FCS Focus

FCS Focus Familial chylomicronemia syndrome (FCS) is a rare, life-threatening disease. We appreciate your interest in our content and updates. b. c. d. e. f. g.

Learn about FCS, find resources to manage the condition, and meet others living with FCS. IONIS’S SOCIAL COMMUNITY GUIDELINES

Welcome to Ionis Pharmaceuticals (Ionis) official social media channels. Ionis utilizes social media to communicate transparently and promptly with our customers, patients and caregivers using our products, healthcare professionals, and other stakeholders. Our social media channels are governed by these Social Community Guidelines, in addition to the Terms of Service / User Agreements and legal notices of respective social media platforms (e.g., Facebook, Instagram, YouTube, LinkedIn, and X, formerly known as Twitter). When engaging with Ionis’ social media channels, please adhere to the following guidelines:

1. Content Engagement: While you can engage with our content through actions such as ‘liking’ or ‘sharing’, please note that posting content, including comments, is not permitted on our social media channels.

2. Prohibited Content: Do not share comments containing:
a. Discussion of any products, prescribing information, or treatments. Inappropriate comments about our competitors. Incorrect, false, misleading, confidential, or non-public content. Communications that may embarrass, harass, offend others, are defamatory, or invade privacy. Sexually offensive material or comments, or content disparaging others based on race, sex, color, religion, age, sexual orientations, gender identity, or disability. Advertising or promotion of products or services. Solicitation of any product and/or service is strictly prohibited. Content that infringes on others’ copyright or trademark.

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4. Reporting Adverse Events: Do not report adverse events here. If you, or someone you know, are experiencing an adverse event, please report such events directly to Ionis Drug Safety within 24 hours of the event, or as soon as possible. Email drugsafety@ionisph.com or IonisSafety@ppdi.com. or call 1-800-491-2664.

5. Limitations of Online Communication: Due to industry regulations, there may be topics we cannot discuss online. In such cases, we will provide alternative means of communication.

6. Disclaimer: Content not posted by us does not necessarily reflect our views or accuracy. We do not endorse such content, and its reliability is not guaranteed.

7. Medical Advice: Our posts are informational and not substitutes for professional medical advice from a qualified healthcare professional (HCP). Always consult your physician for medical questions.

8. Minors: If you are a minor (under the age of 18), please obtain permission from a parent before engaging with or sharing our content. Effective as of July 1, 2024

Thank you for respecting these guidelines and helping us maintain a constructive and compliant social media environment. Ionis Pharmaceuticals

Triglyceride (TG) levels above 500 mg/dL are considered severe hypertriglyceridemia (HTG) and can raise your risk of pan...
30/12/2025

Triglyceride (TG) levels above 500 mg/dL are considered severe hypertriglyceridemia (HTG) and can raise your risk of pancreatitis and cause other serious health issues. If your TGs are consistently above 880 mg/dL, it could point to a rare condition called familial chylomicronemia syndrome (FCS). Take the first step. 👉https://bit.ly/49hqsxE

18/12/2025

⏱️ Familial chylomicronemia syndrome (FCS) in 10 seconds: From hidden symptoms to a clear diagnosis—see how FCS unfolds. Could this be your story? Learn what to watch for. 👉knowyourtgs.com

11/12/2025

Struggling with very high triglycerides and other unexplained symptoms? It could be familial chylomicronemia syndrome (FCS). This short video could change how you think about FCS. Learn more at 👉knowyourtgs.com.

If you still haven't gotten an answer about your symptoms, get an expert opinion! Especially when pancreatitis keeps com...
04/12/2025

If you still haven't gotten an answer about your symptoms, get an expert opinion! Especially when pancreatitis keeps coming back. Find a lipid specialist to help. 👉learnyourlipids.com/find-a-clinician

Still searching for answers? If you've experienced recurring episodes of pancreatitis, extremely high triglycerides, or ...
03/12/2025

Still searching for answers? If you've experienced recurring episodes of pancreatitis, extremely high triglycerides, or unexplained abdominal pain—it could be more than your diet or lifestyle. Familial chylomicronemia syndrome (FCS) is rare, but real. 👉 Learn more at https://bit.ly/4iBpd0I.

25/11/2025

Ever wonder what happens inside your body when you eat fat? For people living with familial chylomicronemia syndrome (FCS), it’s a very different story—and could be life-threatening. Here’s why those symptoms might not just be random. Learn what this may mean. 👉https://bit.ly/48s29xU

💡 On average, a person with FCS will see 5 physicians before getting a diagnosis. Why? Symptoms overlap with other condi...
21/11/2025

💡 On average, a person with FCS will see 5 physicians before getting a diagnosis. Why? Symptoms overlap with other conditions. Bloodwork can be misleading. But knowledge helps. Ask your doctor or visit a lipid specialist. 👉https://bit.ly/3X7cdpJ

Life with familial chylomicronemia syndrome (FCS) can feel like waiting for the next acute pancreatitis attack. But it d...
20/11/2025

Life with familial chylomicronemia syndrome (FCS) can feel like waiting for the next acute pancreatitis attack. But it doesn't have to be this way. Get the support you need. 👉https://bit.ly/48dTXjB

If you’re experiencing repeated pancreatitis attacks caused by high triglyceride levels, you could be living with famili...
18/11/2025

If you’re experiencing repeated pancreatitis attacks caused by high triglyceride levels, you could be living with familial chylomicronemia syndrome (FCS)—a rare, often-misdiagnosed condition. Download the free “ER prep guide” to learn how to prepare and advocate for yourself during a crisis. 👉 Subscribe now at https://bit.ly/49loHBn.

17/11/2025

🎞️ Busting myths about familial chylomicronemia syndrome:
“You just need to lose weight.” ❌
“You just need to cut back on alcohol.” ❌
“You just need to change your diet.” ❌
Let’s clear the myths. Watch & learn 👉 knowyourtgs.com.

📊 Familial chylomicronemia syndrome (FCS) is not just elevated triglycerides (TGs). This visual breaks down key signs. D...
13/11/2025

📊 Familial chylomicronemia syndrome (FCS) is not just elevated triglycerides (TGs). This visual breaks down key signs. Do these look familiar? Talk to a lipid specialist. Learn more at 👉knowyourtgs.com.

💡 PRO TIP: Track your symptoms! Fatigue, extremely high triglyceride levels, gastrointestinal distress, and recurrent st...
12/11/2025

💡 PRO TIP: Track your symptoms! Fatigue, extremely high triglyceride levels, gastrointestinal distress, and recurrent stomach pain – log everything. It could help your doctor connect the dots. Download a checklist. 👉 https://bit.ly/3XpxECp

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