FCS Focus

FCS Focus Familial chylomicronemia syndrome (FCS) is a rare, life-threatening disease. We appreciate your interest in our content and updates. b. c. d. e. f. g.

Learn about FCS, find resources to manage the condition, and meet others living with FCS. IONIS’S SOCIAL COMMUNITY GUIDELINES

Welcome to Ionis Pharmaceuticals (Ionis) official social media channels. Ionis utilizes social media to communicate transparently and promptly with our customers, patients and caregivers using our products, healthcare professionals, and other stakeholders. Our social media channels are governed by these Social Community Guidelines, in addition to the Terms of Service / User Agreements and legal notices of respective social media platforms (e.g., Facebook, Instagram, YouTube, LinkedIn, and X, formerly known as Twitter). When engaging with Ionis’ social media channels, please adhere to the following guidelines:

1. Content Engagement: While you can engage with our content through actions such as ‘liking’ or ‘sharing’, please note that posting content, including comments, is not permitted on our social media channels.

2. Prohibited Content: Do not share comments containing:
a. Discussion of any products, prescribing information, or treatments. Inappropriate comments about our competitors. Incorrect, false, misleading, confidential, or non-public content. Communications that may embarrass, harass, offend others, are defamatory, or invade privacy. Sexually offensive material or comments, or content disparaging others based on race, sex, color, religion, age, sexual orientations, gender identity, or disability. Advertising or promotion of products or services. Solicitation of any product and/or service is strictly prohibited. Content that infringes on others’ copyright or trademark.

3. Moderation: We reserve the right to block any user who violates these guidelines.

4. Reporting Adverse Events: Do not report adverse events here. If you, or someone you know, are experiencing an adverse event, please report such events directly to Ionis Drug Safety within 24 hours of the event, or as soon as possible. Email drugsafety@ionisph.com or IonisSafety@ppdi.com. or call 1-800-491-2664.

5. Limitations of Online Communication: Due to industry regulations, there may be topics we cannot discuss online. In such cases, we will provide alternative means of communication.

6. Disclaimer: Content not posted by us does not necessarily reflect our views or accuracy. We do not endorse such content, and its reliability is not guaranteed.

7. Medical Advice: Our posts are informational and not substitutes for professional medical advice from a qualified healthcare professional (HCP). Always consult your physician for medical questions.

8. Minors: If you are a minor (under the age of 18), please obtain permission from a parent before engaging with or sharing our content. Effective as of July 1, 2024

Thank you for respecting these guidelines and helping us maintain a constructive and compliant social media environment. Ionis Pharmaceuticals

You know your body best—so speak up for the care you deserve. Download “Your health, your voice, your choice,” a free gu...
09/09/2025

You know your body best—so speak up for the care you deserve. Download “Your health, your voice, your choice,” a free guide designed with real feedback from the FCS community. This guide can help you learn how to better advocate for yourself and push for real answers. Subscribe and get the guide at https://bit.ly/4nrs4ur. Because self-advocacy isn’t optional. It’s essential.

You have a good amount of experience living with FCS. You’ve put in the work. You know what foods fuel your body, and yo...
29/08/2025

You have a good amount of experience living with FCS. You’ve put in the work. You know what foods fuel your body, and you’ve found a nutrition plan that works for you. 💪🏽 That’s something to celebrate! But even when things are going well, it’s always good to have some nutrition hacks at the ready. Find FCS-friendly recipes and ways to stay on track at KnowYourTGs.com.

If you’ve been diagnosed with familial chylomicronemia syndrome (FCS) and it’s been a while since you’ve seen a lipid sp...
15/08/2025

If you’ve been diagnosed with familial chylomicronemia syndrome (FCS) and it’s been a while since you’ve seen a lipid specialist, now might be the right time to check in. 👨‍⚕️❤️ Even if you’ve felt stuck in the past, things are changing—so it’s worth having the conversation. Your health is worth it. 🧬🩸👩‍⚕️ Not sure how to find a lipid specialist? Ask your doctor for a referral or visit https://www.learnyourlipids.com/find-a-clinician/

📉 Mysteriously high triglycerides? Chronic stomach pain? ER visits with no clear answers? Download our free pocket guide...
11/08/2025

📉 Mysteriously high triglycerides? Chronic stomach pain? ER visits with no clear answers? Download our free pocket guide “Lipid specialists and FCS,” created with real feedback and suggestions from the familial chylomicronemia syndrome (FCS) community. You will learn how a certified lipid specialist can: ✔ Help you get an accurate diagnosis. ✔ Explain your triglyceride levels. ✔ Help you manage symptoms. 👉Go to https://bit.ly/41trIL6 and get the guide now. It could be the first step to the answers you’ve been searching for.

