Multiple Sclerosis: Information and Conversation

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Multiple Sclerosis: Information and Conversation Sharing tips, resources, and stories. Let's change the MS conversation with authentic information! Why I serve the MS Community

I was diagnosed with MS in 2012.

I want to help make a difference in the lives of people who live with MS. Today, there is no cure for multiple sclerosis, and with a diagnosis occurring most frequently between the ages of 20 and 50, many individuals face a lifetime filled with unpredictability. I believe together we can and will find a cure and create a world free of MS.

06/06/2025

Here’s Part One of RealTalk MS coverage from the Consortium of Multiple Sclerosis Centers (CMSC) annual meeting last week in Phoenix, AZ.

You’ll hear Dr. Kathy Zackowski, the National MS Society's Associate Vice President of Research, share her overview of the sessions and presentations that particularly stood out to her.

Next, you will hear from Dr. Stephen Krieger, who led a panel of experts discussing why the current terms used to describe MS (relapsing-remitting, secondary progressive, and primary progressive) are no longer adequate. He also addressed the question, "If MS is one disease, what does that mean for clinical conversations?"

Don’t miss it! Listen now to Episode 405!

15/04/2025

Online Survey: Exercise Needs and Preferences of Older Adults with MS

The Exercise, Aging, and Functional Ability Lab at the University of Illinois Urbana-Champaign is seeking adults aged 55 and older with multiple sclerosis (MS) to complete an online survey. This research aims to explore the exercise needs and preferences of older adults with MS in a home-based setting.

The survey takes approximately 10–15 minutes to complete and includes questions about overall health, MS-specific information, physical activity history, and factors that may facilitate or hinder physical activity. It also covers topics such as exercise safety, beliefs about home-based exercise, exercise preferences, social support, and the square-stepping exercise program.

All responses are anonymous, and the survey can be accessed below. If you have any questions, please email esebast2@illinois.edu

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

As a friendly reminder, online ticket sales to attend the MSAA Women of Action Atlanta Luncheon and Fashion Show close t...
08/04/2025

As a friendly reminder, online ticket sales to attend the MSAA Women of Action Atlanta Luncheon and Fashion Show close this Thursday, April 10th!

Can't make the event? Please consider a donation! The donation option will remain open through the event.

Thanks for your support of the Multiple Sclerosis Association of America's mission of Improving Lives Today for those affected by MS.

The Multiple Sclerosis Association of America invites you to attend our inaugural Women of Action Luncheon and Fashion Show - Atlanta on Wednesday, April 16 at the Cherokee Town Club; The Women of Action Luncheon and Fashion Show event offers a unique and tar...

MS Trial Alert: Remote Study Tests Whether Online Program Can Reduce Fatigue in 2000 People with MSInvestigators in the ...
03/04/2025

MS Trial Alert: Remote Study Tests Whether Online Program Can Reduce Fatigue in 2000 People with MS

Investigators in the United States are recruiting 2,000 people with multiple sclerosis for a study determining whether an online program can reduce fatigue by improving self-management. The study is sponsored by Accelerated Cure and the Department of Defense MS Research Program. This study also is known as the Confirmatory Trial for Alleviating Fatigue in Multiple Sclerosis (CAFE-MS).

The National MS Society is the leading resource for MS research, education, and support. See how we drive progress to change the world for people affected by MS.

Are you looking for the perfect opportunity to experience an inspiring social event while improving the lives of those i...
05/03/2025

Are you looking for the perfect opportunity to experience an inspiring social event while improving the lives of those impacted by MS in our community?

MSAA invites you to attend our Women of Action Luncheon and Fashion Show on Wednesday, April 16th at the Cherokee Town Club in Atlanta!

In addition to our amazing models from the MS community, we are thrilled to welcome two special guests and friends of MSAA: Dr. Mitzi Joi Williams-Brown and Michelle Taylor Willis

Learn more by visiting: https://engage.mymsaa.org/women-of-action/e624599

Research Survey Alert: Optimizing Digital Tools for Monitoring MS SymptomsThe PROMS Initiative is inviting people with M...
03/03/2025

Research Survey Alert: Optimizing Digital Tools for Monitoring MS Symptoms

The PROMS Initiative is inviting people with MS aged 18 or older to complete a survey that aims to understand the views of people with MS about using digital tools (websites, apps, smartwatches, etc.) to monitor MS symptoms.

