Periodic Paralysis Association

07/01/2026

The PPA is excited to share our first program of the new year is today: on January 7th, 2026 at 8pm ET we will virtually be holding a World Periodic Paralysis Day Advocacy Meeting. Join our President, Cienna ( Chronically Persevering) and James Romano, the PPA’s Legislative Advocate to learn how you can help light up landmarks near you and obtain proclamations for WPPD 2026! Mark your calendars, this is a meeting you won’t want to miss! Meeting link below, in comments, in bio, and on Facebook. See you soon!
When: January 7th at 8:00pm ET
Join the WPPD Advocacy Session: https://us02web.zoom.us/j/86871806558?pwd=RRv3MeLFKLbl1AdpIFAbLNI6McRznm.1
Meeting ID: 868 7180 6558
Passcode: 602304

Together let’s illuminate hope for periodic paralysis across the globe!

01/01/2026

Happy New Year! The PPA is excited to share our first program of the new year: on January 7th, 2026 at 8pm ET we will virtually be holding a World Periodic Paralysis Day Advocacy Meeting. Join our President, Cienna ( Chronically Persevering) and James Romano, the PPA’s Legislative Advocate to learn how you can help light up landmarks near you and obtain proclamations for WPPD 2026! Mark your calendars, this is a meeting you won’t want to miss! (meeting sign up & link coming soon)

03/12/2025

The Periodic Paralysis Association is grateful today and everyday for J. Raymond Construction Corp. and their dedication to support periodic paralysis awareness, science based information, advocacy and research.

This Giving Tuesday, we’re grateful to sponsor the Periodic Paralysis Association. Their mission is simple but powerful: awareness, science-based information, and advocacy for the PP community. Discover more or donate at periodicparalysis.org.

03/12/2025

Alone we are rare, together we are strong!

With your help we can bring strength and hope to people living with Periodic Paralysis (PP).
PP is a rare group of disorders that cause sudden episodes of muscle weakness or paralysis, yet research remains deeply underfunded.
We’re uniting with the & to raise $20,000 for critical research.
Your gift directly supports Dr. Cannon’s groundbreaking work at Cannon Lab, this could include advancing new treatments, supporting conference attendance, and future gene therapies.
Donate today and help move PP research forward: https://www.zeffy.com/en-US/donation-form/dr-cannons-research-in-periodic-paralysis

13/11/2025

🎥 Now Available: Living Stronger with Periodic Paraysis - Dr. William Harr CRNA DNP

https://youtu.be/GIR3u-NmhCQ?si=a5bIgZH2Ll6E6hZQ
h

The PPA is proud to present its first interdisciplinary panel, kicked off by Dr. Harr! Paralysis is an ext...

12/11/2025

🎥Now available: the 2025 Periodic Paralysis Conference Sessions!

We are thrilled to share the posting schedule for the recorded sessions from the 2025 Periodic Paralysis Conference. The first video went live yesterday on our YouTube channel: https://youtube.com/?si=f1Chx9IM8-QSFJU7

Posting schedule:

🦓NOV. 11TH - LIVING STRONGER WITH PERIODIC PARALYSIS (DR. HARR)

🦓NOV. 13TH - THE NUTRITION CONNECTION: FROM TRIGGERS TO TOOLS (ANITA DHARWADKAR RD, LDN)

🦓NOV. 18TH - BEYOND DIAGNOSIS LIVING WELL WITH PERIODIC PARALYSIS (DR. KNOLL)

🦓NOV. 20TH - PERMANENT MUSCLE WEAKNESS IN PERIODIC PARALYSIS (DR. SUETTERLIN)

🦓NOV. 25TH - CONSIDERATIONS AND CONTROVERSIES IN PERIODIC PARALYSIS (DR. CANNON)

*NO UPLOAD ON THANKSGIVING*

🦓DEC. 2ND - PERIODIC PARALYSIS RESEARCH UPDATES 2025 (DR. CANNON)

🦓DEC. 4TH - PROTOCOL TO POWER ANESTHESIA APPROACHES THAT CHANGE LIVES (DR. HARR)

🦓DEC. 9TH - ADVOCACY & PERIODIC PARALYSIS (JAMES ROMANO & DANE CHRISTSEN)

🦓DEC. 11TH - NAVIGATING THE EMERGENCY ROOM (CIENNA DITRI & MASON ALLEY)

🦓DEC. 16TH - WPPD POWERING UP THE FIGHT AGAINST PP (JAMES ROMANO & CIENNA DITRI)

🦓DEC. 18TH - ASK THE EXPERTS PANEL (DR. HARR & DR. CANNON)

🦓DEC. 23RD - CONFERENCE WRAP UP VIDEO

23/10/2025

Did you know that this week is Invisible Disabilities Week?

