Ehlers Danlos Syndrome Awareness Page

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Ehlers Danlos Syndrome Awareness Page Ehlers Danlos Syndrome Awareness Take a minute to learn about Ehlers Danlos Syndrome: have you been misdiagnosed with Fibromyalgia? chronic pain? chronic fatigue?

This is a page to promote awareness of Ehlers Danlos Syndrome and condtions which go hand in hand with EDS, ie: Dysautonomia, Orthostatic intollerance, Chiari, Gastroparesis ect.. Joint pain? Dislocations? IBS? Searching and Searching and getting nowhere? Are you told its all in your head or treated like your crazy? Youre not crazy. Doctors and the pubic are simply not educated about EDS. It is sa

id to be rare. EDS is not rare it is extremely under diagnosed. It is time to change the fact that EDS is so un-known. it is estimated that 95% of people with EDS are un-diagnosed. Up to 50% of people who think they have Fibromyalgia may actually have Ehlers Danlos Syndrome. There is a huge problem in getting that diagnosis wrong, because EDSers suffer many issues, and have many co-morbid conditions secondary to the EDS that need to be monitored and treated.

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