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Support, information, and community for people with carcinoid syndrome diarrhea. Facebook Terms of Use: Please respect Facebook’s Terms of Use at all times.

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The My Dazzle Page is dedicated to providing support and information for people living with neuroendocrine tumors who have carcinoid syndrome diarrhea (CSD). Whether you want to learn more about carcinoid syndrome, carcinoid syndrome diarrhea, or are either taking or considering XERMELO, this space is for you. Our hope is that this page inspires and educates you and fellow travelers on this journey, and that you can all embrace your stripes. Managed by TerSera Therapeutics LLC (“TerSera”), the My Dazzle page is designed for you to join and interact with other members of the CSD community. With that in mind, our main priority is to foster an environment of respect and trust. To maintain that environment, we ask that you follow our Community Guidelines listed below.

1. Medical advice: It is not our intention to serve as a substitute for medical advice, and any content posted should not be used for medical advice, diagnosis, or treatment. Please consult a physician before making changes to your own NETs/carcinoid syndrome management plan.

2. Adverse Event or Adverse Drug Reaction Reporting: The My Dazzle page does not allow comments or direct messaging. You are encouraged to report negative side effects of prescription drugs to the FDA. To report suspected adverse reactions, contact the FDA at 1-800-FDA-1088 or www.FDA.gov/medwatch. You may also contact TerSera Therapeutics at 1-844-334-4035 or medicalinformation@tersera.com.

3. User Generated Content: TerSera is not responsible if someone shares or takes content from TerSera's social properties on other social media channels.

4. Violation Protocol: TerSera reserves the right to ban/block users from the My Dazzle page if they suspect a violation of the My Dazzle Community Guidelines. Please check our Community Guidelines for updates, as we reserve the right to update and modify these Community Guidelines at any time. Your use of this page indicates that you have accepted these Community Guidelines. While these guidelines cover most situations, TerSera reserves the right to take any action to ensure that My Dazzle is not abused or disrupted in any way. While TerSera provides the platform for individuals to receive support and information, the content shared or tagged by community members does not represent the official policies or views of TerSera. Please see Full Prescribing Information: bit.ly/429rKGo

XERMELO is a registered trademark of TerSera Therapeutics LLC.
©2023 TerSera Therapeutics LLC. All rights reserved. XER-P-0443 (11/2023)

01/11/2025

November is Carcinoid Tumor Awareness Month, and we want to raise awareness of this rare and challenging disease! Carcinoid—or neuroendocrine—tumors (NETs) can cause the body to oversecrete serotonin, which can result in carcinoid syndrome diarrhea (CSD).

16/10/2025

Some of the best things about fall are the crunchy leaves, crisp air, and freshly-baked goods! If you're in the mood to bake, try making this delicious, CSD-friendly zucchini bread recipe. Its low-sugar, dairy-free ingredients make it the perfect dessert that will satisfy your sweet tooth.

ZUCCHINI BREAD RECIPE

Ingredients
3 eggs (beaten)
1 cup of unsweetened applesauce
⅔ cup of honey or maple syrup
2 cups of grated zucchini (1 large zucchini)
1 ¼ tsp of baking soda
¼ tsp of baking powder
3 tsp of cinnamon
½ tsp of nutmeg
1 tsp of vanilla extract
1 tsp of salt
3 cups of white all-purpose flour

Directions
1. Preheat the oven to 350°F.
2. Spray two 9” x 5” loaf pans with nonstick cooking spray, or use nonstick pans to
prevent the bread from sticking.
3. In a large bowl or stand mixer, combine the eggs, applesauce, and honey (or maple
syrup). Whisk until combined.
4. Stir in the zucchini and vanilla.
5. In a separate bowl, combine the flour, salt, cinnamon, baking powder, and baking soda.
6. Using a mesh strainer, sift the dry ingredients into the zucchini mixture. Stir until combined.
7. Pour the batter into the loaf pans.
8. Bake for 55-60 minutes, or until a toothpick inserted into the center comes out clean.
Let the bread stand for 10 minutes before removing from the pan.
9. After removing, let it cool for 15-20 minutes before serving.

02/10/2025

Taking a light walk for 15-30 minutes a couple of days a week is a great way for you to get some sun and steps in. Remember, too much exercise can trigger your symptoms...so be sure to keep it light. If you have someone who you enjoy going on light walks with, share this with them!

Make sure to pay attention to how you're feeling and talk to your healthcare provider if you have any questions or concerns about your routine.

17/09/2025

Worried about the cost of care with XERMELO? You are not alone or without support. TerSera SupportSource offers coverage and access support, including financial assistance for eligible patients. Explore your options at bit.ly/access-and-support-resources.

Indication

XERMELO is a prescription pill, used along with somatostatin analog (SSA) therapy, for carcinoid syndrome diarrhea in adults who are not adequately controlled by SSA therapy.

