Family Support for Schizophrenia

Family Support for Schizophrenia A supportive space for families and carers of people living with schizophrenia

We are a family support group offering relatives and carers of people living with schizophrenia an empathetic space for mutual support and learning. We provide family-centred information about schizophrenia and mental illness through

- a monthly newsletter
- online monthly meetings with expert speakers and an opportunity for questions
- recordings of past speaker presentations
- useful resources

on our website dealing with topics such as accommodation and FAQs
- a handbook for caregivers, Coping Skills for Carers
- an email support service for families and caregivers of those living with schizophrenia

29/04/2026

Elyn Saks lived with severe schizophrenia. The hospital records in the 1980s said she would never live independently again.

Her name was Elyn Saks. In the late 1970s, she walked the stone corridors of Oxford University. She was there to study philosophy. She possessed a brilliant, analytical mind. She also had voices in her head.

The voices told her she was inherently evil. They told her the buildings around her were going to collapse. She hid the terror behind intense academic rigor. But a human mind can only hold so much weight before the pressure finds a release.

By the time she reached Yale Law School in the 1980s, the internal breaks were visible. The official diagnosis was chronic schizophrenia. The prognosis was institutionalization.

At the time, the medical establishment viewed severe mental illness as a final sentence. A patient with her diagnosis was expected to work a menial job, take heavy doses of medication, and stay quietly out of sight.

The medical system soon took control. During an acute episode in New Haven, Connecticut, she was forcibly hospitalized. Doctors strapped her to a metal bed with thick leather restraints. She lay there for days. They told her this physical containment was for her own good. She was a law student learning about fundamental constitutional rights, yet inside that ward, she had none.

The doctors told her to drop out of Yale. They stated that a high-stress legal career was impossible for someone with schizophrenia.

She looked at the institutional walls closing in around her. She refused to accept their verdict on her life. She returned to her classes. She took her medication. She attended therapy five days a week. She sat in the law library and studied while actively fighting off visual hallucinations. She once spent an entire afternoon hiding behind a library bookshelf because she thought the legal texts were broadcasting her thoughts to the room.

Records show that in the 1980s, the use of mechanical restraints in American psychiatric hospitals was largely unquestioned. The medical model focused heavily on physical containment rather than rehabilitation for severe psychiatric cases. A diagnosis of schizophrenia was treated less like a medical condition to be managed and more like a permanent voiding of a person's potential. The institutional system was designed to protect society from the patient, not to return the patient to society.

The academic world was no safer than the hospital ward. To secure a job in legal academia, one had to appear flawless. Elyn Saks moved to Los Angeles, California. She built a career at the University of Southern California, becoming an expert in mental health law.

She fought against the use of physical restraints in psychiatric facilities. She published complex legal papers. She won tenure.

But she lived in constant, quiet fear. If the university administration knew her actual diagnosis, her credibility would vanish. The stigma of mental illness acted as an invisible wall, much thicker than the leather straps back at Yale.

The secrecy exhausted her over time. She was living two entirely separate lives. By day, she was Professor Saks, teaching future attorneys how to navigate the law. By night, she was managing a brain that constantly threatened to betray her.

The silence felt like another kind of restraint.

In 2007, she made a decision that terrified the few colleagues who knew the truth. She wrote a memoir called "The Center Cannot Hold." She put her chronic schizophrenia right on the cover. She detailed the hallucinations, the forced hospitalizations, and the deep terror of losing her mind.

She expected to lose her job. She expected her law students to walk out of her lectures. She expected the academic establishment to quietly marginalize her work.

Instead, the wall cracked open. The medical establishment had to reckon with a brilliant legal scholar who had the exact diagnosis they usually wrote off as hopeless.

The doctor who originally ordered her restrained at Yale is never named in her public talks. He simply faded into the medical bureaucracy.

She began traveling the country. She stood in front of psychiatric boards and medical directors. She told them that patients require agency, not just physical containment. She showed them exactly what a person with severe mental illness looks like when given support instead of straps.

A diagnosis is not a boundary on a human life.

Every family silently navigating a mental health diagnosis needs to hear her name.

Elyn Saks did not cure her schizophrenia. She still experiences hallucinations today. She still attends therapy. She simply stopped letting the institutional system dictate what those facts meant about her future.

