Psoriatic Arthritis Foot Study

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Psoriatic Arthritis Foot Study Foot problems among people with psoriatic arthritis
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This feature in the limbic summarised some of our findings from the national study we undertook, about the impact of foo...
30/05/2023

This feature in the limbic summarised some of our findings from the national study we undertook, about the impact of foot problems in those with PsA. You can see that almost have of the people who kindly completed the survey for us reported a history of repeated falls. We are just about to undertake another study trying to find out why that might be the case! If you live close to Brisbane and would like to help with this study - we will post some details of how you can get involved shortly. Over the next few weeks - we will start to share some of the findings we have made from the national survey and what we found out about the impacts that PsA had on footwear choices, how nail problems impacted people and the levels of physical activity people with PsA could undertake. We will also share the details of some of the research papers published around the survey and its development - which we hope can provide better guidance for health professionals, so that those with PsA and foot problems get better outcomes.

About half (49%) of patients with psoriatic arthritis (PsA) report a history of falls in the preceding 12 months, according to an online survey of more than 600 Australian patients. The survey, published in a letter to the editor in Rheumatology, also found that more than 30% of those patients repor...

Electronic platform launchMake your voice heard. Arthritis Australia needs your help to lobby for more support for peopl...
21/04/2022

Electronic platform launch

Make your voice heard. Arthritis Australia needs your help to lobby for more support for people with arthritis: Step 1 – email your local MP. Step 2 – spread the word!

The web link is here - https://arthritisaustralia.com.au/1in7witharthritis/

Similar to this new platform, our program of work found high levels of impact from foot problems among people with PsA, with a lack of specialist health services to help and lack of support being reported by over 600 people with PsA in Australia.

Share the link and tell your story in your own words is a powerful way to help MPs understand the personal impact of arthritis and the support that is needed.

Arthritis Australia is calling on politicians to support a package of measures to improve support for people with arthritis, including urgently addressing gaps in care for children with arthritis, and support for people languishing on joint surgery waiting lists. More than 3.6 million Australians of...

People with psoriatic arthritis are almost three times as likely to have depression as those with psoriasis, according t...
13/04/2022

People with psoriatic arthritis are almost three times as likely to have depression as those with psoriasis, according to a UK study. Symptoms such as pain, itch and fatigue may be more strongly linked with depression than overall disease severity. The study recommends routine screening for depression among people with PsA.
https://rheuma.com.au/psoriasis-depression-risk-dangerously-high-and-even-worse-for-psa/21627

People with psoriasis need to be watched closely for depression and suicidal ideation, especially if joint pain is thrown into the mix.

Helpful web link:My PsA Psoriatic Arthritis Support Program:  https://www.mypsoriaticarthritis.org.au/
08/02/2022

Helpful web link:
My PsA Psoriatic Arthritis Support Program: https://www.mypsoriaticarthritis.org.au/

MyPsA is designed to help people with Psoriatic Arthritis (PsA) seize control and become active participants in their journey with PsA

PsA and gout converge as ‘PSOUT’Researchers have proposed two distinct profiles for psoriatic arthritis (PsA) dependent ...
08/02/2022

PsA and gout converge as ‘PSOUT’
Researchers have proposed two distinct profiles for psoriatic arthritis (PsA) dependent on serum urate levels, after finding that patients with hyperuricemic PsA showed a poorer response to treatment as well as increased peripheral and destructive joint damage compared to those with normal levels.

The retrospective research, published in Clinical Rheumatology (https://rdcu.be/cGAB5) included 242 patients from France, 30% of whom had hyperuricemia and 6.2% met 2015 ACR/EULAR criteria for gout.

Univariate analysis showed that hyperuricemic patients were more frequently male (72.6% vs 39.1%) than normo-uricemic patients, with higher body mass index (30.9 vs 28.7 kg/m2) and more comorbidities (Charlson comorbidity index: 2.6 vs 1.8).

The researchers also found that mean age of PsA onset was significantly higher in the hyperuricemic group (47.5 vs 43 years), that this arm had more polyarticular (56.2% vs 41.9%) and less axial involvement (9.6% vs 22.8%), and that the disease was more destructive (52.8% vs 37.4% with radiographic destructive PsA, respectively).

