Dystonia Association, Support, & Information - Alberta , CA

09/07/2025

⏳ Last Chance to Give!
Fundraising for Freedom to Move 2025 wraps on July 14. We’re close to our national goal — let’s finish strong!

Thanks to generous donors like you, we're funding vital research and care for those living with dystonia. Together with SickKids Hospital, we’re proud to support Dr. Lindsey Vogt— a dedicated neurologist, focused on dystonia research in children and supporting integrated training in both pediatric and adult care.

Donate to the Toronto Event:
https://dystonia.crowdchange.ca/99504

Donate to the National Event:
https://dystonia.crowdchange.ca/93259

09/07/2025

📣 Register now for our webinar 'DBS Select: An Interactive Experience,' happening Wednesday, September 10th from 18.00-19.30hrs CET: https://forms.gle/MjWWoKZQgErpeuHq8
🧠 DBS Select is an educational tool to better inform patients and caregivers on deep brain stimulation ( ) - a technique widely used to treat movement disorders such as . 🖥️ Join Dr. Alexandra Boogers (Leuven, Belgium) and Dr. Harith Akram (London, UK) as they introduce the project, explain what DBS surgery entails, and discuss how daily life is following DBS.
✅ We look forward to seeing you there!

05/07/2025

Thank You to Our Prizing Partners! 💙🎁
We're incredibly grateful to the amazing organizations who donated prizes for Freedom to Move 2025!

Because of their generosity, fundraisers across Canada have the chance to win exciting rewards — and there's still time to qualify! 🕐 Let’s finish strong together!
👉 Fundraising stays open until July 14.

💙 Every dollar supports better care, research, and hope for those living with dystonia.



Donate to the Toronto Event:
https://dystonia.crowdchange.ca/99504

Donate to the National Event:
https://dystonia.crowdchange.ca/93259

05/07/2025

02/07/2025

To everyone who walked, ran, wheeled, donated, or cheered us on — thank you. 💙
Freedom to Move 2025 was a celebration of resilience, community, and hope.

Your support helps fuel research, improve lives, and create a brighter future for people living with dystonia.

We’re so grateful you joined the movement. 🙌
📸 Tag us in your photos using !

🎯 Fundraising is still open until July 14!

Donate to the Toronto Event:
https://dystonia.crowdchange.ca/99504

Donate to the National Event:
https://dystonia.crowdchange.ca/93259

01/07/2025

On this page, dystonia patients will find resources that assist individuals with challenges market themselves in a competitive job market. A challenging movement disorder like dystonia need not be an obstacle in carving a purposeful journey towards the job you'd like to have. These resources can hel...

01/07/2025

We would love to hear your dystonia story. If you’re interested in sharing your story with us, it could be included in an upcoming newsletter or e-newsletter.Read on for some of the latest stories of persons with Dystonia below.Generalized DystoniaMuscle groups affected: Throughout the bodyJennife...

28/06/2025

Good morning, Warriors. Be kind to yourselves today! ~ It's okay to not be okay ❤️ Danie

27/06/2025

We’ve just launched our brand new page!
🤳 Follow us for mental health updates, courses, resources and inspiring stories that make a difference in our community.

🔗 Click here to connect: https://tinyurl.com/3mnvm2vf

27/06/2025

📢 Now available on the Dystonia Europe Youtube Channel:

📺 Watch Dystonia Europe President, Edwige Ponseel, interview Dr. Ahmet Kaymak, winner of the David Marsden Award 2025: https://youtu.be/_6dNRoAV4D0?si=Aw3xWuBwZHTWUn_0

💬 In the interview Dr. Kaymakdiscusses his research on 'Spiking Patterns in the Globus Pallidus Highlight Convergent Neural Dynamics across Diverse Genetic Dystonia Syndromes', and how this may lead to the refinement of therapies to improve treatment outcomes for individuals with .

27/06/2025

Even from Canada!