BRACE yourselves

19/05/2025

Hey everyone welcome Robert Watson who has a lot to share about braces and his conditions. 🤗💕🎉

23/09/2023

Sprained my wrist again, sleeping wrong.
Is there a right way to sleep??? Anyone?

08/07/2023

Have y'all heard about the MUSC Norris Lab study that has found a gene for HEDS!!!!?

GO HERE!!!

MUSC researchers believe they have found a gene mutation associated with hypermobile Ehlers-Danlos syndrome.

04/04/2023

A quick lesson about autoimmune diseases. It takes an average of 3 years and 5 doctors for a person to get a proper diagnosis of an autoimmune disease. I just wish more people understood what an autoimmune disease is. It is not a cold or the flu, you will never get better, and even a nap will not help. Just eating a salad and hitting the gym won’t slim your face or get the pounds off. Sleeping 10 hours doesn’t leave you well rested, ever. Last minute changes in plans because that “just got ran over” feeling never makes appointments, just walks in whenever you aren’t ready. Achy joints and bones, dry skin, breaking hair, mood swings, and depression are just the tip of the iceberg. You are also prone to having multiple autoimmune diseases.
The “put together on the outside”, rarely matches the raging battle on the inside.
I am watching the ones who will take the time to read this entire post and react.
Please, in honor of someone who is fighting Psoriatic arthritis POTS, MCAD, Sjogren's, Scleroderma, Hashimoto Disease, Hypothyroidism, Ankylosing Spondylitis, Fibromyalgia, Lupus, Sarcoidosis, CVID, RSDS, Rheumatoid Arthritis, Hepatitis, Raynauld's Syndrome, Diabetes, Mold Illness, Celiac, Crohn’s, Ulcerative Colitis, Pemphigus, Neuropathy, SPS, MS, PBC, Psoriatic Arthritis, CIDP, Alopecia, MMN And GPA .Copy and paste to your page and reply "DONE" on mine.
Unfortunately, most of us know someone fighting against one or more Autoimmune Diseases. March is Autoimmune Awareness Month. By sharing this we can raise awareness, spread information and increase knowledge about all autoimmune issues not just during March but until we have cures for all. 🙏🏻 ❤️💙💚💜Thank you!💞

25/12/2022

Check it out zebras!

Hypermobile Ehlers-Danlos syndrome is a connective tissue disorder. When Sarah Lazarus' daughter was diagnosed with it, she discovered that the majority of cases are going undiagnosed for decades.

23/12/2022

Found a nice list of braces on this site:

A list of braces for EDS - I will update as I find more.

22/07/2022

Here is a link to the ehlers-danlos society conference. It has virtual tickets $150and in person tickets. Even if you can't afford to purchase still poke around on the site. You can get the names of specialists in several disciplines and track down some of their other publications. Also some of the products I have found that we posted about are sponsoring. My fave is that elastic band exoskeleton support but its too expensive for me! I wonder if it can be purchased with FSA/HSA funds? I bet it can. Anyway there is plenty of stuff you can find without tickets. The daily agenda for the 4 days in all the way at the bottom
https://www.ehlers-danlos.com/2022-global-learning-conference/

Registration Options In Person Registration Options Virtual Registration Options 2022 Hybrid Global Learning Conference In-person, Scottsdale, Arizona, USA – August 3-6, 2022 Attend virtually – August 4-6, 2022 We are delighted to welcome you to register for our 2022 Global Learning Conference!...

16/07/2022

News you can use!

"I've been thinking of you with profound gratitude. I've had the core braid for two days now, and it's amazing. It feels like floating while I'm in it. I'm now working on raising my arms while sitting upright. It changes everything for me." ~ Julie⁠
⁠
Enter, win, and support The Ehlers-Danlos Society! Purchase a ticket for $25 and you will be entered into a drawing to win a new Body Braid Core Body Braid valued at $185 USD.⁠
⁠
For sitting, simply slip on the Core Body Braid like a jacket and then wrap the lower loops around your knees. Adjust, finding what gives you the greatest comfort. Then, the wonderfully comforting support moves along with you, training your body to naturally relax into an aligned, strain-free posture and movement. ⁠
⁠
The Core Body Braid can be adapted to use for any activity by adding extension straps and braiding down to the feet.⁠
⁠
Click to enter!⁠ https://ehlersdanlos.networkforgood.com/events/45446-enter-support-and-win
You can enter from anywhere in the world.⁠ ⁠
⁠
No purchase is necessary. 100% of proceeds go towards The Ehlers-Danlos Society's mission.

25/05/2022

Peroneal tendinitis/osis
(Pain up the outside of your leg from the outer ankle) treatment ideas?