MENA Congress for Rare Diseases

MENA Congress for Rare Diseases MENA Congress for Rare Diseases was established to serve and support people with rare diseases. Join us in this mission!

We are an organization dedicated to improving the lives of people living with rare diseases in the MENA (Middle East and North Africa) region. Our mission is three-fold:

Educate:
We raise awareness among the public and healthcare professionals about rare diseases, to facilitate earlier diagnoses and better care for patients. Connect:
We bring together patients, their families, and affected communities, to create a network of mutual support. Support:
We provide practical and emotional support to patients and their loved ones, helping them navigate the healthcare system and access treatments. Together, we work to ensure that people living with rare diseases in our region can thrive and receive the best possible care.

09/10/2025
09/10/2025

🤲 The parents of of Adman explain how their family experienced the journey for his son to receive the diagnosis Duchenne.

This initiative is made in cooperation with
MENA Congress for Rare Diseases and Hala Tannira

⏳ Only 2 weeks left until the 2𝐧𝐝 𝐌𝐄𝐍𝐀 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬 𝐟𝐨𝐫 𝐌𝐞𝐭𝐚𝐛𝐨𝐥𝐢𝐬𝐦 𝐢𝐧 𝐇𝐞𝐚𝐥𝐭𝐡 𝐚𝐧𝐝 𝐃𝐢𝐬𝐞𝐚𝐬𝐞, 𝐃𝐮𝐛𝐚𝐢, 17-18 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 2025🥼 Learn f...
04/10/2025

⏳ Only 2 weeks left until the 2𝐧𝐝 𝐌𝐄𝐍𝐀 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬 𝐟𝐨𝐫 𝐌𝐞𝐭𝐚𝐛𝐨𝐥𝐢𝐬𝐦 𝐢𝐧 𝐇𝐞𝐚𝐥𝐭𝐡 𝐚𝐧𝐝 𝐃𝐢𝐬𝐞𝐚𝐬𝐞, 𝐃𝐮𝐛𝐚𝐢, 17-18 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 2025

🥼 Learn from top experts
🤝 Network with healthcare leaders
🚀 Stay ahead with the latest research and innovations

✨ We are waiting for you there!

🔗 Register now: metabolism.ae/registration

⏳ Only 2 weeks left until the 2𝐧𝐝 𝐌𝐄𝐍𝐀 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬 𝐟𝐨𝐫 𝐍𝐞𝐮𝐫𝐨𝐠𝐞𝐧𝐞𝐭𝐢𝐜 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬, 𝐃𝐮𝐛𝐚𝐢, 17-18 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 2025🥼 Learn from top ex...
04/10/2025

⏳ Only 2 weeks left until the 2𝐧𝐝 𝐌𝐄𝐍𝐀 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬 𝐟𝐨𝐫 𝐍𝐞𝐮𝐫𝐨𝐠𝐞𝐧𝐞𝐭𝐢𝐜 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬, 𝐃𝐮𝐛𝐚𝐢, 17-18 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 2025

🥼 Learn from top experts
🤝 Network with healthcare leaders
🚀 Stay ahead with the latest research and innovations

✨ We are waiting for you there!

🔗 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: neurogenetics.ae/registration

هذا الشهر، يسرنا أن نقدم لكم لقاء مع الدكتورة ولاء رجيعة، طبيبة طوارئ، مدربة شخصية معتمدة، وأم لطفل نادر.في هذا اللقاء، ...
30/09/2025

هذا الشهر، يسرنا أن نقدم لكم لقاء مع الدكتورة ولاء رجيعة، طبيبة طوارئ، مدربة شخصية معتمدة، وأم لطفل نادر.

في هذا اللقاء، تشارك د. ولاء تجربتها حول التحديات التي تواجهها العائلات، وأهمية الادماج المجتمعي، وكيف يمكن للوالدين الاعتناء بأنفسهم أثناء دعم أطفالهم.

تصفحوا الشرائح لقراءة أبرز لحظات حديثنا، وزوروا موقعنا الإلكتروني للاطلاع على المقابلة الكاملة.

اقرأوا المقابلة كاملة هنا:
https://menararediseases.org/news/%D8%A7%D9%84%D9%84%D9%82%D8%A7%D8%A1%20%D8%A7%D9%84%D8%B4%D9%87%D8%B1%D9%8A%20%D8%A7%D9%84%D8%A3%D9%88%D9%84:%20%D8%AF.%20%D9%88%D9%84%D8%A7%D8%A1%20%D8%B1%D8%AC%D9%8A%D8%B9

#صحة

This month, we are honored to feature Dr. Walaa Regeia, an emergency physician, certified personal coach, and mother of ...
30/09/2025

This month, we are honored to feature Dr. Walaa Regeia, an emergency physician, certified personal coach, and mother of a child with a rare condition.

In her journey, Dr. Walaa shares personal insights on the challenges families face, the importance of inclusion, and how parents can care for themselves while supporting their children.

Swipe through to read key moments from our conversation, and visit our website for the full interview.

