The Spoonie Cafe

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The Spoonie Cafe Adapting to life with an invisible illness Posts are not intended as medical advice.

A place for those dealing with a chronic illness to find encouragement and tips to thrive while managing an invisible illness. Please discuss with your medical professional the best plan of care for yourself.

14/04/2018

"I don't do it because I'm doing something fun..."

If you are a chronic pain patient who has had your pain meds reduced or taken away Send your story to Human Rights Watch...
18/03/2018

If you are a chronic pain patient who has had your pain meds reduced or taken away Send your story to Human Rights Watch, email researcher Laura Mills at millsl@hrw.org. You have to tell your story if you want to see change.

By Pat Anson, Editor Human Rights Watch is well-known internationally for its groundbreaking reports on human rights violations around the world. The organization has recently reported on the torture of prisoners in Sri Lanka, forced labor in Thailand, and corruption and mass arrests in Sau

18/02/2018

Call to Action: The Nationwide DON'T PUNISH PAIN RALLY is set for Sat. April 7, 2018 at each State Capitol Building in almost all 50 states. Please take the time to read the post below and go to the website to learn more.
1. ...Please... *Share*... so that everyone suffering from chronic pain is aware of this rally. Thank You.

Celebrate Belly Laugh Day
24/01/2018

Celebrate Belly Laugh Day

Visit the link below for details about this event happening Today at 1:24 PM in your time zone. Belly_Laugh_Day_2018_2_poster Why laugh? Laughter Fuels Positive Energy Post about what fuels your p…

The off label use of Lyrica and gabapentin that the CDC recommends as an alternative to opioids for chronic pain is now ...
23/01/2018

The off label use of Lyrica and gabapentin that the CDC recommends as an alternative to opioids for chronic pain is now contributing to opioid deaths. They haven’t fixed the addiction problem. They are contributing to opioid deaths and victimizing chronic pain patients. So sad.

Researchers from the University of Bristol in England have linked opioid alternatives pregabalin (Lyrica) and gabapentin (Neurontin) to an increasing number of heroin-related overdose deaths in both England and Wales. The two drugs are in a class of medications known as gabapentoids. Initially indic...

When a 'Good Pain Day' is Just the Eye of a Bad Storm
21/01/2018

When a 'Good Pain Day' is Just the Eye of a Bad Storm

Recuperating more quickly after physical therapy gave me hope that I was on the way to recovery. Waking up to a very painful day after a good and productive one was depressing and defeating. I ha…

21/01/2018

“You wake up every morning to fight the same demons that left you so tired the night before, and that, my love, is bravery.” – unknown

"Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you thi...
18/01/2018

"Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think."

“Promise me you’ll always remember: You’re braver than you believe, and stronger than you seem, and smarter than you think.”

That is a fair question.  If you deal with chronic pain or a chronic illness you know how unpredictable life can be.  Yo...
16/01/2018

That is a fair question. If you deal with chronic pain or a chronic illness you know how unpredictable life can be. You also understand how wonderful it is to have supportive and knowledgeable medical support staff. I thought I had that. I had been seeing a specialist for a year and we had created a plan of care that was working well for me. [ 999 more words ]

That is a fair question. If you deal with chronic pain or a chronic illness you know how unpredictable life can be. You also understand how wonderful it is to have supportive and knowledgeable me…

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