Periodic Paralysis Association

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Periodic Paralysis Association The PPA is on a mission to foster awareness and promote science-based information. https://periodicparalysis.org/donate/

🎤 60 Days to Go!✨ Global experts. Groundbreaking topics. Heartfelt connections. At  , you’ll gain insights into research...
04/08/2025

🎤 60 Days to Go!
✨ Global experts. Groundbreaking topics. Heartfelt connections. At , you’ll gain insights into research, treatment, and life with PP.
🎥 All ballroom sessions recorded for attendees!
➡️ Secure your spot—knowledge is power, and it starts with registration: https://periodicparalysis.org/conference-2025/

Happy Disability Pride Month from the PPA!🎉 July is Disability Pride Month—a time to celebrate identity, resilience, and...
31/07/2025

Happy Disability Pride Month from the PPA!

🎉 July is Disability Pride Month—a time to celebrate identity, resilience, and the vibrant contributions of the disability community.

💙 At the Periodic Paralysis Association, we honor the strength, courage, and brilliance of every individual affected by Periodic Paralysis. Your voice matters. Your story inspires. And your pride deserves recognition—not just this month, but year-round.

📅 Join us October 4–5 in Orlando or online for the 2025 Periodic Paralysis Conference—a gathering built on empowerment, learning, and joy.

🏨 Hilton Orlando Lake Buena Vista @ Walt Disney World
🎥 In-person & livestream options available
🎟 All registered guests receive access to recorded sessions
âś… Register today: https://periodicparalysis.org/conference-2025/

➡️ Keep the pride alive—register today and carry this celebration forward into October and beyond!

📅 70 Days to Go!🌟 The countdown begins! In just 70 days, we’ll gather at Hilton Orlando Lake Buena Vista to connect, lea...
26/07/2025

đź“… 70 Days to Go!

🌟 The countdown begins! In just 70 days, we’ll gather at Hilton Orlando Lake Buena Vista to connect, learn, and empower our amazing community. Whether you're joining in person or virtually, this year’s will be unforgettable.
🗓 Oct 4–5 | 🌍 In-person + Livestream
➡️ Register today and be part of the experience—your voice matters!

Registration is officially open for the 2025 Periodic Paralysis Conference! Join us October 4th & 5th, 2025 in person at...
16/06/2025

Registration is officially open for the 2025 Periodic Paralysis Conference! Join us October 4th & 5th, 2025 in person at the Hilton Lake Buena Vista in sunny Lake Buena Vista, Florida or via our livestream for an incredible weekend of community, advocacy, learning, and innovation.

Topics to be covered:
-creating a roadmap to better quality of life with periodic paralysis
-diet
-anesthesia
-research updates
-periodic paralysis 101
-advocacy
-social support and mental health
-resources for living with periodic paralysis

Register today at: https://periodicparalysis.org/conference-2025/registration-2/

Image description: a turquoise graphic announcing the 2025 periodic paralysis conference.

Drum roll please: the 2025  Conference will be held at  in Orlando, Florida October 4th-5th, 2025! For now you can save ...
27/03/2025

Drum roll please: the 2025 Conference will be held at in Orlando, Florida October 4th-5th, 2025! For now you can save the date, but official registration will be announced soon!

The Inaugural World Periodic Paralysis Day might have only been a couple of days ago, but the Periodic Paralysis Associa...
26/03/2025

The Inaugural World Periodic Paralysis Day might have only been a couple of days ago, but the Periodic Paralysis Association is already working on World Periodic Paralysis Day 2026!

This week members of the Board of Directors from the Periodic Paralysis Association have already met with 8 United States Congress and Senate offices to advocate for the periodic paralysis community and to have a resolution introduced making March 23rd, 2026 World Periodic Paralysis Day in the United States Senate and Congress! Alone we might be rare, but together we can make a world of difference for people living with periodic paralysis!

Sunday was the inaugural World Periodic Paralysis Day! As the founding organization, The Periodic Paralysis Association ...
25/03/2025

Sunday was the inaugural World Periodic Paralysis Day! As the founding organization, The Periodic Paralysis Association is proud to be illuminating hope around the world through strength, unity, and connection in the global periodic paralysis community for the first time.

This global day is dedicated to connecting the international Periodic Paralysis (PP) community by bringing patients, caregivers, and advocates together to raise awareness, share experiences, inspire hope, and create change.
Established by a coalition of non-profits, patients, caregivers, and advocates, World Periodic Paralysis Day (WPPD) shines a spotlight on the challenges of living with PP and the urgent need for improved diagnosis, treatment, and care. Together, we aim to:
-Reduce delays in diagnosis
-Increase public and medical knowledge about PP
-Foster a supportive global community

By amplifying patient voices and sharing stories, we can break the silence, reduce stigma, and inspire progress.

