
10/07/2025
For those of us who know up close, it’s woven into EVERYTHING…making plans, the pace of things, how present we can be. Add in and undiagnosed conditions — which affect nearly 1 in 7 U.S. households (that's close to 20 million) — and the impact is even bigger.
Today happens to be — a reminder to show up for those living with ongoing conditions and the ones caring for them. Maybe that’s you, someone you know, or both (because, YEP, sometimes you're giving and getting care at the same time). All of it can be intense. Get your score. Pass it on. https://archangelscii.me/4kCMMWh
By Susannah Fox Introduction People living with rare diseases and their families are often at the forefront of technology, science, and health policy advancements: Rare disease advocates were instrumental in passing the 1983 Orphan Drug Act, the world’s first law incentivizing drug development for...