Chiari surgery and worse after

03/12/2025

Some screenshots in my phone that I came across today.


These are old, but as you can tell from the dates of the post, I fought like hell to get answers.

28/10/2025

https://m.youtube.com/watch?v=Xsz3Fzibv-4&fbclid=IwVERDUANs3sNleHRuA2FlbQIxMQABHi6G0Yt2QuOYmR5amC2gRbPFyTahsjlwiC1cbXpVuL-2YmRbCc3vAJnk3Rm0_aem_yLZ7mfV5y92NMWzHTc5l1A

Our guest in this episode, Jen, suffers from Chiari Malformation - A syndrome where brain tissue extends into the spinal canal, estimated to affect approxima...

24/10/2025

https://plasticsurgerykey.com/surgical-anatomy-of-the-posterior-part-of-the-foramen-magnum-and-the-posterior-paramedian-approaches/

Hopefully I post helpful things.
They are things I find interesting for
🧠
A good article of all the anatomy of what is around the Foramen Magnum (area of surgery)
There are a lot of very important arteries and muscles and nerves back there.

Remember when you played Operation as a child and had to have a very steady hand?

I am going to also post in comments the nerves that go through the FM hole also.
I had a very “prestigious” tell me “you don’t have my nerves back there” refering to the area where my previous was. I wonder how I have nerve damage now? 🤔
 I cannot wait until the day I’m able to compile all of the things I have and one has been told to me along with the actual “receipts” of the craziness.
ow

13/10/2025

If you have a


Anything that sounds like that please take a moment and read through the AI 🤖 information.

You are NOT CRAZY and you need someone to listen and help.
I heard this f***** thing in my head all day long.
If I turned my head too fast or even sometimes turning my head driving it would CRACK with a horrible pinch that I would be afraid to move.
Stress would send me over the edge physically and mentally and nobody truly understood what was going on with me.
I still had to get up and live life every day because I was a mother that’s two children. I was a wife and I had to work for my medical benefits.
There was times that I would walk around just holding my head up and I know I looked crazy, but there was nothing else I could do and nobody understood and yes here I am in 2025 almost 9 years later when this all started and NOW I have been 💯 validated.
But I know that there are so many out there that are probably still dealing with this.

this took years for my life, interfered with so many things, and robbed me and my family all for what?

13/10/2025

Typically, the Chiari malformation decompression surgery- these are the muscles and this is the area that surgeons need to cut into or move around and manipulate to get to the area to do their work.

Depending on the surgeon and many other factors such as the type of Malformation and the condition of your Chiari Malformation, the neurosurgeon may or may not cut into certain parts back at the base of your neck.

Over the past few years there have been studies about how MANY who have gotten CM surgery had had instability after or nerve damage that may be worse than the patients original condition. Ex: “Myodural Bridge”

With AI and ChatGPT you have literally all the answers at your fingertips and just need to know the right questions to ask SO please ask 1 million questions prior to getting.the surgery if you feel you need to!
Don’t run from the surgery, but run to the questions about the right neurosurgeon and surgery for you!
I believe if a doctor is telling you to ignore things on the Internet that is a 🚩

The suboccipital muscles are a group of four muscles situated underneath the occipital bone. All the muscles in this group are innervated by the suboccipital nerve.

13/10/2025

Again, good visual. Well done.

13/10/2025

13/10/2025

09/10/2025

This is a very special Podcast to me.
I believe the full clip is on YouTube. I could probably attach the link in the comments.


I have spoken about my experience with my reaction to

Damage was done to my body for being in for way longer than it should have when the reaction was almost immediate, but I’m thankful that it is out!
If you have a implant or device and you’re feeling like something is not right it probably is not the advocate until you get answers.

Shari Guess is a wonderful advocate and works so hard.
Also, of course I have to recognize Dr. Schroeder for all his work and Melisa Diagnostics in helping us get our voices out.

12/09/2025

https://youtu.be/0xeePRZDLJw?si=bwwTWJir9cPhY_Jo

Very good information regarding any type of metal implants, even metals and titanium in products that we use every day like toothpaste/deodorant.



Welcome to our Heavily Metalled Season 3 Opener and a Heavily Metalled FIRST! In this episode the renowned metal allergy expert Dr. Scott Schroeder takes met...

29/08/2025

These pictures are great visuals of what is normally done when someone gets a Chiari Decompression!

Chiari decompression surgery removes bone at the back of the skull to widen the foramen magnum and create space for the brain. Sometimes the dura overlying the herniated tonsils is opened and a patch is sewn to expand the space, similar to letting out the waistband on a pair of pants. The goals of surgery are to control the progression of symptoms, relieve compression, and restore the normal flow of cerebrospinal fluid (CSF). The surgery takes about 2 to 5 hours and recovery in the hospital usually lasts 2 to 6 days.

What is Chiari decompression?
Posterior fossa decompression is a surgical procedure that removes bone at the back of the skull and spine to widen the space for the tonsils and brainstem.
Posterior fossa decompression surgery removes a small portion of the occipital bone to create more space for the brainstem and tonsils (suboccipital craniectomy).
In some cases the bony arch of the C1 vertebra may be removed (laminectomy). These steps expose the protective covering of the brain and spinal cord called the dura. Bone removal may relieve compression of the tonsils.
A dura patch may sewn to expand the space for cerebrospinal fluid to flow around the tonsils.

Many patients ask about minimally invasive or endoscopic surgery. Minimally invasive can mean different things: shorter skin and muscle incision, no dura opening, no shrinkage of the tonsils, or use of ultrasound and endoscopes. Despite what the words "minimally invasive" suggest, the amount of bone removal needed to effectively restore normal CSF flow depends on the individual patient's anatomy and size of Chiari. The amount of bone removal should be the same in any procedure, endoscopic or standard "open" technique. It's also important to understand that some minimally invasive techniques used for children (whose skulls are still growing) may or may not be appropriate for adults.

Spinal fusion may be performed in addition to posterior fossa decompression surgery in certain patients with spine instability due to scoliosis, Ehler-Danlos syndrome, or other bone abnormality. Rods and screws are inserted to structurally reinforce the skull and neck vertebrae.

25/08/2025

For Many Adults, Chiari Equals Pain

PDF version: https://www.conquerchiari.org/library/index/click/848