Dementia with Lewy Bodies DLB. Raising Awareness Hope and Research.

07/12/2025

🌸 Sometimes, a few simple words remind us why we show up every day.
And Susan’s message… well, it goes straight to the heart.

Her note carries the quiet strength of a caregiver’s journey and the deep relief of feeling supported.
At LBDRC, we walk beside families, one call, one resource, one moment of understanding at a time.

Thank you, Susan, for trusting us.
Your courage, and your husband’s, move us forward.

💜 If you ever need someone to talk to, our 365-day Helpline is here: 516-218-2026 or 833-LBD-LINE.

05/12/2025

Earlier this week the Parliamentary Friends of Dementia (PFOD) Roundtable at the Parliament of Tasmania brought together people living with dementia, family, carers, Dementia Advocates, and members of the Dementia-Friendly Tasmania Alliance to share their living experiences and explore practical ways MPs can make a difference for their communities by committing to a dementia-friendly Tasmania.

Facilitated by Dementia Australia CEO Professor Tanya Buchanan, PhD GAICD, the discussion will inform the inaugural Tasmanian Parliamentary Friends of Dementia Action Plan - joining NSW, SA and VIC in creating dementia-friendly communities across Australia.

A heartfelt thank you to our Dementia Advocates and Alliance members for their contributions:

Lil Mirtl
Sue Watts
Steve Wright
Graham McLean
Carolyn Emden
Jane Croswell

We acknowledge the support of the Parliamentary Friends of Dementia Co-Convenors the Hon. Bridget Archer MP Minister for Health, Mental Health and Wellbeing, Minister for Ageing, Minister for Aboriginal Affairs, Cecily Rosol MP Greens Spokesperson for Health and Mental Health and Greens Spokesperson for Community Services and Professor George Razay MP Member for Bass.

04/12/2025

28/11/2025

💜For caregivers and families affected by Lewy Body Dementia, these words capture something profound. We may not be able to change the illness or erase the pain, but we can offer love, presence, and understanding. Sometimes, the greatest gift is simply reminding someone they are not alone.

28/11/2025

Have you got your Christmas cards yet? our stocks are running low.
Support The Lewy Body Society's work by ordering our Christmas cards, exclusively designed by our very own founder and chair of the trustees of (we are very proud of her arty skills 🎨🖌️).
Each pack sold will help to raise awareness of Lewy body dementia and to fund research.
Order your pack of 10 £5.50 (incl P&P) here: http://www.lewybody.org/.../christmas-cards-pack-of-10-5.../

24/11/2025

22/11/2025

💜🕊️Today we honor the memory of Ted Hartley who passed away recently at the remarkable age of 100.🕯️

Ted was more than our board member, he was a caring mentor to our founder, Norma Loeb, and one of the key voices who encouraged her to create the Lewy Body Dementia Resource Center. His support helped shape the personal, heart-centered mission that defines our organization today.

A man of many lives who was a Navy fighter pilot, actor, Chairman of RKO Pictures, a Broadway producer and much more, Ted carried in his heart the legacy of his late wife, actress and philanthropist Dina Merrill, who passed from Lewy body dementia in 2017.

May his memory be a blessing. 💜