28/02/2026
Today, on Rare Disease Awareness Day, we are taking a closer look at what “rare” really means.
A disease is considered “rare” when it affects fewer than 1 in 2,000 people. Yet, with more than 7,000-8,000 identified rare diseases, they collectively impact over 300 million people worldwide – a reality we can’t overlook.🌍
And behind every number is a person. A family. A story.
An experience shaped by resilience, uncertainty, hope, and strength.
Over the years, we’ve supported thousands of people navigating rare diseases, including more than 7,000 individuals affected by Duchenne muscular dystrophy.
These aren’t just statistics for us. They represent conversations, questions, and courage.
For us at myTomorrows, understanding what it means to live with a rare disease is recognizing that no two journeys are the same. Yet together, as a community, we can drive progress forward.
For us, rare means unique - but never alone. ♥️
This week, our team came together to show our support in a special way. Each of us dipped our hands into different colors of paint and added our handprint to a canvas.
This serves as a reminder that:
🎨 Every experience is different
💙 Every story matters
🤝 Progress happens when we move forward together
📸 Below are a few snapshots of the handprints we left behind: our way of expressing our long-term commitment to raising awareness, supporting advances in care, and working toward a more equitable future for the rare disease community.
At myTomorrows, we understand that every person’s experience with a rare disease is unique. That’s why our Patient Navigators offer personalized support and clear, practical information to people and families exploring clinical trial opportunities.
Because every journey deserves to be seen, supported, and understood.