Dementia with Lewy Bodies DLB. Raising Awareness Hope and Research.

24/09/2025

24/09/2025

🌎 Reminder for our global caregiver community!
We’re starting a brand new International Support Group for Lewy Body Dementia caregivers.

👉 If you live outside the U.S. and haven’t reached out yet:
• Send us a DM, or email norma@lbdny.org
(Please include your country.)

✅ Everyone who signs up will receive the support group information, including date, time, and the Zoom link, directly by email.
Together, we’ll make sure caregivers around the world have a place to connect and feel supported. 💛

23/09/2025

Our Helpline is here for unpaid carers. We can provide specialist information on a range of topics, including…

◼️ benefits and financial support

◼️ how to get practical support

◼️ challenging decisions.

Are you looking for help? Get in touch by emailing advice@carersuk.org

23/09/2025

“I’m lucky that I have a good husband and kids who understand – they understand how close my brother and I are.”

Dementia Australia Advocate Bernie often reflects on the times she shared with her brother, Michael, who lives with down syndrome and is in the later stages of dementia.

“I’ve got hundreds of photos that I go through, and I remember all the happy times we’ve had,” Bernie said.

“I still get really excited and happy when I go to visit him. Even though he doesn’t know who I am anymore, I go through his photo book which I made of our footy trips, holidays and adventures. I tell him stories of the photos, even though he doesn’t remember; he’s still happy to listen to them.”

“And if I get a smile, that makes my day.”

If you’re planning a visit to someone who has dementia, there are a number of things you can do to help make the most of your time together:

➡️ Consider the timing
➡️ Keep things to a routine
➡️ Get to know the care staff
➡️ Start a memory book
➡️ Engage in activities such as involving music, take a pet, or help with personal grooming.

For more information on planning a visit, please see our website https://www.dementia.org.au/living-dementia/staying-connected/visiting-someone-dementia

For personalised carer support and information please contact the National Dementia Helpline anytime on 1800 100 500 or visit https://www.dementia.org.au/.../national-dementia-helpline for live chat and email support.

23/09/2025

Have you - or someone close to you - been diagnosed with Lewy body dementia?

We have put together a FREE information pack to answer some of the questions you might have and let you know we are with you every step of the way.

To order the pack: www.lewybody.org/shop

21/09/2025

21/09/2025

Samuel West recently shared a poignant update on his mother, Prunella Scales, who has been living with vascular dementia since 2014. Following the death of her husband, Timothy West, at the age of 90, Prunella, now 92, has shown remarkable resilience. Samuel reflected on her enduring love for life, sharing that after a recent cruise, she expressed, "I don’t always know where I’m going, but I enjoy getting there," which he described as inspiring. Prunella, known for her role in *Fawlty Towers*, continues to work, recently recording voiceovers for a production at the Tabard Studio Theatre

21/09/2025

Rush neurologist Jori Fleisher, MD, provides an overview of Lewy Body Dementia.

21/09/2025

20/09/2025

❤️ "After my wife passed, I was stuck in the house a lot. I moved house, into the country, next door to my son - but it's not good enough just to sit watching TV, so I decided to travel. Occupy yourself. Dealing with the dementia group has been good for me. It's something that I enjoy."

19/09/2025

🎬Facing The Wind is a love story about people with Lewy body dementia (LBD), the spouses who care for them, and the remarkable community where they find sustenance and support.

Join us in The Bronx for this exclusive screening. Q&A following with the film's Director, Deirdre Fishel, and the Founder of the Lewy Body Dementia Resource Center, Norma Loeb.

📍 Location: North Bronx Seventh Day Adventist Church, 3743 Bronxwood Ave, Bronx, NY 10469

📅 Date & Time: 5:00Pm to 6:30PM

17/09/2025

Our new Winter Catalogue is out now with a fabulous range of Christmas cards, essentials and gifts for all the family. It also includes a fantastic range of helpful gifts for people living with dementia.

You can download our new catalogue here: http://spkl.io/6187APJBl

or order via by phone on 0300 303 5933.

100% of our profits goes back to Alzheimer's Society to support our work.