The National MS Society is the leading resource for MS research, education, and support. See how we drive progress to change the world for people affected by MS.

For more than a decade after her multiple sclerosis (MS) diagnosis, Kristine Werner Ozug has advocated on behalf of the ...
10/02/2025

For more than a decade after her multiple sclerosis (MS) diagnosis, Kristine Werner Ozug has advocated on behalf of the MS community.

Click below to learn more about Kristine's story.

Kristine Werner Ozug, 46, is a powerful advocate for people with multiple sclerosis (MS). She participates in legislative advocacy and clinical research and educates the public about this autoimmune disease that affects nearly 1 million people in the United States alone. It’s an impressive body of...

Clinical Trial: Home-Based Exercise Program for African Americans with MS (TEAAMS)The goal of the TEAAMS study is to exa...
10/02/2025

Clinical Trial: Home-Based Exercise Program for African Americans with MS (TEAAMS)

The goal of the TEAAMS study is to examine whether a home-based exercise training program can provide improvements in walking dysfunction, symptoms, and quality of life among Black and African Americans with MS who live in the Southern US.

Click below to learn more and register!

The National MS Society is the leading resource for MS research, education, and support. See how we drive progress to change the world for people affected by MS.

Research Participation Opportunity!Online Survey: Physical Activity and AnxietyResearchers are committed to finding solu...
21/01/2025

Research Participation Opportunity!
Online Survey: Physical Activity and Anxiety
Researchers are committed to finding solutions for everyone affected by MS. Without participants—like you—in research studies, MS research would come to a standstill.

Study Sponsor: University of Illinois Chicago

Qualifications for Participation: You may qualify if you are a person living with MS, 18 years or older, currently residing in the US, and can walk with or without a cane.

Location of Study: Nationwide, online

Study Objective: Researchers at the Exercise Neuroscience Research Laboratory at the University of Illinois Chicago are inviting you to participate in a remote survey study examining the factors that impact physical activity in persons with MS who experience elevated anxiety symptoms.

The National MS Society is the leading resource for MS research, education, and support. See how we drive progress to change the world for people affected by MS.

Clinical Trial: Cognitive Behavioral Therapy for InsomniaThe purpose of this study is to learn if cognitive behavioral t...
03/09/2024

Clinical Trial: Cognitive Behavioral Therapy for Insomnia

The purpose of this study is to learn if cognitive behavioral therapy for insomnia will improve sleep quality, fatigue, and quality of life in individuals with multiple sclerosis with symptoms of insomnia. Eligible individuals will be randomly assigned to one-on-one therapy or a sleep and lifestyle education program, both provided via Zoom.

The National MS Society is the leading resource for MS research, education, and support. See how we drive progress to change the world for people affected by MS.

23/07/2024

Don't miss out on the chance to join Hannah Garrison this Monday at 8 pm EST for an exciting creative adventure!

Learn how to create more elaborate doodles and say goodbye to the days of thinking, "I can't draw a stick figure!"

To reserve your spot and learn about the necessary materials, visit msfocus.us/MSArt0722

23/07/2024

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Our Story

Why I have joined the MS Leadership Class I am part of the MS Leadership Class 2013 because I want to make a difference in the lives of people who have been diagnosed. I realized I want to do everything I can to prevent more people from learning what it means to live with this disease. Today, there is no cure for multiple sclerosis, and with a diagnosis occurring most frequently between the ages of 20 and 50, many individuals face a lifetime filled with unpredictability. I believe together we can and will find a cure and create a world free of MS. Why You Should Sponsor Me The National Multiple Sclerosis Society will use funds collected from the MS Leadership Class to drive research that addresses the challenges of everyone affected by MS and one day find a cure for this disease.