If you have familial chylomicronemia syndrome (FCS), know that eating FCS-friendly foods doesn’t have to mean feeling re...
08/08/2025

If you have familial chylomicronemia syndrome (FCS), know that eating FCS-friendly foods doesn’t have to mean feeling restricted. It’s about finding healthy meals that you truly enjoy. There are more options than you think! 🍎🍏 If you’re feeling stuck in a food rut or just need some inspiration, check out the FCS nutrition fact sheets on KnowYourTGs at https://bit.ly/4fzhoaq

Living with familial chylomicronemia syndrome (FCS)? Your voice matters. 🗣️ Your experience can inspire others who are n...
28/07/2025

Living with familial chylomicronemia syndrome (FCS)? Your voice matters. 🗣️ Your experience can inspire others who are newly diagnosed. Connect with the community of FCS patients. 📢 You can make a big difference in the lives of others. https://www.livingwithfcs.org

Do you have familial chylomicronemia syndrome (FCS)? 🤔 You might know someone else who does too, but isn't on social med...
10/07/2025

Do you have familial chylomicronemia syndrome (FCS)? 🤔 You might know someone else who does too, but isn't on social media or actively engaged with support communities. 📱 Encourage them to connect! Following FCS Focus on Facebook and KnowYourTGs on Instagram can provide helpful information, supportive connections, and practical tips for managing life with FCS. 🌐💬 Your encouragement could make a real difference!

Someone out there is where you were before—searching for answers, wondering what’s next. 🌍 🤝 You can be the person who h...
27/06/2025

Someone out there is where you were before—searching for answers, wondering what’s next. 🌍 🤝 You can be the person who helps them find their way. Whether it’s sharing tips, offering encouragement, or simply listening, your voice can make a real difference. Join the familial chylomicronemia syndrome (FCS) community and help others take control of their health. https://www.livingwithfcs.org/

If you’ve been managing familial chylomicronemia syndrome (FCS) for years, you know what works for you. But when was the...
20/06/2025

If you’ve been managing familial chylomicronemia syndrome (FCS) for years, you know what works for you. But when was the last time you checked in with your lipid specialist? Even if you have your diet dialed-in, new options are emerging in the management of FCS. A quick visit with your specialist might provide some new perspectives to help you stay on track. 👩‍⚕️🩺💕 Your health is always worth the check-in. Consider scheduling an appointment today.

If you have familial chylomicronemia syndrome (FCS) and are having difficulty sticking to a healthy nutrition plan, you’...
06/06/2025

If you have familial chylomicronemia syndrome (FCS) and are having difficulty sticking to a healthy nutrition plan, you’re not alone. 🥗🍎🥒 Following an FCS-friendly diet may help you feel your best, and it’s never too late to start again. 🍽️ One meal, one choice, one habit at a time—you can do this. If you need help, there’s an entire community to support you. 🤝🌐💙 https://www.livingwithfcs.org/

🧬 Diagnosed with familial chylomicronemia syndrome (FCS)? 🧬 Learning more about your condition is the first step toward ...
30/05/2025

🧬 Diagnosed with familial chylomicronemia syndrome (FCS)? 🧬 Learning more about your condition is the first step toward taking control of your health and wellness. 🖥️ The KnowYourTGs website has many resources to help you understand FCS. Learn more at https://knowyourtgs.com

❤️ Just diagnosed with familial chylomicronemia syndrome (FCS)? ❤️ Having a smart healthcare team is important, but do y...
23/05/2025

❤️ Just diagnosed with familial chylomicronemia syndrome (FCS)? ❤️ Having a smart healthcare team is important, but do you have the right specialist? 🩸🩺👨‍⚕️👩‍⚕️ Lipid specialists are experts in managing conditions like FCS and can help you understand your options. Not sure where to start? Ask your doctor for a referral or visit https://www.learnyourlipids.com/find-a-clinician/

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