Important Safety Information

• Do not take XERMELO if you have a history of hypersensitivity to telotristat or any of the ingredients in XERMELO.
• XERMELO may cause constipation which can be serious. You should stop taking XERMELO if severe constipation or severe, persistent, or worsening abdominal pain develops. Talk to your doctor if you have these symptoms.
• The most common side effects of XERMELO include nausea, headache, increase in liver enzymes, depression, flatulence, decreased appetite, swelling of your hands and feet, fever, abdominal pain, and constipation.
• Talk to your doctor about all medications you are taking as some may interact with XERMELO.
• XERMELO is not recommended if you have moderate or severe liver impairment.

You are encouraged to report negative side effects of prescription drugs to the FDA. To report suspected adverse reactions, contact the FDA at 1-800-FDA-1088 or www.FDA.gov/medwatch. You may also contact TerSera Therapeutics at 1-844-334-4035 or medicalinformation@tersera.com.

Please see Full Prescribing Information: bit.ly/XERMELO_PI

04/09/2025

Have you recently been prescribed XERMELO for carcinoid syndrome diarrhea (CSD)?

TerSera NurseSupport is here to help you as you start your treatment journey. Through TerSera NurseSupport, you can connect with a clinical nurse educator (CNE) who can help with questions about starting XERMELO, advocacy connections, and nutrition and CSD education. Remember, your CNE is here to support and provide you with helpful resources, so you have the tools you need to feel confident about managing your condition. Enroll in TerSera NurseSupport today: bit.ly/XermeloAsk-a-Nurse

Indication

XERMELO is a prescription pill, used along with somatostatin analog (SSA) therapy, for carcinoid syndrome diarrhea in adults who are not adequately controlled by SSA therapy.

Important Safety Information

• Do not take XERMELO if you have a history of hypersensitivity to telotristat or any of the ingredients in XERMELO.
• XERMELO may cause constipation which can be serious. You should stop taking XERMELO if severe constipation or severe, persistent, or worsening abdominal pain develops. Talk to your doctor if you have these symptoms.
• The most common side effects of XERMELO include nausea, headache, increase in liver enzymes, depression, flatulence, decreased appetite, swelling of your hands and feet, fever, abdominal pain, and constipation.
• Talk to your doctor about all medications you are taking as some may interact with XERMELO.
• XERMELO is not recommended if you have moderate or severe liver impairment.

You are encouraged to report negative side effects of prescription drugs to the FDA. To report suspected adverse reactions, contact the FDA at 1-800-FDA-1088 or www.FDA.gov/medwatch. You may also contact TerSera Therapeutics at 1-844-334-4035 or medicalinformation@tersera.com.

Please see Full Prescribing Information: bit.ly/XERMELO_PI

20/08/2025

Looking for an easy, crunchy side dish to bring to your next summer cookout? Try this recipe for homemade baked potato chips that are low in sugar and fats, making them delicious and, most importantly, an unlikely trigger for your symptoms.

EASY BAKED POTATO CHIPS RECIPE

Ingredients
4 large potatoes (sweet, russet, or gold; peeled)
½ Tbsp of canola oil
½ Tbsp of dried rosemary
Salt and pepper (to taste)

Directions
1. Slice the potatoes into chips or fries, whichever you prefer.
2. Bring a pot of lightly salted water to a boil.
3. Add the potatoes and boil for 15 minutes.
4. Drain and set aside.
5. Preheat the oven to 350°F and coat a baking sheet with nonstick cooking spray.
6. Spread the potatoes in a single layer on the baking sheet.
7. Lightly drizzle with oil.
8. Sprinkle evenly with rosemary.
9. Bake for 15 minutes.
10. Flip and bake for another 25 minutes.
11. When potato chips are finished baking, sprinkle with salt and pepper.

If you find that your symptoms are beginning to return, it may be time to talk to your doctor: bit.ly/Doctor-Discussion

05/08/2025

Contrary to popular belief, grocery shopping actually can be fun…if you know what you're looking for. Check out these CSD-friendly foods that are worth adding to your grocery list and your shopping cart:

Berries
Eggs
Salmon
White bread
Asparagus
Bell peppers

Other options include:

White pasta
Top loin pork chop
Boneless, skinless chicken breast
Lettuce
Grapes
Mandarin oranges
Peaches

If you find that your CSD symptoms are beginning to return, it may be time to talk to your doctor: bit.ly/Doctor-Discussion

23/07/2025

Don't let your carcinoid syndrome diarrhea symptoms keep you from enjoying activities this summer! No matter where you go, it's important to stay on track with your treatment and remember to pack your medication. Here are some helpful tips for taking your meds when you're on the go:

• Carry your meds with you
• Set reminders on your phone
• Write down reminders in a journal or planner
• Bring food to eat with meds

16/07/2025

While on somatostatin analog (SSA) therapy, Randy continued to experience carcinoid syndrome diarrhea (CSD) symptoms. His doctor recommended adding XERMELO to his treatment plan. Hear about Randy’s experience with XERMELO + SSAs: bit.ly/XERMELO-Patient-Spotlight

Indication

XERMELO is a prescription pill, used along with somatostatin analog (SSA) therapy, for carcinoid syndrome diarrhea in adults who are not adequately controlled by SSA therapy.

Important Safety Information

• Do not take XERMELO if you have a history of hypersensitivity to telotristat or any of the ingredients in XERMELO.
• XERMELO may cause constipation which can be serious. You should stop taking
XERMELO if severe constipation or severe, persistent, or worsening abdominal pain
develops. Talk to your doctor if you have these symptoms.
• The most common side effects of XERMELO include nausea, headache, increase in
liver enzymes, depression, flatulence, decreased appetite, swelling of your hands and
feet, fever, abdominal pain, and constipation.
• Talk to your doctor about all medications you are taking as some may interact
with XERMELO.
• XERMELO is not recommended if you have moderate or severe liver impairment.

You are encouraged to report negative side effects of prescription drugs to the FDA. To report SUSPECTED ADVERSE REACTIONS, contact the FDA at 1-800-FDA-1088 or www.FDA.gov/medwatch. You may also contact TerSera Therapeutics at 1-844-334-4035 or medicalinformation@tersera.com.

Please see Full Prescribing Information: bit.ly/XERMELO_PI

10/07/2025

Are you experiencing more frequent or increased bowel movements despite being on SSA injections? Are you taking antidiarrheals more often? Have you been limiting activities outside of the home? Do you find yourself planning where to find bathrooms when you leave the house? If you are doing any of these things, it may be time to talk to your doctor about XERMELO.

Fill out this doctor discussion guide and bring it to your next doctor's appointment to start the conversation: bit.ly/Doctor-Discussion

Indication

XERMELO is a prescription pill, used along with somatostatin analog (SSA) therapy, for carcinoid syndrome diarrhea in adults who are not adequately controlled by SSA therapy.

Important Safety Information

• Do not take XERMELO if you have a history of hypersensitivity to telotristat or any of the ingredients in XERMELO.
• XERMELO may cause constipation which can be serious. You should stop taking XERMELO if severe constipation or severe, persistent, or worsening abdominal pain develops. Talk to your doctor if you have these symptoms.
• The most common side effects of XERMELO include nausea, headache, increase in liver enzymes, depression, flatulence, decreased appetite, swelling of your hands and feet, fever, abdominal pain, and constipation.
• Talk to your doctor about all medications you are taking as some may interact with XERMELO.
• XERMELO is not recommended if you have moderate or severe liver impairment.
You are encouraged to report negative side effects of prescription drugs to the FDA. To report suspected adverse reactions, contact the FDA at 1-800-FDA-1088 or www.FDA.gov/medwatch. You may also contact TerSera Therapeutics at 1-844-334-4035 or medicalinformation@tersera.com.

Please see Full Prescribing Information: bit.ly/XERMELO_PI

25/06/2025

Trying to find meal options that may not trigger your CSD symptoms can be a bit overwhelming. When planning your next lunch, try this delicious recipe for Greek yogurt chicken salad! Not only is this recipe tasty, but it’s also packed with protein and low in fats and sugar, making it CSD-friendly.

GREEK YOGURT CHICKEN SALAD RECIPE

Ingredients
4 boneless, skinless chicken breasts
½ cup of nonfat Greek yogurt
3 celery stalks (peeled, steamed, and finely chopped)
½ tsp of curry powder
Salt and pepper

Directions
1. Lightly season the chicken with salt.
2. In a large pan or pot, cover the chicken with water and bring to a boil.
3. Cover and reduce to a simmer. Cook for 15–20 minutes, or until chicken is cooked through.
4. Remove the chicken from the liquid and let it cool.
5. Using 2 forks, pull apart the chicken to shred it. Set aside.
6. In a medium bowl, whisk together the Greek yogurt and curry powder. Season with salt and pepper to your liking.
7. Combine the chicken, celery, and curry-yogurt sauce. Toss gently.
8. Serve on bread with lettuce for a sandwich or on crackers for a snack.

Share this recipe with a friend or family member today!

10/06/2025

What does support look like to you? A community where you can go to learn more about your condition may provide a valuable source of support. My Dazzle is here if you're looking for a community that provides the information you need as you navigate your carcinoid syndrome diarrhea (CSD) journey.

Along with My Dazzle, there are other online community groups and advocacy organizations that provide information on CSD. Check them out here: bit.ly/access-and-support-resources

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https://www.XERMELO.com/

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