MENA Congress for Rare Diseases

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MENA Congress for Rare Diseases MENA Congress for Rare Diseases was established to serve and support people with rare diseases. Join us in this mission!

We are an organization dedicated to improving the lives of people living with rare diseases in the MENA (Middle East and North Africa) region. Our mission is three-fold:

Educate:
We raise awareness among the public and healthcare professionals about rare diseases, to facilitate earlier diagnoses and better care for patients. Connect:
We bring together patients, their families, and affected commun

ities, to create a network of mutual support. Support:
We provide practical and emotional support to patients and their loved ones, helping them navigate the healthcare system and access treatments. Together, we work to ensure that people living with rare diseases in our region can thrive and receive the best possible care.

๐ŸŒ ุฃุณุจูˆุน ู…ู‚ุฏู‘ู…ูŠ ุงู„ุฑุนุงูŠุฉ 2025: ุญูˆุงุฑ ุญูˆู„ ุงู„ุฑุนุงูŠุฉุŒ ุงู„ุฏู…ุฌุŒ ูˆุงู„ุฃู…ู„ ููŠ ู…ู†ุทู‚ุฉ ุงู„ุดุฑู‚ ุงู„ุฃูˆุณุท ูˆุดู…ุงู„ ุฃูุฑูŠู‚ูŠุงุชุฒุงู…ู†ู‹ุง ู…ุน ุฅุญูŠุงุก ุงู„ุนุงู„ู… ...
30/06/2025

๐ŸŒ ุฃุณุจูˆุน ู…ู‚ุฏู‘ู…ูŠ ุงู„ุฑุนุงูŠุฉ 2025: ุญูˆุงุฑ ุญูˆู„ ุงู„ุฑุนุงูŠุฉุŒ ุงู„ุฏู…ุฌุŒ ูˆุงู„ุฃู…ู„ ููŠ ู…ู†ุทู‚ุฉ ุงู„ุดุฑู‚ ุงู„ุฃูˆุณุท ูˆุดู…ุงู„ ุฃูุฑูŠู‚ูŠุง

ุชุฒุงู…ู†ู‹ุง ู…ุน ุฅุญูŠุงุก ุงู„ุนุงู„ู… ู„ุฃุณุจูˆุน ู…ู‚ุฏู‘ู…ูŠ ุงู„ุฑุนุงูŠุฉ (9โ€“15 ูŠูˆู†ูŠูˆ 2025)ุŒ ุฃุฌุฑูŠู†ุง ุญูˆุงุฑู‹ุง ู…ุน ุงู„ุฏูƒุชูˆุฑุฉ ูุฏุงุก ุฏูŠุงุจุŒ ูˆู‡ูŠ ู…ุฏุงูุนุฉ ุนู† ุญู‚ูˆู‚ ุฃุณุฑ ุฃุตุญุงุจ ุงู„ู‡ู…ู… ููŠ ุงู„ุนุงู„ู… ุงู„ุนุฑุจูŠุŒ ู„ุฅู„ู‚ุงุก ุงู„ุถูˆุก ุนู„ู‰ ุงู„ุชุญุฏูŠุงุช ุงู„ูุฑูŠุฏุฉ ุงู„ุชูŠ ูŠูˆุงุฌู‡ู‡ุง ู…ู‚ุฏู…ูˆ ุงู„ุฑุนุงูŠุฉุŒ ูˆู…ุง ุงู„ุฐูŠ ูŠู…ูƒู† ุฃู† ุชูุนู„ู‡ ู…ุฌุชู…ุนุงุชู†ุง ู„ุฏุนู…ู‡ู… ุจุดูƒู„ ุฃูุถู„.

๐ŸŽ™๏ธ ู…ุง ุฃุจุฑุฒ ุงู„ุชุญุฏูŠุงุช ุงู„ุชูŠ ูŠูˆุงุฌู‡ู‡ุง ู…ู‚ุฏู…ูˆ ุงู„ุฑุนุงูŠุฉ ู„ุฃุตุญุงุจ ุงู„ู‡ู…ู… ููŠ ุงู„ู…ู†ุทู‚ุฉ ุงู„ุนุฑุจูŠุฉุŸ

"ุงู„ู‚ุจูˆู„ โ€” ุณูˆุงุก ุฏุงุฎู„ ุงู„ุฃุณุฑุฉ ุฃูˆ ููŠ ุงู„ู…ุฌุชู…ุน โ€” ู„ุง ูŠุฒุงู„ ุนู‚ุจุฉ ูƒุจูŠุฑุฉ. ุญุชู‰ ู…ุน ุชูˆูุฑ ุงู„ู…ูˆุงุฑุฏ ุงู„ู…ุงู„ูŠุฉ ู„ู„ุนู„ุงุฌ ุฃูˆ ุงู„ุฏุนู…ุŒ ู„ุง ุชุจุฏุฃ ุงู„ุฑุญู„ุฉ ุฏูˆู† ู‚ุจูˆู„ ุนุงุทููŠ. ุงู„ุฑูุถ ููŠ ุงู„ุญุถุงู†ุงุช ุฃูˆ ุงู„ู…ุฏุงุฑุณ ุฃูˆ ุงู„ู…ุคุณุณุงุช ูŠุฌุนู„ ุงู„ุฃุณุฑ ุชุดุนุฑ ุจุงู„ุนุฒู„ุฉ ูˆุณูˆุก ุงู„ูู‡ู…."