On behalf of the Periodic Paralysis Association, we are grateful to everyone around the world who contributed to the inaugural World Periodic Paralysis Day by sharing social media posts, infographics, distributing flyers and posters, sharing personal stories, wearing their WPPD shirts with pride, attending virtual events, and making charitable donations.

Our most heartfelt thank you to our lead sponsor , for making this day possible and to the , , , , and for coming together to change the world for people living with periodic paralysis.

Although the inaugural world periodic paralysis day might have passed, it is important to keep the momentum we have created together raising awareness going all year long!

Happy World Periodic Paralysis Day from Chicago! This weekend the Chicago skyline has illuminated to become a beacon of ...
23/03/2025

Happy World Periodic Paralysis Day from Chicago! This weekend the Chicago skyline has illuminated to become a beacon of hope, strength, and unity for everyone living with periodic paralysis! Thank you to for illuminating hope for people all around the world with this ultra rare neuromuscular condition.

Image description: the Chicago skyline is lit up primarily turquoise with purple accents for World Periodic Paralysis Day. The Chicago bean is in front of the skyline.

A big thank you to our lead sponsor for making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

Today we celebrate the inaugural World Periodic Paralysis Day! What are you doing to celebrate?Ways to get involved toda...
23/03/2025

Today we celebrate the inaugural World Periodic Paralysis Day!

What are you doing to celebrate?

Ways to get involved today:
- 1. Become an Ambassador: Take the lead in raising awareness about Periodic Paralysis! WPPD Ambassadors help educate their communities, share resources, and encourage others to join the movement.
- 2. WPPD Gear: Wear Your Shirt with Pride! Show your support with this year’s official WPPD t-shirts! Designed to inspire hope and unity, these shirts are perfect for the whole family. Order yours today and wear them leading up to and on March 23!
- 3. Participate in Activities: Join an exciting lineup of virtual activities hosted by WPPD and organizations worldwide. From educational sessions to fun community events, there’s something for everyone leading up to and on March 23.
- 4. Share Your Story: Your personal journey is a powerful way to educate others. Reach out to local media, write a blog post, or share your story on our website. Together, we can raise awareness and inspire hope.
- 5. Get Social: Help spread the facts about Periodic Paralysis! Use our downloadable social media graphics and post leading up to WPPD. Don’t forget to tag us and use to amplify the message.
- 6. Donate: Make a difference by supporting WPPD’s mission. Your gift furthers critical awareness, advocacy, and programming throughout the year.

A big thank you to our lead sponsor for making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

Yesterday,  went to her small neuro rehab center and found there were already posters up celebrating World Periodic Para...
22/03/2025

Yesterday, went to her small neuro rehab center and found there were already posters up celebrating World Periodic Paralysis Day! Thank you to all the medical professionals celebrating World Periodic Paralysis Day (March, 23rd) with us! World Periodic Paralysis Day unites the entire periodic paralysis community including people living with periodic paralysis, medical professionals devoting their lives to helping people with periodic paralysis, companies working hard to improve the quality of life of people living with periodic paralysis, caregivers, and many others! This day is for all of us! Together we are illuminating hope for a better future!

A big thank you to our lead sponsor for making this day possible and to the , , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

How can you get involved in World Periodic Paralysis Day? Become a World Periodic Paralysis Day Power Partner! YOU can i...
21/03/2025

How can you get involved in World Periodic Paralysis Day? Become a World Periodic Paralysis Day Power Partner! YOU can illuminate hope for people living periodic paralysis by sharing with your friends and family!

1. sign up as a power partner at www.worldperiodicparalysisday.com
2. check your email where you will receive a packet of shareable resources to use
3. print off this postcard
4. write a message that will illuminate hope for the periodic paralysis community
5. take a picture with your postcard or of your postcard near a local landmark
6. share your picture on Facebook and Instagram using and tagging and

A big thank you to our lead sponsor for making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

Image description: a printable postcard with the World Periodic Paralysis Day logo that can be filled out to raise awareness

Power up Chicago! This weekend to celebrate World Periodic Paralysis Day (March 23rd),  has listed WPPD as an event to i...
20/03/2025

Power up Chicago! This weekend to celebrate World Periodic Paralysis Day (March 23rd), has listed WPPD as an event to illuminate the city skyline for on March 21st, 22nd, and 23rd! Select buildings in the Chicago skyline will be illuminating for the inaugural World Periodic Paralysis Day! Get your family, friends and come see these beacons of hope lit up to raise awareness. A big thank you to Chicago for becoming a beacon of hope to raise awareness for people living with periodic paralysis.

Image description: the Chicago skyline

A big thank you to our lead sponsor for making this day possible and to the , , , , , and for coming together to change the world for people living with periodic paralysis. If you are an organization that would like to get involved, you can email info@periodicparalysis.org

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