉 Learn more: www.indianoifoundation.org



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04/09/2025

💡 Did you know?
OI is also called brittle bone disease.
It makes bones fragile and prone to fractures.

👉 Learn more: www.indianoifoundation.org

15/08/2025

From all of us at IOIF – Happy Independence Day! 🇮🇳

21/06/2025

18/06/2025

Wishbone Day 2025
It’s never too late to spread awareness about Osteogenesis Imperfecta (OI)!
On June 17, 2025, the Indian OI community came together at IGICH, Bangalore to celebrate Wishbone Day, a global movement that shines a light on OI and the strength of those living with it.
From heartfelt conversations to moments of joy and connection, this celebration was a testament to the resilience and unity of the OI community. We continue to raise awareness, foster inclusivity, and empower lives.

07/05/2025

Some pictures from the Wishbone Day online event. We were a cheerful group that benefited greatly from both sessions on the physical and psychological care of OI. Participants joined from various global locations, making the event open to all.

07/05/2025

In continuation of our Wishbone Day celebrations, we are thrilled to share inspiring stories from our own OI community members on the IOIF website. These narratives highlight the strength and resilience of our OI warriors:

💛 Anvi Bhat, 7, shares her joyful school adventures and love for art. 🎨🖌️
💛 Shreya Shankar, a psychology student, opens up about navigating young adulthood with OI. 👩🏻‍💼
💛 Bismah reflects on her journey from challenges to empowerment. 💥
Read their full stories here:
https://indianoifoundation.org/oi-warriors-of-india/

Let's celebrate their journeys and continue to support one another. 💛

Sahana Rajdev, 50, from Kolkata was diagnosed with OI at the age of 13 while undergoing a treatment for trauma to the eye and multiple fractures with very little injury. Currently she has loss of v…

02/05/2025

Wishbone Day is just 4 days away! 💛

Join us online to celebrate strength, break barriers, and raise awareness for Osteogenesis Imperfecta (OI).

Event Details:
- Date: 6th May 2025
- Time: 6:30 PM IST
- Zoom ID: 838 7352 0481
- Passcode: IOIF

Don't miss this inspiring event, which features:
- A 20-minute interactive adaptive fitness session led by Tony Jacobsen from the USA.
- An expert talk on Psychological Aspects of Living with OI by Dr. Raghavendra Kumar K and Ms. Pooja Lakshmi M. from Mana Mandira Healthcare, Bangalore.

🟡 Wear yellow to show your support and help spread the word about this important event! Invite your family and friends to join us.

Let’s come together to raise awareness, make OI visible, and ensure our voices are heard!

29/04/2025

WISHBONE DAY 2025 - Raising Awareness for Osteogenesis Imperfecta (OI)

Join us for a special online event organized by the Indian Osteogenesis Imperfecta Foundation (IOIF)!

Date: 6th May 2025
Time: 6:30 PM IST

Event Highlights:

Adaptive Workout Session with Tony Jacobsen, OI advocate and fitness coach from the USA

Special Talk on Psychological Aspects of Living with OI by Dr. Raghavendra Kumar K. and Ms. Pooja Lakshmi M. of Mana Mandira Healthcare, Bangalore

Zoom Details:
Meeting ID: 838 7352 0481
Passcode: IOIF

Let's come together to raise awareness, spread hope, and celebrate strength!
Wear Yellow, Show Support, Spread Awareness!

Visit our website: www.indianoifoundation.org
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