Dementia with Lewy Bodies DLB. Raising Awareness Hope and Research.

30/03/2026

If you agree that there should be:

🔵 The right for all people living with dementia to be treated with dignity and respect
🔵 The right to early and accurate diagnosis
🔵 The right for Lewy body dementia to be recognised as a distinct form of dementia with unique symptoms and challenges different from Alzheimer’s
🔵 The right not to be rejected from, or denied, care home admittance on account of a Lewy body dementia diagnosis

Please sign our Lewy List petition: www.change.org/p/sign-the-lewy-list

30/03/2026

🎬 This is how awareness spreads… one voice at a time.

FACING THE WIND is coming to *PBS* this June!!. However, local stations choose when it airs.

👉 That means YOU can make a difference.

📣 Call or email your local PBS station
Ask: “When will you air FACING THE WIND?”

⏳ They plan ahead. A simple request today can help bring this story to your community.

👉 Here’s how you can help:

Find your local PBS station:
https://www.aptonline.org/pages/viewers/Index-Stations+Near+You

Contact your station by phone or email and ask for the programming department

Tell them you would like to see Facing the Wind aired, and ask:
“When will you air FACING THE WIND? We are hoping it will be soon as it's an important film."

Stations plan 2–3 months in advance—this is the perfect time to request June or July programming.

Programmers already have information about the film, and local viewer requests carry real weight

Together, we bring visibility to Lewy body dementia—and support to those living it every day.

📩 If you get a response, share it with us at norma@lbdny.org!

30/03/2026

'What do I say to someone with dementia in residential care who wants to go home?'

It's not uncommon for a person with dementia to say they want to go home. This can be caused by time shifting or general confusion, which can be distressing for everyone.

It can be difficult to know what to say or how to handle this situation to help minimise the person’s distress as much as possible.

Here are five things to remember when someone with dementia in care is asking to go home:

1. Avoid arguing about whether they are already ‘home'. When a person with dementia asks to go home it often refers to the sense of ‘home’ rather than the place itself.

2. Reassure them of their safety. They could be living somewhere different from where they have lived before and need to know they are cared for.

3. Establish whether or not they are feeling unhappy or lonely. Sometimes a person with dementia may want to ‘go home’ because they feel anxious or unhappy so establishing their mood can help understand more.

4. Try diverting the conversation. Having a distraction like a book or photo, can help ease person’s feelings of anxiety by giving them a chance to reminisce.

5. Keep a log of when they are asking to go home. For example, is it later in the day and possibly due to sundowning? Is it near meal times or when the environment is noisier than usual?

Find out more here: http://spkl.io/6181ALVPl

10/03/2026

We thought Lewy Body Society knitters would like to know that earlier in the year we donated scarves from our "Scarf for Lewy” event to The Brick for their Warm Up Wigan appeal.

Proud to support this wonderful campaign 💙

27/02/2026

27/02/2026

27/02/2026

Celebrating 34 years of recognising Inspiring Women As Judging commences for the 2026 Inspiring Women Awards, we will continue to find those women who deserve a platform from which to share their achievements. Once the Finalists have been informed, we will be posting the short list here. Then twice

26/02/2026

26/02/2026

25/02/2026