Read the full interview here:
https://menararediseases.org/news/Monthly%20Feature:%20Dr.%20Walaa%20Regeia

🌟 We are honored to be guided by an exceptional 𝐒𝐜𝐢𝐞𝐧𝐭𝐢𝐟𝐢𝐜 𝐂𝐨𝐦𝐦𝐢𝐭𝐭𝐞𝐞 whose expertise and visionary leadership are shapin...
25/09/2025

🌟 We are honored to be guided by an exceptional 𝐒𝐜𝐢𝐞𝐧𝐭𝐢𝐟𝐢𝐜 𝐂𝐨𝐦𝐦𝐢𝐭𝐭𝐞𝐞 whose expertise and visionary leadership are shaping the success of the 2𝐧𝐝 𝐌𝐄𝐍𝐀 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬 𝐟𝐨𝐫 𝐍𝐞𝐮𝐫𝐨𝐠𝐞𝐧𝐞𝐭𝐢𝐜 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬 2025

Congress President: Dr Mohamed Osman E. Babiker

Scientific Committee:
- Prof. Dr. Ayman El-Hattab
- Prof. Dr Brahim Tabarki Melaiki
- Prof. Fahad Bashiri
- Dr Haitham Elbashir
- Dr. Majid Aziz
- Prof. Pierre Krystkowiak
- Dr. Vivek Mundada
- Dr. Wejdan Hakami

🔗 𝐅𝐨𝐫 𝐦𝐨𝐫𝐞 𝐢𝐧𝐟𝐨𝐫𝐦𝐚𝐭𝐢𝐨𝐧 𝐚𝐧𝐝 𝐭𝐨 𝐫𝐞𝐠𝐢𝐬𝐭𝐞𝐫: neurogenetics.ae

🌟 We are honored to be guided by an exceptional 𝐒𝐜𝐢𝐞𝐧𝐭𝐢𝐟𝐢𝐜 𝐂𝐨𝐦𝐦𝐢𝐭𝐭𝐞𝐞 whose expertise and visionary leadership are shapin...
25/09/2025

🌟 We are honored to be guided by an exceptional 𝐒𝐜𝐢𝐞𝐧𝐭𝐢𝐟𝐢𝐜 𝐂𝐨𝐦𝐦𝐢𝐭𝐭𝐞𝐞 whose expertise and visionary leadership are shaping the success of the 2𝐧𝐝 𝐌𝐄𝐍𝐀 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬 𝐟𝐨𝐫 𝐌𝐞𝐭𝐚𝐛𝐨𝐥𝐢𝐬𝐦 𝐢𝐧 𝐇𝐞𝐚𝐥𝐭𝐡 𝐚𝐧𝐝 𝐃𝐢𝐬𝐞𝐚𝐬𝐞 2025

Congress President: Prof. Mahir Al Hilali

Scientific Committee:
- Prof. Dr. Ayman El-Hattab
- Prof. Dr Brahim Tabarki Melaiki
- Prof. Hassan El-Tamimi
- Prof. M. Azzam Kayasseh
- Dr. Najem Al-Falahe
- Prof. RAMZI ABOU AYACHE
- Prof. Safwan Taha
- Prof. Prof Salah Abusnana

🖇️ 𝐅𝐨𝐫 𝐦𝐨𝐫𝐞 𝐢𝐧𝐟𝐨𝐫𝐦𝐚𝐭𝐢𝐨𝐧 𝐚𝐧𝐝 𝐭𝐨 𝐫𝐞𝐠𝐢𝐬𝐭𝐞𝐫: metabolism.ae

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🌟 Join us at the 2𝐧𝐝 𝐌𝐄𝐍𝐀 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬 𝐟𝐨𝐫 𝐌𝐞𝐭𝐚𝐛𝐨𝐥𝐢𝐬𝐦 𝐢𝐧 𝐇𝐞𝐚𝐥𝐭𝐡 𝐚𝐧𝐝 𝐃𝐢𝐬𝐞𝐚𝐬𝐞 𝐢𝐧 𝐃𝐮𝐛𝐚𝐢 𝐨𝐧 17–18 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 2025 to learn more abo...
25/09/2025

🌟 Join us at the 2𝐧𝐝 𝐌𝐄𝐍𝐀 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬 𝐟𝐨𝐫 𝐌𝐞𝐭𝐚𝐛𝐨𝐥𝐢𝐬𝐦 𝐢𝐧 𝐇𝐞𝐚𝐥𝐭𝐡 𝐚𝐧𝐝 𝐃𝐢𝐬𝐞𝐚𝐬𝐞 𝐢𝐧 𝐃𝐮𝐛𝐚𝐢 𝐨𝐧 17–18 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 2025 to learn more about metabolism and health!

🥼 Learn from top experts
🤝 Network with healthcare leaders
🚀 Stay ahead with the latest research and innovations

🖇️ 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: metabolism.ae/registration

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🌟 𝐉𝐨𝐢𝐧 𝐮𝐬 𝐚𝐭 𝐭𝐡𝐞 2𝐧𝐝 𝐌𝐄𝐍𝐀 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬 𝐟𝐨𝐫 𝐍𝐞𝐮𝐫𝐨𝐠𝐞𝐧𝐞𝐭𝐢𝐜 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬 2025 in Dubai on 17–18 October 2025 to learn more about ne...
14/08/2025

🌟 𝐉𝐨𝐢𝐧 𝐮𝐬 𝐚𝐭 𝐭𝐡𝐞 2𝐧𝐝 𝐌𝐄𝐍𝐀 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬 𝐟𝐨𝐫 𝐍𝐞𝐮𝐫𝐨𝐠𝐞𝐧𝐞𝐭𝐢𝐜 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬 2025 in Dubai on 17–18 October 2025 to learn more about neurogenetic disorders!

🥼 Learn from top experts
🤝 Network with healthcare leaders
🚀 Stay ahead with the latest research and innovations

🔗 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: neurogenetics.ae/registration

Address

Rotana Beach
Abu Dhabi

Telephone

+971585885540

Website

https://menararediseases.org/

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