Sophie's Rare Journey with AVN

  • Home
  • Sophie's Rare Journey with AVN

Sophie's Rare Journey with AVN Sophie was the 2012 Regional Telethon Little Star. Follow her journey, suffering with a rare disease diagnosis - Avascular Necrosis.

Sophie was diagnosed withJIA (Juvenille Arthritis) at 1yo. Unfortunately, despite a variety of treatments, we have not been able to control her arthritis. Several years after her JIA diagnosis, following a slight fall, it was discovered that the bones in Sophie's left ankle were crumbling and she was diagnosed with AVN (Avascular Necrosis)
This rare medical condition is caused due to the interruption of blood flow to her bones. This has since been discovered in her right ankle too. Unfortunately AVN is a rare diagnosis and therefore there are no known treatments. Therefore the focus is preventing further damage rather than repairing the damage that has already occured. Sophie has to endure many painful procedures, injections & infusions, daily medications, frequent MRI's and has limited mobility. Sophie was the regional 2012 Telethon Little Star with Conor Brown (you can follow Conor Journey on Facebook too: Conor's Challenges - A Rare Journey)

Address


Website

Alerts

Be the first to know and let us send you an email when Sophie's Rare Journey with AVN posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

  • Want your practice to be the top-listed Clinic?

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram