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Support, information, and community for people with carcinoid syndrome diarrhea. Facebook Terms of Use: Please respect Facebook’s Terms of Use at all times.

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The My Dazzle Page is dedicated to providing support and information for people living with neuroendocrine tumors who have carcinoid syndrome diarrhea (CSD). Whether you want to learn more about carcinoid syndrome, carcinoid syndrome diarrhea, or are either taking or considering XERMELO, this space is for you. Our hope is that this page inspires and educates you and fellow travelers on this journe

y, and that you can all embrace your stripes. Managed by TerSera Therapeutics LLC (“TerSera”), the My Dazzle page is designed for you to join and interact with other members of the CSD community. With that in mind, our main priority is to foster an environment of respect and trust. To maintain that environment, we ask that you follow our Community Guidelines listed below.

1. Medical advice: It is not our intention to serve as a substitute for medical advice, and any content posted should not be used for medical advice, diagnosis, or treatment. Please consult a physician before making changes to your own NETs/carcinoid syndrome management plan.

2. Adverse Event or Adverse Drug Reaction Reporting: The My Dazzle page does not allow comments or direct messaging. You are encouraged to report negative side effects of prescription drugs to the FDA. To report suspected adverse reactions, contact the FDA at 1-800-FDA-1088 or www.FDA.gov/medwatch. You may also contact TerSera Therapeutics at 1-844-334-4035 or medicalinformation@tersera.com.

3. User Generated Content: TerSera is not responsible if someone shares or takes content from TerSera's social properties on other social media channels.

4. Violation Protocol: TerSera reserves the right to ban/block users from the My Dazzle page if they suspect a violation of the My Dazzle Community Guidelines. Please check our Community Guidelines for updates, as we reserve the right to update and modify these Community Guidelines at any time. Your use of this page indicates that you have accepted these Community Guidelines. While these guidelines cover most situations, TerSera reserves the right to take any action to ensure that My Dazzle is not abused or disrupted in any way. While TerSera provides the platform for individuals to receive support and information, the content shared or tagged by community members does not represent the official policies or views of TerSera. Please see Full Prescribing Information: bit.ly/429rKGo

XERMELO is a registered trademark of TerSera Therapeutics LLC.
©2023 TerSera Therapeutics LLC. All rights reserved. XER-P-0443 (11/2023)

16/07/2025

While on somatostatin analog (SSA) therapy, Randy continued to experience carcinoid syndrome diarrhea (CSD) symptoms. His doctor recommended adding XERMELO to his treatment plan. Hear about Randy’s experience with XERMELO + SSAs: bit.ly/XERMELO-Patient-Spotlight

Indication

XERMELO is a prescription pill, used along with somatostatin analog (SSA) therapy, for carcinoid syndrome diarrhea in adults who are not adequately controlled by SSA therapy.

Important Safety Information

• Do not take XERMELO if you have a history of hypersensitivity to telotristat or any of the ingredients in XERMELO.
• XERMELO may cause constipation which can be serious. You should stop taking
XERMELO if severe constipation or severe, persistent, or worsening abdominal pain
develops. Talk to your doctor if you have these symptoms.
• The most common side effects of XERMELO include nausea, headache, increase in
liver enzymes, depression, flatulence, decreased appetite, swelling of your hands and
feet, fever, abdominal pain, and constipation.
• Talk to your doctor about all medications you are taking as some may interact
with XERMELO.
• XERMELO is not recommended if you have moderate or severe liver impairment.

You are encouraged to report negative side effects of prescription drugs to the FDA. To report SUSPECTED ADVERSE REACTIONS, contact the FDA at 1-800-FDA-1088 or www.FDA.gov/medwatch. You may also contact TerSera Therapeutics at 1-844-334-4035 or medicalinformation@tersera.com.

Please see Full Prescribing Information: bit.ly/XERMELO_PI

10/07/2025

Are you experiencing more frequent or increased bowel movements despite being on SSA injections? Are you taking antidiarrheals more often? Have you been limiting activities outside of the home? Do you find yourself planning where to find bathrooms when you leave the house? If you are doing any of these things, it may be time to talk to your doctor about XERMELO.

Fill out this doctor discussion guide and bring it to your next doctor's appointment to start the conversation: bit.ly/Doctor-Discussion

Indication

XERMELO is a prescription pill, used along with somatostatin analog (SSA) therapy, for carcinoid syndrome diarrhea in adults who are not adequately controlled by SSA therapy.

