Dystonia Association, Support, & Information - Alberta , CA

14/03/2026

Join Tina and I as we learn about the services offered by Primerica and how Tina is an expert in the RDSP.

14/03/2026

Don't miss out on your benefits. Check out your coverage.

https://www.ab.bluecross.ca/pdfs/pharmacy-benefacts/522-Botox-and-Xeomin-moving-to-special-authorization-status-on-privately-managed-plans.pdf #:~:text=To%20minimize%20rejected%20claims%20and%20to%20make,will%20come%20into%20effect%20August%201%2C%202015.

Send a message to learn more

13/03/2026

11/03/2026

is a neurological movement disorder that affects people of all backgrounds, ages, races and circumstances. It is the third most common movement disorder behind Parkinson's and essential tremor.

Dystonia presents with uncontrollable muscle spasm caused by incorrect signals from the brain, which can, for some, be painful.

It is usually a lifelong condition, however, in most cases it is not life limiting. While currently no cure, there are several treatments available that can help relieve the symptoms and scientists around the world are actively pursuing research towards new therapies.

Did you know lots of helpful resources and information about dystonia can be found on our website? Check it out: bit.ly/whatisdystonia

10/03/2026

To help differentiate functional dystonia from idiopathic dystonia, Prof. Roberto Eleopra describes the promising results from his pilot study using poly-EMG during a controlled popofol sedation. https://loom.ly/eMtS5co

06/03/2026

Get your Ramones-inspired tee and support BEBRF  today!. Whether you're a die-hard Ramones fan or just love a good cause, our new BEBRF t-shirt is a must-have! Featuring...

06/03/2026

💻 Upcoming on “Getting the Most Out of Physiotherapy in Dystonia”
📅 3rd March, 3:00 CET
🗣️Maarten Nijkrake, Radboud University Medical Center, Nijmegen, The Netherlands

Sign up 👉 https://t1p.de/jhk6f

Joint with the European Reference Network for Rare Neuromuscular Diseases and the European Academy of Neurology

06/03/2026

Send a message to learn more

02/03/2026

Hello, I’m Gill from the United Kingdom and I live with
We all have our own ideas about what is ideal but I think all dystonia patients would agree with my four main wishes: Greater awareness among medical professionals and the general public, quick and correct diagnosis with access to effective treatment for everyone, to be free of symptoms and pain, and a cure for all types of dystonia!
What can you imagine? Take part in : https://www.rarediseaseday.org/

26/02/2026

30 March 2022Community Events, Full Citizenship, General, General News, VAD Projects 2026 Newsletters The VOICE March 1, 2026 The VOICE February 1, 2026 The VOICE January 1, 2026   2025 Newsletters The VOICE December 1, 2025 The VOICE November 1, 2025 The VOICE October 1, 2025 The VOICE September 1...