A'Vayah's CHD Story

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A'Vayah's CHD Story

My hope as a mother is to not only share my child's story, but to bring as much CHD awareness to as many people as I can.

On November 24, 2013 I was told that my sweet baby girl would be born with multiple congenital heart defects. Words like Vsd, transposition of the great vessels, severe mitral stenosis, and double outlet left ventricle were thrown at me and I knew that none of the parenting books I had read talked about them. Never in my wildest dreams could I have ever imagined that instead of me preparing for a

normal healthy baby, that I would be preparing myself for a long journey that God had for me as a single mother with a baby who had congenital heart disease. This day changed my life forever. My A'Vayah has taught me so much about life. From the things most of us take for granted to the small issues we make bigger deals about, it all seems irrelevant! However, I hold strong to my faith and as the bible says in Jeremiah 29:11"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.

21/05/2025

Congratulations little one

18/02/2025

No words

08/01/2025

Happy 11th birthday 🎂

19/12/2023

If you ever wondered what beautiful heart looks like. Well, here you go. Her 2 chamber heart is a beast!

12/12/2023

Life often comes full circle. This has been the theme for how this year is ending. And for me, this has been the best feeling ever. I sometimes forget that I'm on this cardiac journey too. That just as much as I worry about my sweet Avayah, she worries about me as well. Today, as I was doing what I've done so many times before in the last nine years of the cardiac world before giving her over to her team for her left pulmonary angioplasty… she stopped me and said "sorry". I asked her why she needed to ever tell me sorry, and she simply stated, " I'm sorry for being this way and you having to be my mom and bring me to the hospital all the time". Did I want to cry? Yes. Did I cry immediately? No. I waited until I walked away after giving her a kiss and praying in her ear. I'm thankful for this little girl and that special heart. Each one of the scars on her sweet chest reminds me that God does not only listen, but answers prayers. My A'Vayah was given to me because God knew the world needed to see how awesome He is. The best part is, she will be 10 in 20 days….that 30% chance of living is surely not holding up well.

06/12/2023

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