Periodic Paralysis Association

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Periodic Paralysis Association

The PPA is on a mission to foster awareness and promote science-based information. https://periodicparalysis.org/donate/

29/08/2025

💙 “Community Awaits You”
From diagnosis to daily living, you are not alone. This conference brings together:
👥 Patients, caregivers, clinicians, leading experts, policymakers
🎓 Education, networking, and social events
🫂 Stories that heal and inspire
Whether it’s your first time or your fifth, this weekend is designed for YOU.
➡️ Be a part of it—register and let’s grow stronger together: https://periodicparalysis.org/conference-2025/logistics/hotel-travel/

21/08/2025

Do you want to learn more about the upcoming 2025 Periodic Paralysis Conference? Do you have questions? Join us for a Facebook Live with Periodic Paralysis Awareness on Saturday, August 23rd at 11am (EST)

Ralph Berthiaume, Founder of the Periodic Paralysis Support Network will lead a discussion with Cienna Ditri, President of the Periodic Paralysis Association (PPA), who will give updates and address questions about the Periodic Paralysis Conference October 4-5th at the Hilton Lake Buena Vista in Lake Buena Vista, Florida.

The 2025 Periodic Paralysis Conference is brought to the PP community by the Periodic Paralysis Association.

Please comment any questions below.

If you are unable to attend this live event, the event will it will be available for future viewing.

Be sure to check “going or interested” on the event page to get further updates!

Event page link⬇️
https://facebook.com/events/s/qa-discussion-on-the-periodic-/3268873029926335/

18/08/2025

Join Us at Periodic Paralysis Conference 2025
📍 Hilton Orlando Lake Buena Vista @ Walt Disney World
🗓 October 4–5, 2025
🌟 Ready to connect, learn, and advocate together? The Periodic Paralysis Association's annual conference is BACK—bringing our global community together for two unforgettable days of education and empowerment.
🎥 Can’t make it in person? Join us virtually from anywhere in the world! All sessions from the main ballroom will be recorded and shared with attendees.
➡️ Register today— https://periodicparalysis.org/conference-2025/ ! In-person or virtual, your presence matters.
*we highly recommend in person registration and can't wait to see you there!

14/08/2025

🧭 50 Days to Go!
🌐 Registration is still open! Whether you’re flying to Florida or joining from home, we’ve made it easy to participate your way.
💻 In-person or livestream + access to session recordings
📍 Hilton Orlando Lake Buena Vista
➡️ Click the link in our bio to register and choose your path!
*we highly recommend attending in person where you will meet medical experts, people living with periodic paralysis, and be surrounded by our ecosystem of support

14/08/2025

🧭 50 Days to Go!
🌐 Registration is still open! Whether you’re flying to Florida or joining from home, we’ve made it easy to participate your way.
💻 In-person or livestream + access to session recordings
📍 Hilton Orlando Lake Buena Vista
➡️ Click the link:https://periodicparalysis.org/conference-2025/ to register and choose your path!
*we highly recommend attending in person where you will meet medical experts, people living with periodic paralysis, and be surrounded by our ecosystem of support

08/08/2025

💙 "Who This Is For"
👥 Our community is vast—and so is this event.
Whether you’ve lived with Periodic Paralysis for years or you’re newly navigating your journey, this conference is designed with you in mind. It’s also a hub for caregivers, clinicians, researchers, and policymakers.
📣 Diverse voices, real stories
💡 Learn, connect, advocate
🥰 Social events that nurture support and friendship
➡️ Don’t miss your chance to join us—register now for the 2025 Periodic Paralysis Conference in Orlando, FL on October 4th & 5th: https://periodicparalysis.org/conference-2025/

04/08/2025

🎤 60 Days to Go!
✨ Global experts. Groundbreaking topics. Heartfelt connections. At , you’ll gain insights into research, treatment, and life with PP.
🎥 All ballroom sessions recorded for attendees!
➡️ Secure your spot—knowledge is power, and it starts with registration: https://periodicparalysis.org/conference-2025/

31/07/2025

Happy Disability Pride Month from the PPA!

🎉 July is Disability Pride Month—a time to celebrate identity, resilience, and the vibrant contributions of the disability community.

💙 At the Periodic Paralysis Association, we honor the strength, courage, and brilliance of every individual affected by Periodic Paralysis. Your voice matters. Your story inspires. And your pride deserves recognition—not just this month, but year-round.

📅 Join us October 4–5 in Orlando or online for the 2025 Periodic Paralysis Conference—a gathering built on empowerment, learning, and joy.

🏨 Hilton Orlando Lake Buena Vista @ Walt Disney World
🎥 In-person & livestream options available
🎟 All registered guests receive access to recorded sessions
✅ Register today: https://periodicparalysis.org/conference-2025/

➡️ Keep the pride alive—register today and carry this celebration forward into October and beyond!

26/07/2025

📅 70 Days to Go!

🌟 The countdown begins! In just 70 days, we’ll gather at Hilton Orlando Lake Buena Vista to connect, learn, and empower our amazing community. Whether you're joining in person or virtually, this year’s will be unforgettable.
🗓 Oct 4–5 | 🌍 In-person + Livestream
➡️ Register today and be part of the experience—your voice matters!

16/06/2025

Registration is officially open for the 2025 Periodic Paralysis Conference! Join us October 4th & 5th, 2025 in person at the Hilton Lake Buena Vista in sunny Lake Buena Vista, Florida or via our livestream for an incredible weekend of community, advocacy, learning, and innovation.

Topics to be covered:
-creating a roadmap to better quality of life with periodic paralysis
-diet
-anesthesia
-research updates
-periodic paralysis 101
-advocacy
-social support and mental health
-resources for living with periodic paralysis

Register today at: https://periodicparalysis.org/conference-2025/registration-2/

Image description: a turquoise graphic announcing the 2025 periodic paralysis conference.

27/03/2025

Drum roll please: the 2025 Conference will be held at in Orlando, Florida October 4th-5th, 2025! For now you can save the date, but official registration will be announced soon!

26/03/2025

The Inaugural World Periodic Paralysis Day might have only been a couple of days ago, but the Periodic Paralysis Association is already working on World Periodic Paralysis Day 2026!

This week members of the Board of Directors from the Periodic Paralysis Association have already met with 8 United States Congress and Senate offices to advocate for the periodic paralysis community and to have a resolution introduced making March 23rd, 2026 World Periodic Paralysis Day in the United States Senate and Congress! Alone we might be rare, but together we can make a world of difference for people living with periodic paralysis!

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