At the PPA we believe that connected, we are strong. Our disabilities may be invisible, but this week let’s come together to make them loud and visible to the world!

Invisible Disabilities® Week is Hosted by the Invisible Disabilities Association (IDA) and Founded by IDA in 2014.

03/10/2025

The countdown is on! Less than 24 hours remain until the 2025 Periodic Paralysis Conference! If you plan on attending virtually, please:
1. register to attend virtually for free at https://periodicparalysis.org/2025-periodic-paralysis-conference/
2. Download the Whova app and sign in
3. Get the party started! Introduce yourself with an icebreaker, make friends, ask questions, and build community

See you soon!

27/09/2025

We at the PPA are pleased to announce that the 2025 Periodic Paralysis Conference Whova app is live!

If you are attending our 2025 PPA conference in-person or virtually please download this app so you can get the full conference experience. You will be able to chat with other conference attendees, ask questions, and see valuable information here. Any questions fell free to ask us and we will do our best to answer them.

To view the conference, you have to register to attend virtually. You can do that for free at this link: https://periodicparalysis.org/2025-periodic-paralysis-conference/registration-2/

26/09/2025

✨Meet the Speakers for the 2025 Periodic Paralysis Conference✨

🎤 Anita Dharwadkar is a Registered Dietitian who brings both professional expertise and lived experience with chronic illness to her work. She is passionate about supporting individuals navigating complex health conditions, with a focus on empowerment, self-trust, and cultivating a safe, judgment-free space.

Anita has presented at numerous conferences and specializes in the intersection of chronic illness, nutrition, and body image. Her approach is person-centered, weight-inclusive, and guided by Health at Every Size® principles. She works with people of all ages and backgrounds, with particular dedication to those living with rare chronic illnesses.

Anita believes individuals hold their own wisdom and resilience, and she is honored to walk alongside them as they discover tools for healing and self-advocacy.

✏️Register today to hear Anita’s session From Triggers to Tools: The Nutrition Connection in Periodic Paralysis including advocating for yourself, reading labels, communicating dietary needs, and much more!

Late in-person registration and virtual registration: https://periodicparalysis.org/conference-2025/

12/09/2025

✨Announcing the 2025 Periodic Paralysis Conference Topics!!✨

Have you ever wanted to learn or dive deeper on:
❓what is periodic paralysis
🩺 interdisciplinary care for periodic paralysis
💪 permanent muscle weakness
🍽️ Nutrition
🧠 psychology
📢 advocacy
🎤 concerns & controversies in periodic paralysis
🚨 emergency care
🩻 anesthesia
🐕‍🦺 service dogs
🔬research updates from Dr. Cannon’s Lab

✏️Register today for late in-person attendance or virtual attendance to learn about all of these topics and more on October 4th and 5th at the 2025 Periodic Paralysis Conference located at the Hilton Lake Buena Vista in Lake Buena Vista, FL.

Registration link: https://periodicparalysis.org/2025-periodic-paralysis-conference/

See you soon! 🎉

Brought to you by the Periodic Paralysis Association in partnership with Xeris Pharmaceuticals

11/09/2025

✨Meet the Speakers for the 2025 Periodic Paralysis Conference✨

🎤Dr. Cannon received his M.D. in 1986 from Johns Hopkins and his Ph.D. in Biomedical Engineering in 1986 from Johns Hopkins.

Dr. Cannon is a recognized authority on channelopathies and neuromuscular disorders. His contributions to this and related fields include numerous articles, and book chapters, and a commitment to education, clinical practice, and research. Dr. Cannon serves on the Editorial Board of a number of professional journals including Neuron, Cell, Biophysical Journal, Journal of Physiology, Journal of General Physiology, and Journal of Neuroscience. Dr. Cannon’s lab at UCLA had been a leader and pioneer in periodic paralysis research since 1993.

Register today to hear Dr. Cannon share research updates from his lab, explore periodic paralysis controversies & considerations, and to ask him your questions!

Late in-person registration and virtual registration: https://periodicparalysis.org/conference-2025/