Dementia with Lewy Bodies DLB. Raising Awareness Hope and Research.

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Dementia with Lewy Bodies DLB. Raising Awareness Hope and Research. Dementia with Lewy bodies (DLB) is the second most common cause of Dementia, affecting approximately 130,000 individuals in the UK alone.

Dementia with Lewy Bodies is a common form of Dementia estimated to affect more than 100,000 people in the UK alone and 47.5 million people worldwide. This page has been created to raise hope and awareness about this heartbreaking and tragic disease. Kind wishes hope and strength to you all.

02/02/2026

February is Le***an, Gay, Bisexual, Transgender + History month. A dedicated month to celebrate, raise awareness and educate on how we can all help LGBTQ+ people feel safe, seen, and supported.

Some of the symptoms of dementia can have particular implications for LGBTQ+ people. For example, memory problems might make it harder for you to remember who you have told about your sexual orientation or gender identity.

Did you know Alzheimer’s Society have resources available for people who are living with or affected by dementia in the LGBTQ+ community? Click here for advice and support: http://spkl.io/6187AohbH

30/01/2026
30/01/2026

As starts its 20th anniversary year, we talked to the people that really know Lewy body dementia, the ones who live with it every day. Karen and...

29/01/2026
29/01/2026
28/01/2026

Please sign and share our petition which we will be taking to Westminster for the World Lewy Body Day. Your signature can make a monumental difference.

Despite affecting an estimated 100,000 people in the UK, a diagnosis of Lewy body dementia is often missed due to poor understanding and lack of awareness in healthcare professionals.

People with LBD face delays in diagnosis, don't receive the care they need, and their families don't get support. The knock-on effect is increased costs for the NHS.

Research is woefully underfunded compared to other dementias, hampering the development of effective treatments and potential cures.

We are calling on the UK Government to address these critical issues by improving professional training, increasing access to care, supporting families, and substantially investing in robust LBD research.

Please sign this petition today and join us in advocating for meaningful change for those impacted by LBD: https://change.org/p/help-people-with-lewy-body-dementia-get-treatment-and-support

28/01/2026

Our CEO Jacqui Cannon, with LBS supporter Anne Twist, ambassador Emma Cunniffe and our patron RobRinder in Parliament today to mark World Lewy Body Day.

Thank you for making our day so special!

28/01/2026

💜 One world. Many voices. One cause.
This WORLD Lewy Body Dementia Day, organizations across the globe are standing together to bring visibility to a disease that affects far too many families.

You can help bring awareness by sharing this post. It helps spread awareness, understanding, and compassion.

Small action. Real impact. 🌍✨

💜

28/01/2026

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