19/11/2019
Update on cardiologist. He redeemed himself today. Our sons heart is perfect which is great news. He did acknowledge the possibility of corn allergies. Which is a big deal. Then he helped us with figuring out how to best update doctors prior to an emergency, eg: local hospitals get a full allergy info sheet, call ahead make an appointment and get info placed into your file. Anticoagulants for blood transfusion are made with corn, check Www.cornallergygirl.com for emergency room and medical info. She is anaphylactic to corn so her treatment would be different than our son who has neurological reactions and will display differently. The medications needed to fix anaphylaxis is different than for neurological issues. So these things are important for the intake to know in advance so they can see what they need to deal with. There are some religions who do not allow blood transfusions from donors so there is other options in place for them, he stated we should look into those.
Anyway, get your stuff in order, keep a medic alert bracelet on and laminates index card info in your wallet and a website or two with comprehensive quick read emergency info in case you’re not capable of speaking. If you don’t already have this, make a favorite trusted person your Medical Proxy, this way they get called and can advocate for you. I am working on this and was told it’s on the internet to download and it takes two minutes.
Good luck and make sure to plan ahead.
Party like it's 1899: References for survival when you're allergic to modern life. Severe and sensitive corn allergy, gluten free, soy free +30, MCAS, H-EDS, G6PD Deficiency.