26/06/2025
๐ ๐๐๐ซ๐๐ซ ๐๐๐๐ค 2025: ๐ ๐๐จ๐ง๐ฏ๐๐ซ๐ฌ๐๐ญ๐ข๐จ๐ง ๐จ๐ง ๐๐๐ซ๐, ๐๐ง๐๐ฅ๐ฎ๐ฌ๐ข๐จ๐ง, ๐๐ง๐ ๐๐จ๐ฉ๐ ๐ข๐ง ๐ญ๐ก๐ ๐๐๐๐ ๐๐๐ ๐ข๐จ๐ง
As the world recently observed Carer Week (9โ15 June 2025), we spoke with ๐๐ซ. ๐
๐ข๐๐ ๐๐ข๐ฒ๐๐, an advocate for families of people of determination in the Arab world, to shed light on the unique challenges carers faceโand what our societies can do to better support them.
๐๏ธ ๐๐ก๐๐ญ ๐๐ซ๐ ๐ญ๐ก๐ ๐๐ข๐ ๐ ๐๐ฌ๐ญ ๐๐ก๐๐ฅ๐ฅ๐๐ง๐ ๐๐ฌ ๐๐๐๐๐ ๐๐ฒ ๐๐๐ซ๐๐ซ๐ฌ ๐จ๐ ๐ฉ๐๐จ๐ฉ๐ฅ๐ ๐จ๐ ๐๐๐ญ๐๐ซ๐ฆ๐ข๐ง๐๐ญ๐ข๐จ๐ง ๐ข๐ง ๐ญ๐ก๐ ๐๐ซ๐๐ ๐ซ๐๐ ๐ข๐จ๐ง?
"Acceptanceโboth within families and across societyโis still a major obstacle. Even with financial resources available for treatment or support, the journey doesnโt begin without emotional acceptance. Rejection in nurseries, schools, or institutions leaves families feeling isolated and misunderstood."
๐๏ธ ๐๐ก๐๐ญ ๐๐จ ๐๐๐๐ ๐ฌ๐จ๐๐ข๐๐ญ๐ข๐๐ฌ ๐ง๐๐๐ ๐ญ๐จ ๐๐๐ญ๐ญ๐๐ซ ๐ฌ๐ฎ๐ฉ๐ฉ๐จ๐ซ๐ญ ๐๐๐ซ๐๐ซ๐ฌ?
"Awareness, awareness, awareness. Lack of understanding leads to rejection. We must educate all segments of societyโparents, children, educatorsโso inclusion becomes a shared responsibility, not just a burden on the family."
๐๏ธ ๐๐ก๐๐ญ ๐๐๐ง ๐ข๐ง๐ฌ๐ญ๐ข๐ญ๐ฎ๐ญ๐ข๐จ๐ง๐ฌ ๐๐จ ๐ญ๐จ ๐จ๐๐๐๐ซ ๐๐๐ญ๐ญ๐๐ซ ๐ฌ๐ฎ๐ฉ๐ฉ๐จ๐ซ๐ญ?
"Schools, hospitals, and NGOs need expert committees that include both professionals and parents. True progress only comes when institutions become systems that guideโnot overwhelmโfamilies."
๐๏ธ ๐๐ก๐๐ญโ๐ฌ ๐ญ๐ก๐ ๐ซ๐ข๐ ๐ก๐ญ ๐ฐ๐๐ฒ ๐ญ๐จ ๐๐๐ฅ๐ข๐ฏ๐๐ซ ๐ ๐๐ข๐๐ ๐ง๐จ๐ฌ๐ข๐ฌ ๐ญ๐จ ๐๐๐ฆ๐ข๐ฅ๐ข๐๐ฌ?
"Itโs a life-altering moment. The person delivering the diagnosis must choose their words carefully, offering hope and showing families what can be done. Sharing success stories is powerfulโit turns fear into courage."
๐๏ธ ๐๐จ๐ฐ ๐ก๐๐ฌ ๐ญ๐ก๐ ๐ซ๐๐ ๐ข๐จ๐ง๐๐ฅ ๐ฅ๐๐ง๐๐ฌ๐๐๐ฉ๐ ๐๐ก๐๐ง๐ ๐๐ ๐จ๐ฏ๐๐ซ ๐ญ๐ก๐ ๐ฅ๐๐ฌ๐ญ ๐๐๐๐๐๐?
"In the UAE, weโve seen great progressโfrom government support to advanced facilities. But many Arabic-speaking families still lack accessible, high-quality educational resources. Awareness in our own language remains a critical gap."
๐๏ธ ๐๐ง๐ฒ ๐ฉ๐๐ซ๐ฌ๐จ๐ง๐๐ฅ ๐ข๐ง๐ข๐ญ๐ข๐๐ญ๐ข๐ฏ๐๐ฌ ๐ฒ๐จ๐ฎโ๐ ๐ฅ๐ข๐ค๐ ๐ญ๐จ ๐ก๐ข๐ ๐ก๐ฅ๐ข๐ ๐ก๐ญ?
"We just launched the Arabic platform 'ูุงุฏุฑูู ูุฏุงู ุจูุฏ' (Capable, Hand in Hand), featuring educational resources from regional leaders in special education. We also run year-round workshops tailored for mothers of children with disabilities."
๐ข Letโs continue to raise awareness, speak openly, and build systems that embrace every member of our society.
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