Beyond the Pain, Sickle Cell & Strength

01/09/2025

01/09/2025

Happy new month.

06/08/2025

Good morning

01/08/2025

Today I have woken up with a swollen leg, it's because I am stressed and it got very cold in the early hours 😞 but I am doing my normal daily errands.

28/07/2025

Let's keep warm

21/07/2025

Keep warm !!

11/07/2025

Where Will I Urinate From?”

This is the question that always crosses my mind when I’m on public transport.

I remember one day traveling a 2-hour distance. I politely asked the transport officer if the bus could make a quick stop so I could urinate. To my shock, he responded with:
“You were drinking alcohol early in the morning and now you want us to stop for you?”

😳 I was stunned. He had no idea I live with sickle cell, and that frequent urination isn’t a joke for me, it’s part of my reality.

I didn’t argue. I just looked at him and said:
“If you don’t stop this bus, I’ll p*e from the window.”
And honestly… I meant it. I was ready. 💯

From that day, I’ve done everything I can to use private transport whenever possible.

Living with sickle cell comes with so many unseen battles, even something as simple as needing to urinate can turn into humiliation.

This story is real. I went through it.
So the next time someone asks to stop or step out, have compassion. You never know what they’re carrying inside.

02/07/2025

Good morning ❤️

01/07/2025

The past month I have not been too well, not the hospitalized not well.
I have stress
Fatigue
And now the weather is not good too. All this affects my daily routine and production... 😞

28/06/2025

:

💊 Not Every Medication Is Safe for Everyone – Especially for Those with Sickle Cell
As someone living with sickle cell, I’ve learned to be very careful with medication.
Not every drug works for every warrior, some can actually make things worse.

I don’t take medicine “just anyhow” , I always ask questions and check what’s right for my body.

💡 Why it matters:

Some painkillers damage the liver or kidneys

Herbal or over-the-counter meds can trigger crises

What works for one person may harm another

If you live with sickle cell, protect your health.
Be informed. Be cautious. Speak up for yourself.

And if you care for someone with sickle cell, respect their choices.
We’re not being difficult. We’re being careful.

23/06/2025

Many family and friends don’t understand sickle cell because of a mix of reasons — and none of them excuse the pain they might cause, but they can help explain the silence or misunderstanding.

“Just because I don’t look sick doesn’t mean I’m not in pain.
Just because I’m strong doesn’t mean I don’t need support.
Sickle cell is real, and we need understanding, not judgment.”

20/06/2025

Good morning from your favorite warrior ❤️