Today, she directs the Saks Institute for Mental Health Law, Policy, and Ethics at USC. She changed how the law views the physical autonomy of psychiatric patients. The leather restraints that once held her to a bed are slowly being phased out of hospitals across the United States. The medical textbooks that said people with her condition could never live independently are slowly being rewritten.

Somebody in your family probably hides a struggle because they are afraid of what the world will think. Ask them how their day was.

Elyn Saks: the scholar who dismantled the stigma.

Source: Elyn Saks. Verified via: MacArthur Foundation, USC Gould School of Law.
(Some details summarized for brevity.)

Read more about our recent speaker, Dr Fadia Gamieldien, and her research on embedding mental healthcare into South Afri...
07/04/2026

Read more about our recent speaker, Dr Fadia Gamieldien, and her research on embedding mental healthcare into South Africa's public health system. This is of particular relevance for those living with severe mental health conditions who are offered little psychosocial support after discharge from psychiatric institutions.

Research by a UCT PhD candidate reveals that care is deficient for South Africans living with severe mental health conditions upon discharge from psychiatric facilities.

Our next support meeting will be on Monday 30 March 2026 @ 19h00. Register to join:  https://familysupport.org.za/meetin...
26/03/2026

Our next support meeting will be on Monday 30 March 2026 @ 19h00.

Register to join: https://familysupport.org.za/meetings/meeting-registration/

The talk will emphasise caregiver self-care, boundaries, and shared
responsibility, reinforcing that personal recovery includes both the person with lived experience and the network that supports them.

Compassion fatigue is a common reality for carers of those living with schizophrenia. You will need to develop and grow ...
15/03/2026

Compassion fatigue is a common reality for carers of those living with schizophrenia. You will need to develop and grow your coping skills so that you can provide the right support to your loved one while also caring for yourself. This manual covers a wide range of topics to help you understand the disorder better, while providing practical advice and useful guidelines to support well-being for all involved in caregiving and support.

Download this FREE publication from our website: https://familysupport.org.za/resources/coping-skills-for-carers/

Drawing on her research findings, Dr Fadia Gamieldien will explain the differences between clinical and personal recover...
24/02/2026

Drawing on her research findings, Dr Fadia Gamieldien will explain the differences between clinical and personal recovery from severe mental health conditions, and will reframe personal recovery as living a meaningful life beyond a diagnosis.

She will introduce the “Recovery Mandala” to illustrate how the different elements of recovery interact with each other.

The talk will emphasise caregiver self-care, boundaries and shared
responsibility, reinforcing that personal recovery includes both the person with lived experience and the network that supports them.

Register to join: https://familysupport.org.za/meetings/meeting-registration/

Want to join our support group meeting? Click on the link: https://familysupport.org.za/meetings/meeting-registration/ S...
13/02/2026

Want to join our support group meeting?

Click on the link: https://familysupport.org.za/meetings/meeting-registration/

Sisters Gertse and Juries will discuss challenges facing people living with schizophrenia and will provide practical advice for families, drawn from their professional experience e.g. medication non-adherence, dealing with symptoms, etc.

Family Support for Schizophrenia (FSS) provides emotional and practical information and support to the relatives and car...
13/02/2026

Family Support for Schizophrenia (FSS) provides emotional and practical information and support to the relatives and carers of people living with schizophrenia.

- Online support meetings with experts in the mental health field
- Caring & Sharing meetings
- Free monthly newsletter
- E-mail support with practical advice on schizophrenia
- Resources and information about schizophrenia
- Books on schizophrenia and mental health

Please visit www.familysupport.org.za for details on membership and joining our support group.

As an organisation run by volunteers, your support helps us run our operations and enables us to continue offering our s...
18/01/2026

As an organisation run by volunteers, your support helps us run our operations and enables us to continue offering our services through our website, online meetings, and email support to those who need it.

How to support us:
1. Download the Woolies app.
2. Join MyDifference.
3. Go to the Loyalty hub and tap ‘Causes’.
4. Select ‘Choose My Own’.
5. Search for our name (Family Support for Schizophrenia).
6. Choose us before the selection window closes.

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Cape Town
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