PsA patients with joint destruction were also shown to more frequently to have hyperuricemia (37.6% vs 25.8%), and multivariable analysis confirmed the link between hyperuricemic PsA with peripheral joint involvement (odds ratio 2.98) and worse response to treatment (OR 0.35).

The authors conclude that the study “allows for distinguishing 2 distinct PsA profiles according to their association with hyperuricemia,” and that the results “support a potential worsening impact of MSU crystals on PsA, previously named psout.”

A two-year UK study has explored the unmet needs of people with psoriatic arthritis through the James Lind Alliance Prio...
06/01/2022

A two-year UK study has explored the unmet needs of people with psoriatic arthritis through the James Lind Alliance Priority Setting Partnership. The project is now complete and here is a summary.

The priority setting partnership was funded by BritPACT and led by Dr Laura Coates from the University of Oxford in collaboration with the Psoriasis Association, the British Society of Rheumatology (BSR) and PAPAA.

We hope that the results from this project will guide future research in psoriatic arthritis that is directly important and relevant to people living with this condition, their families and carers, and the healthcare professionals treating them. You can find more details on the James Lind Alliance and BritPACT websites.

Been diagnosed with Psoriatic Arthritis? Flora a Rheumatology Care Co-ordinator will discuss this condition in detail in...
17/11/2021

Been diagnosed with Psoriatic Arthritis? Flora a Rheumatology Care Co-ordinator will discuss this condition in detail in her online event at 12:30pm today. Join from wherever you are to ask questions and learn from both Flora and others. If you're new to BJC Connect, set up a free account here to join the workshop https://hubs.li/H0_gh8P0

Been diagnosed with Psoriatic Arthritis? Flora our Rheumatology Care Co-ordinator will discuss this condition in detail in her online event at 12:30pm today. Join from wherever you are to ask questions and learn from both Flora and others. If you're new to BJC Connect, set up a free account here to join the workshop https://hubs.li/H0_gh8P0

25/10/2021
New hub launches for 200,000 Australians living with psoriatic arthritisAustralians living with psoriatic arthritis can ...
05/09/2021

New hub launches for 200,000 Australians living with psoriatic arthritis

Australians living with psoriatic arthritis can now become active and informed participants in their journey with the disease through a new online hub, launched today by Arthritis Australia.

Those engaging with the free hub, MyPsA will be able to build individually tailored profiles, access customised information about their condition, and link with relevant support services.

Psoriatic arthritis is an autoimmune condition which causes pain and swelling in the joints. While not widely reported on, psoriatic arthritis affects around 200,000 Australians. Three out of every 10 people with the skin condition psoriasis develop psoriatic arthritis.

“MyPsA is a vital tool for helping those living with psoriatic arthritis to get a greater depth of knowledge on how to manage this complex condition,” said Arthritis Australia CEO Jonathan Smithers.

"Along with consulting regularly with their rheumatologist, people with psoriatic arthritis should also have easy access to reputable sources of information so they can learn more about their condition, and MyPsA can offer them just that,” said Professor Susanna Proudman, a rheumatologist and Medical Director of Arthritis Australia.

MyPsA visitors will also be able to link with support programs offered across the country through state and territory arthritis organisations.

“Australians living with psoriatic arthritis have not been able to access simple, centralised, and relevant information about this condition before today. I'm hugely excited about the potential MyPsA has to improve lives,” said Mr Smithers.

MyPsA offers information about the psoriatic arthritis, as well as a range of links for treatment options and ways to improve the management of the condition. It will provide tips about lifestyle changes that can make living with psoriatic arthritis more manageable.

"We want every Australian living with psoriatic arthritis to have access to up-to-date news, information, and treatment options regardless of where they are on their journey or where they live around the country,” said Mr Smithers.

More information can be found at: www.mypsoriaticarthritis.org.au
National Arthritis Infoline: 1800 011 041

MyPsA is designed to help people with Psoriatic Arthritis (PsA) seize control and become active participants in their journey with PsA

These debilitating conditions are often invisible on the outside, and leave those impacted feeling isolated and alone. R...
03/07/2021

These debilitating conditions are often invisible on the outside, and leave those impacted feeling isolated and alone. Raising awareness of this is important to improve understanding about the disease among health professionals, PsA.com

Psoriatic arthritis patients share their experiences being misunderstood by their healthcare team. Insight includes lack of understanding & feeling judged.

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