Important Safety Information

• Do not take XERMELO if you have a history of hypersensitivity to telotristat or any of the ingredients in XERMELO.
• XERMELO may cause constipation which can be serious. You should stop taking XERMELO if severe constipation or severe, persistent, or worsening abdominal pain develops. Talk to your doctor if you have these symptoms.
• The most common side effects of XERMELO include nausea, headache, increase in liver enzymes, depression, flatulence, decreased appetite, swelling of your hands and feet, fever, abdominal pain, and constipation.
• Talk to your doctor about all medications you are taking as some may interact with XERMELO.
• XERMELO is not recommended if you have moderate or severe liver impairment.
You are encouraged to report negative side effects of prescription drugs to the FDA. To report suspected adverse reactions, contact the FDA at 1-800-FDA-1088 or www.FDA.gov/medwatch. You may also contact TerSera Therapeutics at 1-844-334-4035 or medicalinformation@tersera.com.

Please see Full Prescribing Information: bit.ly/XERMELO_PI

25/06/2025

Trying to find meal options that may not trigger your CSD symptoms can be a bit overwhelming. When planning your next lunch, try this delicious recipe for Greek yogurt chicken salad! Not only is this recipe tasty, but it’s also packed with protein and low in fats and sugar, making it CSD-friendly.

GREEK YOGURT CHICKEN SALAD RECIPE

Ingredients
4 boneless, skinless chicken breasts
½ cup of nonfat Greek yogurt
3 celery stalks (peeled, steamed, and finely chopped)
½ tsp of curry powder
Salt and pepper

Directions
1. Lightly season the chicken with salt.
2. In a large pan or pot, cover the chicken with water and bring to a boil.
3. Cover and reduce to a simmer. Cook for 15–20 minutes, or until chicken is cooked through.
4. Remove the chicken from the liquid and let it cool.
5. Using 2 forks, pull apart the chicken to shred it. Set aside.
6. In a medium bowl, whisk together the Greek yogurt and curry powder. Season with salt and pepper to your liking.
7. Combine the chicken, celery, and curry-yogurt sauce. Toss gently.
8. Serve on bread with lettuce for a sandwich or on crackers for a snack.

Share this recipe with a friend or family member today!

10/06/2025

What does support look like to you? A community where you can go to learn more about your condition may provide a valuable source of support. My Dazzle is here if you're looking for a community that provides the information you need as you navigate your carcinoid syndrome diarrhea (CSD) journey.

Along with My Dazzle, there are other online community groups and advocacy organizations that provide information on CSD. Check them out here: bit.ly/access-and-support-resources

05/03/2025

If you have carcinoid syndrome diarrhea (CSD), you are likely being treated with somatostatin analog injections (SSAs). However, over time, you may begin to experience breakthrough symptoms of CSD.

Fortunately, there is a medication that may help with your breakthrough CSD symptoms. Talk with your doctor about this option: bit.ly/Doctor-Discussion

XERMELO is a prescription pill, used along with somatostatin analog (SSA) therapy, for carcinoid syndrome diarrhea in adults who are not adequately controlled by SSA therapy.

Important Safety Information

• Do not take XERMELO if you have a history of hypersensitivity to telotristat or any of the ingredients in XERMELO.
• XERMELO may cause constipation which can be serious. You should stop taking XERMELO if severe constipation or severe, persistent, or worsening abdominal pain develops. Talk to your doctor if you have these symptoms.
• The most common side effects of XERMELO include nausea, headache, increase in liver enzymes, depression, flatulence, decreased appetite, swelling of your hands and feet, fever, abdominal pain, and constipation.
• Talk to your doctor about all medications you are taking as some may interact with XERMELO.
• XERMELO is not recommended if you have moderate or severe liver impairment.

You are encouraged to report negative side effects of prescription drugs to the FDA. To report suspected adverse reactions, contact the FDA at 1-800-FDA-1088 or www.FDA.gov/medwatch. You may also contact TerSera Therapeutics at 1-844-334-4035 or medicalinformation@tersera.com.

Please see Full Prescribing Information: bit.ly/XERMELO_PI

19/02/2025

If you have been diagnosed with carcinoid syndrome diarrhea (CSD), there are different ways to manage your symptoms. Below are 3 key ways that may help you manage your CSD. Make sure to pay attention to how you are feeling and consult your doctor or nurse before making any changes to your lifestyle.

1. Maintain a well-balanced diet with low-sugar and low-fat foods
2. Practice stress relief techniques like meditation and deep breathing
3. Engage in light to mild movement a few times a week

05/02/2025

When dealing with CSD, it's best not to consume foods that are high in sugar. However, if you're craving a sweet treat, why not make a citrusy, CSD-friendly frozen yogurt!

