Arlú's Journey to see: A Story of Hope, Strength, and Miracles

10/09/2025

Hydrocephalus is the abnormal buildup of cerebrospinal fluid (CSF) in the brain, causing pressure on brain tissue and potentially leading to damage or death. It can be present at birth (congenital) or develop later in life (acquired) due to causes like tumors, infections, stroke, or head trauma. Symptoms vary by age but include an enlarged head in infants, headaches, vision problems, balance issues, and cognitive decline in older children and adults. Treatment often involves surgery to implant a shunt to drain the excess fluid.

Treatment
Brain surgery:
The primary treatment involves a surgical procedure to divert the excess CSF.

Shunt placement:
A medical device called a shunt is permanently implanted to drain the fluid from the brain.

Lifelong management:
Shunts may require revisions or replacements, making hydrocephalus a condition that often requires ongoing monitoring and care.

06/09/2025

https://www.facebook.com/share/16oHGV2oy4/?mibextid=wwXIfr

Neurosurgery is currently the only available treatment for Hydrocephalus. However, it is important to note that even with surgery, there is still the possibility of failure, which may require multiple revisions. In fact, a shunt surgery is performed every 15 minutes in the US alone, with approximately 40,000 Hydrocephalus operations taking place annually. These statistics highlight the fact that Hydrocephalus is the leading cause of brain surgery and underscore the importance of continued research to find more effective treatments.

22/07/2025

Arlú’s vision was effected due to me having German measles during early stages of my pregnancy that I was not even aware of He had to get a cardio scan done to make sure his heart is in good condition and was not also effected as we already know his optic nerves was effected and we went back to the Pediater that saw him at 3 months old when he had no vision. This was such a memorable day as she has walked this journey with us and could not believe Arlú’s vision has improved so much since the treatment in Berlin

03/04/2025

There has been so many amazing developments with Arlú’s sight,motor skills and language development since we came back from Berlin. I love it when people know his story and journey and looks at me all surprised like this can’t be the boy that they said will never see… the boy with Dandy walker Malformation that will struggle to sit and crawl? When seeing him do what he does in the video it makes me concerned because clearly he has poor vision, but then I remind myself of the above pointers at 3 months they said he won’t be able to see and my heart calms down… cause I know we are doing all we can with the cards that has been dealt to us and I’m grateful for what there is rather then what there is not. God is good and he has worked so many miracles for this baby boy of ours

15/03/2025

Test results on the first day of treatment and test results before we traveled back 🙌🏻👏🏻

10/03/2025

Tune into lekkerfm today @ 15:40pm as I will be talking about Arlú and his treatment as well as the Golf day

Live stream

LEKKER FM 98.3 is jou Nr. 1 Afrikaanse Radiostasie in Pretoria en omliggende gebiede in Suid Afrika, so ook aanlyn, wêreldwyd. Met so baie Suid Afrikaners wat uit ons pragtige land geïmmigreer het, is daar n groot aanvraag wêreldwyd vir LEKKER Afrikaanse musiek, LEKKER Afrikaanse inhoud en sommer...

02/03/2025

12/02/2025

Day 3 - 14:00 - back for our second session and ofcourse smiling into it this is the 4th session we have had.

12/02/2025

Day 3

Arlú started off his morning with Mango his favourite so he knew he was going to have a great day 😜

On the schedule for today he had 2 x treatments today one at 10:00am and a second session at 14:00

They alternate between blue and red wires and sometimes one blue one red wire simultaneously

The first session was a lot more intense with higher electric frequencies

All session last for 45 minutes per session and he is a champ handling the treatment so well