Arianna Faro - One Limp At A Time Klippel-Trenaunay Syndrome

25/11/2025

Quick update; today is a good day! I cleansed the wounds last night and no big bleeds today ♡ I am very sore from yesterday's work, but I think it really helped. Very grateful to my Dr. and Np. for their all of their hardwork and time.. also very thankful to you guys for all of your support and kindess.

Happy almost Thanksgiving ♡ -Ari

25/11/2025

24/11/2025

I had to go back to the hospital late this afternoon to have my wounds worked on again. They are healing, slowly but surely. I need to start cleaning them more, but that petrifies me as everytime I do, a big bleed follows.. my hemoglobin is at an 8.3 and I am scared of losing more blood as I already feel so light-headed and dizzy upon standing. I am still waiting to hear back about an iron transfusion; I placed a phone call to my primary care associates nurses line, and they told me to call hematology at B&W hospital. I did that, and left a message, but I have still yet to hear back. Right now I am using my walker to get around from room to room in my house, as my parents are worried about me falling and hitting something (especially because I am on bloodthinners).

I just left the hospital with my parents after 2 hours of having the wounds worked on by the best (one of my favorite NPs and Dr. Alomari). I am incredibly sore, but I am glad it is over with. Unfortunately, the wounds need to be cleaned yet again when I get home. I feel like I could sleep for a month straight right now!

I will continue to keep you guys posted ♡

Thank you so much for the continued support, prayers, and love.. I derive a lot of strength and hope from reading all of the beyong kind messages you leave me; I love and appreciate you guys so much.
Xo Ari

23/11/2025

Don't really know what to write here as the video kind of speaks for itself. Love you guys - xo Ari

23/11/2025

I recieved these gorgeous flowers and the kindest message from Kat and Megan at Designs By Don Floral Boutique today ♡ I am so touched by this extremely kind gesture, and for the note that accompanied them.
I had a bleed start a literal 2 minutes after waking up today, and it was very scary for me as I was home alone at the time. Thankfully I was able to quickly implement the compression techniques shown to me by my Dr. on Monday, and got the bleeding to close after about 15 minutes. Unfortunately, I still lost a decent amount of blood in the process, which led to me still being super shaken up and light-headed even after the wound had closed.
Next thing I know, a super kind delivery man rang my doorbell, and I was handed these extremely beautiful flowers ♡ their smell alone immediately lifted my spirits and propelled me into a happy place, along with squashing my anxiety in the process.
People like Megan and Kat are how I keep going during the tough times; when I get down about my chronic illness, I am reminded of all of the amazing souls I've had the honor of connecting with that I may never have had the fortune of crossing paths with otherwise. When I get frightened, I remember that I am never doing any of this alone, as I have so many incredible people along with me on this journey. Those 2 things in themselves are all I will ever need to keep fighting.

Thank you again so much Kat and Megan, you really warmed my heart. ♡
- Ari

21/11/2025

Good afternoon guys! Happy Friday ♡

My P*P consulted with her hematology associates, and they decided I should get an iron infusion over a blood one.

As per google, here is the difference between the two:
"An iron infusion provides the body with iron to produce new red blood cells, while a blood transfusion directly gives the patient red blood cells. Iron infusions are used for iron deficiency anemia and address the root cause, whereas a blood transfusion is a quicker fix for severe anemia or active bleeding. Iron infusions avoid the risks associated with blood products, such as allergic reactions or infections, and can be more cost-effective long-term. "

I still can barely stand without feeling as though I am going to faint.. the only thing getting me by right now as far as having even a speck of energy is coffee; I am not someone who typically drinks caffeine as it tends to make my anxiety worse, but for now it is essential.

I am waiting for someone from my P*P's office to reach out to me today to set up a time for blood transfusion.

I know all of this hardship I am enduring is going to be so worth it in the end.. I am continuing to keep my eye on the prize.
P.s. thank you for all of the kind feedback on my video post! I am definitely going to start implementing more of them into my content.

Wishing everyone a good Friday and weekend ahead. I will continue to keep you guys posted. Xo - Ari

I hope everyone has a good Friday ♡

21/11/2025

20/11/2025

19/11/2025

Trying to get outside of my comfort zone and do more videos! ♡

Thank you all so much for the continued love and support, I know I sound like a broken record, but I am forever grateful for you guys ♡

Also thank you so much to Hair Xtreme for my eyebrow wax today! I love you guys so much. Everytime I go in there it feels like a warm hug.