MANGO LIME FROZEN YOGURT RECIPE

Ingredients
2 cups of frozen mango
1 Tbsp of honey
1/2 cup of nonfat plain yogurt
1 Tbsp of fresh lime juice
1 tsp of fresh lime zest

Directions
1. Place all the ingredients in a food processor or blender.
2. Blend for about 3 minutes or until smooth.
3. Scrape the sides of the bowl and blend for 2 more minutes.
4. Transfer mixture into an airtight, freezer-safe container and freeze for at least 6 hours.
5. Store in freezer for up to 1 month.

22/01/2025

Let's shine a light on the importance of identifying changes in your symptoms when managing your carcinoid syndrome diarrhea (CSD). If you are a CSD patient, make sure to track your symptoms as soon as they start to better understand what your body is telling you and to support your conversations with your doctor or nurse.

If you are experiencing differences in your bowel movements, take note of the changes and make sure to share with your doctor or nurse at your next appointment.

Here's a discussion guide you can fill out and take with you to your next appointment: bit.ly/Doctor-Discussion

09/01/2025

Let’s shine a light on serotonin, which is a hormone that communicates with the gut to help with digestion. If you are diagnosed with carcinoid syndrome, your body may produce too much serotonin, which can result in carcinoid syndrome diarrhea (CSD).

To address these symptoms, medications like an anti-diarrheal may provide some temporary relief, but they don’t target the root cause of your CSD. Fill out this discussion guide to take with you to your next appointment, so you can talk with your doctor about available treatment options: bit.ly/Doctor-Discussion

XERMELO is a prescription pill, used along with somatostatin analog (SSA) therapy, for carcinoid syndrome diarrhea in adults who are not adequately controlled by SSA therapy.

Important Safety Information

• Do not take XERMELO if you have a history of hypersensitivity to telotristat or any of the ingredients in XERMELO.
• XERMELO may cause constipation which can be serious. You should stop taking XERMELO if severe constipation or severe, persistent, or worsening abdominal pain develops. Talk to your doctor if you have these symptoms.
• The most common side effects of XERMELO include nausea, headache, increase in liver enzymes, depression, flatulence, decreased appetite, swelling of your hands and feet, fever, abdominal pain, and constipation.
• Talk to your doctor about all medications you are taking as some may interact with XERMELO.
• XERMELO is not recommended if you have moderate or severe liver impairment.

You are encouraged to report negative side effects of prescription drugs to the FDA. To report suspected adverse reactions, contact the FDA at 1-800-FDA-1088 or www.FDA.gov/medwatch. You may also contact TerSera Therapeutics at 1-844-334-4035 or medicalinformation@tersera.com.

Please see Full Prescribing Information: bit.ly/XERMELO_PI

23/12/2024

Happy holidays from My Dazzle! We hope this year has been a great one, and we are so grateful for every single member of this community. To the patients and caregivers who make this dazzle so special, we wish you all a wonderful holiday season and a safe, healthy, and happy new year!

11/12/2024

Through “Shine a Light,” we are providing our community with disease education as well as ways to live a healthier life with carcinoid syndrome diarrhea (CSD).

When dealing with CSD, community is more important than ever. You shouldn't navigate this journey alone, which is why it's important to talk with your doctor about additional treatment options, and also to connect with friends and family and lean on them for support. You can also find extra support by connecting with others in the CSD community, whether through My Dazzle or other online groups.

24/11/2024

Welcome to the Dazzle Diner, where we provide you with fun, delicious CSD-friendly recipes.

Breakfast is the most important meal of the day, but finding a breakfast option that doesn't have a lot of sugar can be a challenge when managing your CSD symptoms. Try this simple-yet-delicious, low-sugar French toast recipe, and be sure to visit our feed for other Dazzle Diner specials!

QUICK CINNAMON FRENCH TOAST RECIPE

Ingredients
4 eggs
1 tsp of ground cinnamon
1/2 tsp of nutmeg
1 cup of nonfat milk
1 tsp of vanilla extract
1 Tbsp of canola oil
8 slices of white bread
Pinch of salt

Directions
1. In a shallow dish, whisk eggs, spices, milk, vanilla, and salt together until well combined.
2. In a large skillet, heat the canola oil over medium heat.
3. Coat both sides of bread in the egg and milk mixture, one slice at a time.
4. Place each slice carefully in the skillet and cook on medium heat until toast is golden brown (about 3 minutes).
5. Flip and repeat on the other side.
6. Remove from heat and set aside.
7. Repeat with the other slices.
8. Serve with your favorite pureed fruit.

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https://www.XERMELO.com/

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