Chiari surgery and worse after

27/01/2026

You should know about this.

Text messages, a whistleblower lawsuit and an internal investigation reveal the lengths to which Medtronic, the world’s largest medical device company, allegedly “groomed” doctors to overuse its vascular products in patients at a veterans hospital.

11/01/2026

This is my operative report from 2023.
ChatGPT could be an amazing tool to help you get your doctors on the same page as you!

I really encourage everyone to use it.

11/01/2026

 ChatGPT can be extremely informative and helpful if you know how to use it.

 This is my last operative report from my revision surgery that took place in 2023.
Unfortunately I am still having a lot of symptoms and had continued to have a lot of symptoms since although I am in much better shape. I’m still very much suffering.
 I currently have half-and-half good days and bad days which before my revision it was more like 90% bad days 10% good days.

 I see about a dozen doctors and mental health providers for my symptoms and conditions that I still deal with, and they all have different ideas of what might be going on and sending me around in a circle however every single one of my current medical problems could very much still be related to my Chiari Malformation, even though I had the revision surgery.

IF this is what you are dealing with also and I encourage you to fight as hard as you can and use the tools that are at your fingertips such as ChatGPT and other AI programs.  there is also a lot of great information in support group groups on Facebook and Reddit.

 I will post/comment below what ChatGPT told me when I just plugged mine in with very specific questions .








20/12/2025

https://youtu.be/5BYfEsF-4Kc?si=LQ5dM2y1fqx71ggi

As always … passing along helpful videos!

I was in the worst pain this week with my neck. I forced myself today to do some upper back exercise exercises with some weight weights and stretch stretching and I probably took about 45 minutes to do so and I can’t tell you how much it helped me. I went from a level 7/8 to a 4 almost instant!

In this spine management video, neurosurgeon Dr. John Edwards explains why assessing ligament laxity is an important part of evaluating patients with Chiari ...

12/12/2025

https://youtu.be/MKYi5BHE3SY?si=dRXFFYR2w5iqY9fM

I am a big big fan of the Bobby Jones CSF foundation.
 if you don’t know them definitely check them out. They are pretty well well-versed in all Chiari affirmation issues.
 They interview very prestigious and top neurosurgeon many of them who are “specialist” in

I will try to regularly post their lectures and YouTube videos whenever I have a chance because most of the time I feel, they are very informative although sometimes I do shake my head because one neurosurgeon does say one thing and a few months later another neurosurgeon might say something totally different or even opposite. 😳
 However, most do agree that there is a very big divide and discrepancy in consensus on how to handle, not only treatment, but the actual surgery itself.

 I created this page years ago when I was as bad as I possibly could be and I don’t know how I got by in life at that point I am doing better, but had I gotten the help that I needed when I needed it I might be way different and my purpose from all of this happening to me -is to try and help others and educate Not and only the Chiari community but the Chiari  world from someone who has complex situation.

 💜as always, I will state this is my opinion and my experience that I hope those that read this could just use as another tool of information to help them.





Help share more videos like this by donating to Bobby Jones CSF: https://bobbyjonescsf.org/donate-online/Dr. Richard Anderson discusses his recently publishe...

03/12/2025

Some screenshots in my phone that I came across today.


These are old, but as you can tell from the dates of the post, I fought like hell to get answers.

28/10/2025

https://m.youtube.com/watch?v=Xsz3Fzibv-4&fbclid=IwVERDUANs3sNleHRuA2FlbQIxMQABHi6G0Yt2QuOYmR5amC2gRbPFyTahsjlwiC1cbXpVuL-2YmRbCc3vAJnk3Rm0_aem_yLZ7mfV5y92NMWzHTc5l1A

Our guest in this episode, Jen, suffers from Chiari Malformation - A syndrome where brain tissue extends into the spinal canal, estimated to affect approxima...

24/10/2025

https://plasticsurgerykey.com/surgical-anatomy-of-the-posterior-part-of-the-foramen-magnum-and-the-posterior-paramedian-approaches/

Hopefully I post helpful things.
They are things I find interesting for
🧠
A good article of all the anatomy of what is around the Foramen Magnum (area of surgery)
There are a lot of very important arteries and muscles and nerves back there.

Remember when you played Operation as a child and had to have a very steady hand?

I am going to also post in comments the nerves that go through the FM hole also.
I had a very “prestigious” tell me “you don’t have my nerves back there” refering to the area where my previous was. I wonder how I have nerve damage now? 🤔
 I cannot wait until the day I’m able to compile all of the things I have and one has been told to me along with the actual “receipts” of the craziness.
ow

13/10/2025

If you have a


Anything that sounds like that please take a moment and read through the AI 🤖 information.

You are NOT CRAZY and you need someone to listen and help.
I heard this f***** thing in my head all day long.
If I turned my head too fast or even sometimes turning my head driving it would CRACK with a horrible pinch that I would be afraid to move.
Stress would send me over the edge physically and mentally and nobody truly understood what was going on with me.
I still had to get up and live life every day because I was a mother that’s two children. I was a wife and I had to work for my medical benefits.
There was times that I would walk around just holding my head up and I know I looked crazy, but there was nothing else I could do and nobody understood and yes here I am in 2025 almost 9 years later when this all started and NOW I have been 💯 validated.
But I know that there are so many out there that are probably still dealing with this.

this took years for my life, interfered with so many things, and robbed me and my family all for what?

13/10/2025

Typically, the Chiari malformation decompression surgery- these are the muscles and this is the area that surgeons need to cut into or move around and manipulate to get to the area to do their work.

Depending on the surgeon and many other factors such as the type of Malformation and the condition of your Chiari Malformation, the neurosurgeon may or may not cut into certain parts back at the base of your neck.

Over the past few years there have been studies about how MANY who have gotten CM surgery had had instability after or nerve damage that may be worse than the patients original condition. Ex: “Myodural Bridge”

With AI and ChatGPT you have literally all the answers at your fingertips and just need to know the right questions to ask SO please ask 1 million questions prior to getting.the surgery if you feel you need to!
Don’t run from the surgery, but run to the questions about the right neurosurgeon and surgery for you!
I believe if a doctor is telling you to ignore things on the Internet that is a 🚩

The suboccipital muscles are a group of four muscles situated underneath the occipital bone. All the muscles in this group are innervated by the suboccipital nerve.

13/10/2025

Again, good visual. Well done.