I hope everyone's week is going well so far! Xo

18/11/2025

Hi guys ♡

I sent over a picture of how much I bled this past Friday night to my IR doctor/NP a couple of nights ago.. My Mom had wisely taken a picture of the scene once the situation was under control. In the image, there were literally pools of blood on my bedroom rug, one extremely large in size. When they saw how much I had bled out, my Dr. wanted to see me in person himself (originally I was coming in to see my NP for a deep cleanse of the wounds). After he finished up with his 2 cases of the day, he came and helped work on the wounds for over 2 hours to try and halt the bleeding. As usual, he shoots, he scores. I have barely had any bleeding since last night, a bit of oozing but nothing anywhere near as voluminous as the past week and a half. I am in a great deal of pain today, but it's so beyond worth it to have piece of mind that everything is going to be ok. I've been so scared for the past couple of weeks and have barely been able to sleep. Last night, however, I slept with extreme ease. ♡
However, that is not to say the problem is eradicated; the large wounds still have some healing to do, and there is still a chance a bleed out could happen at anytime. Because of this, I have to lay low. If I go out somewhere, I need to have someone with me at all times.
Before my Dr. worked on me last night, I had bloodwork done to test my hemoglobin. It is currently an 8.6, which means I have dropped a full 2 points in just 2 weeks (it was last tested on the day I was discharged from the hospital). I feel so incredibly week and like the life has been sucked out of me when I stand, but I am stubborn and am trying to push myself to be as active as my body will alow. My IR team wants me to reach out to my P*P to see if she can set up an iron or blood transfusion (which I am literally doing as soon as I finish writing this).
Between the low hemoglobin, the residual pain from the operation itself, and the discomfort stemming from yesterday's work, I feel like I have been hit by a bus. In times like these, I practice gratitude and think of all of the immense blessings in my life. There is so much good, and that in itself counts for so much more than my temporal struggles. To be alive to feel pain is a blessing in itself, so I am grateful for that.
I am also grateful to have the most amazing doctor (along with his NP) that truly care; my doctor was kind enough to do this for me after already having done 2 long procedures thay day. I admire his work ethic greatly.
Also, I had Mom and Dad with me every step of the way yesterday, as per usual. I don't even want to imagine what going through any of this without them would be like. They are my since day 1 crew. ♡ Anyway, for now, I am going to make the best out of life and enjoy each day I am fortunate enough to inhabit this earth.

Below are some pictures from yesterday. I am trying to document as much of my journey on here as possible. I think it is important to show both the highs and lows of having a chronic illness.

Thank you so much for all of your well wishes and for the perpetual support. ♡

All my love,
Ari

17/11/2025

Hey guys,
Hours after my last post 2 days ago, I experienced my worst bleed yet. I ran an errand about 7 minutes away from home, and when I got home I started bleeding out profusely through my pants; there were literally big puddles of blood all over my rug/floor. Luckily my Mom and Dad were one room over and they immediately sprung into action. Dad grabbed supplies while Mom held tight compression on the surgical wound for about half an hour. I've had many scary moments in my life thus far, and this without a doubt ranks as one of the top ones.
Mom and Dad wanted me to consider an ambulance, but I said no as my town's fire chief and medical director are refusing to transport me to Children's or Brigham and Women's Hospital. They are blaming it on "port of entry", but Massachusetts says there are supposed to be exceptions for medically complex patients who need specialized care. I have provided four different provider letters stating that it is imperative that I be taken to one of those hospitals in case of a Klippel emergency, but apparently they think they know better than all of my doctors as to where I should be taken. Honestly, the whole situation disgusts me, and I've had a source close to the situation tell me it's about money.

Anyway, that was my worst bleed yet thus far after one of these operations, and it has really shaken me to my core. My hemoglobin was already low when I left the hospital, and now I am certain that it has gone down even more; since the bleed the other night, I've had the typical oozing and a couple of more stronger bleeds, but thankfully not on the same level as Friday's.

I am supposed to be going to Children's in the morning to meet with my NP (who I adore and completely trust, and I know I am always in the best of hands with her) to have her help do a deep clean of the surgical wounds. However, I am petrified that it may provoke even more bleedoits.
I can't go anywhere other than the doctors rigjt now because if one of these bleeds happens in person I will undoubtedly have an ambulance called on me, and God knows what hospital I will end up at.. because KTS is so rare, a hospital without KT specialists in it will have no idea what to do with me.

Everything is just a mess right now, I feel like I am going to implode. I feel so weak and just mentally exhausted from worrying, but I am going to continue to trust the process.

Below is a picture of me, my mom, and nephew during a video chat earlier tonight. No matter what I am going through, Billy always manages to bring huge smiles to my face.

Sending everyone lots of love and light,
Ari

14/11/2025

I'm feeling quite frustrated today, as it has been another day of bleeds; everytime one area seems to calm down, another area errupts = X I keep having to remind myself that I just need to be patient.

The wounds are also not supposed to have the dark matter around them. I am cleansing them as I have been instructed to, but I still can't seem to get rid of the darkness.

A couple of days after I got discharged, a visiting nurse came by (who I absolutely adore, I have had her prior). I told her I was cleansing the wounds by myself, so I got discharged. I am now going to see if I can get a visiting nurse to come back out and care for them, as I am at a loss and am not quite sure what else I can do.. clearly whatever I am doing is not working. I'm feeling so discouraged today.

The wounds pictured are not the one that has been bleeding out today, that part of my leg is currently wrapped.