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Living with a chronicle Illness - Cystic Fibrosis. 🌹

Me behind the curtain. Living with a genetic disease. Living with a disease can bring the most out of you but it can also hold you back from living to the fullest or going totally all out without any regrets. Doubts, overthinking, joy, sadness, excuses… This is how I lived with Cystic Fibrosis. Cystic Fibrosis is a genetic disorder in which one will be born with, it effects mainly the lungs and as time goes by It effects your whole body. Your weight, your ability to work, nausea, headaches, breathing and so much more. It is also said, due to statistics that people with Cystic Fibrosis don’t have a long life ahead but medication has been improving along the years. Why now? Why did I have to speak about it now? It can be loads of answers. The first have to be that from a very young age I never liked people looking at me differently. For friends to be friends with me just because. I did not want my teacher not to fail me or for people to give me free passes at life just because. I once read that pityness never made kings, and I wanted to wear that crown. And so I wore it proudly, but now it’s time to wear it loudly, for those who have yet to come. How? I wanted to watch the public. I wanted to test the world. I found many, many people who supported me, but I also did find people who treated me wrong, and when I say wrong is because they didn’t take my word for it. They just thought I was playing games. What games? I’ll explain. I went hiking and people looked at me with faces of disbelieve thinking I should train more before I go hiking when I was only challenging myself. I went dance/exercise classes while people laughing at me cause I stopped to catch my breath for a billionth time in a 10 mins workout, where I was only following my doctors’ advice. I tried to stuff my mouth with pizza and burgers in public with people raising their eyebrows at me, when I was only angry that my stomach turned me down. I sit on every chair I find anywhere it is, I stop to cough and people look at me with disgust. I had people whispering in each other’s ear about my skinny legs or thin arms, when I had just been recovering from an operation due to my weight loss. This is not a cry for help. My only go here is for people out there to be nice, to whoever it is. It could be people with CF and it could be other situation people are dealing with. You never know what people are going through. Don’t judge the book by its cover, I’d be wearing red lipstick and a shiny dress and amazing shoes and the next minute I could be battling with myself cause my knees hurt and my breathing got heavy. Having Cystic Fibrosis is an ongoing battle. If people ask you to turn off your cigarette or to stay away if you’re sick, don’t argue that ‘it’s just a running nose’ cause it could be weeks of antibiotics for a cystic fibrosis patient. If someone ask you to do something that might sound ‘very demanding’ try to ask why in a nice way, try to be understanding. Let’s be more aware about people in Malta living with Cystic Fibrosis, let’s be more understanding. Whether it’s in a group of friends or at work, let’s make it possible. My name is Mandy and I have Cystic Fibrosis and although sometimes I have no control on what my body turns into, I must be focused. But to stay focused the public needs to help. I have Cystic Fibrosis but Cystic Fibrosis Don’t have me. #letsmakeachange #CFinMalta #65roses #letsgettogether #justbreathe #CFdonthaveme