๐ŸŽ™๏ธ ู…ุง ุงู„ุฐูŠ ุชุญุชุงุฌู‡ ู…ุฌุชู…ุนุงุช ุงู„ุดุฑู‚ ุงู„ุฃูˆุณุท ูˆุดู…ุงู„ ุฃูุฑูŠู‚ูŠุง ู„ุชู‚ุฏูŠู… ุฏุนู… ุฃูุถู„ ู„ู…ู‚ุฏู…ูŠ ุงู„ุฑุนุงูŠุฉุŸ

"ุงู„ูˆุนูŠุŒ ุซู… ุงู„ูˆุนูŠุŒ ุซู… ุงู„ูˆุนูŠ. ู†ู‚ุต ุงู„ูู‡ู… ูŠุคุฏูŠ ุฅู„ู‰ ุงู„ุฑูุถ. ุนู„ูŠู†ุง ุฃู† ู†ุซู‚ู ุฌู…ูŠุน ูุฆุงุช ุงู„ู…ุฌุชู…ุน โ€” ู…ู† ุงู„ุขุจุงุก ูˆุงู„ุฃุทูุงู„ ุฅู„ู‰ ุงู„ู…ุนู„ู…ูŠู† โ€” ุญุชู‰ ุชุตุจุญ ุงู„ุดู…ูˆู„ูŠุฉ ู…ุณุคูˆู„ูŠุฉ ู…ุดุชุฑูƒุฉุŒ ู„ุง ุนุจุฆู‹ุง ุชุชุญู…ู„ู‡ ุงู„ุฃุณุฑุฉ ูˆุญุฏู‡ุง."

๐ŸŽ™๏ธ ู…ุง ุงู„ุฐูŠ ูŠู…ูƒู† ุฃู† ุชูุนู„ู‡ ุงู„ู…ุคุณุณุงุช ู„ุชู‚ุฏูŠู… ุฏุนู… ุฃูุถู„ุŸ

"ุงู„ู…ุฏุงุฑุณ ูˆุงู„ู…ุณุชุดููŠุงุช ูˆุงู„ู…ู†ุธู…ุงุช ุบูŠุฑ ุงู„ุญูƒูˆู…ูŠุฉ ุจุญุงุฌุฉ ุฅู„ู‰ ู„ุฌุงู† ุฎุจุฑุงุก ุชุถู… ู…ุฎุชุตูŠู† ูˆุฃูˆู„ูŠุงุก ุฃู…ูˆุฑ ู…ุนู‹ุง. ุงู„ุชู‚ุฏู… ุงู„ุญู‚ูŠู‚ูŠ ู„ุง ูŠุญุฏุซ ุฅู„ุง ุนู†ุฏู…ุง ุชุชุญูˆู„ ุงู„ู…ุคุณุณุงุช ุฅู„ู‰ ุฃู†ุธู…ุฉ ุชูุฑุดุฏ ุงู„ุฃุณุฑ ุจุฏู„ุงู‹ ู…ู† ุฃู† ุชูุซู‚ู„ ูƒุงู‡ู„ู‡ุง."

๐ŸŽ™๏ธ ู…ุง ุงู„ุทุฑูŠู‚ุฉ ุงู„ุตุญูŠุญุฉ ู„ุฅูŠุตุงู„ ุงู„ุชุดุฎูŠุต ุฅู„ู‰ ุงู„ุฃุณุฑุŸ

"ุฅู†ู‡ุง ู„ุญุธุฉ ุชุบูŠู‘ุฑ ู…ุฌุฑู‰ ุงู„ุญูŠุงุฉ. ุนู„ู‰ ู…ู† ูŠู‚ุฏู‘ู… ุงู„ุชุดุฎูŠุต ุฃู† ูŠุฎุชุงุฑ ูƒู„ู…ุงุชู‡ ุจุนู†ุงูŠุฉุŒ ูˆูŠู…ู†ุญ ุงู„ุฃู…ู„ุŒ ูˆูŠูุธู‡ุฑ ู„ู„ุฃุณุฑุฉ ู…ุง ูŠู…ูƒู† ูุนู„ู‡. ู…ุดุงุฑูƒุฉ ู‚ุตุต ุงู„ู†ุฌุงุญ ู„ู‡ุง ุฃุซุฑ ูƒุจูŠุฑ โ€” ูู‡ูŠ ุชุญูˆู‘ู„ ุงู„ุฎูˆู ุฅู„ู‰ ุดุฌุงุนุฉ."

๐ŸŽ™๏ธ ูƒูŠู ุชุบูŠู‘ุฑ ุงู„ู…ุดู‡ุฏ ุงู„ุฅู‚ู„ูŠู…ูŠ ุฎู„ุงู„ ุงู„ุนู‚ุฏ ุงู„ู…ุงุถูŠุŸ

"ููŠ ุฏูˆู„ุฉ ุงู„ุฅู…ุงุฑุงุชุŒ ุดู‡ุฏู†ุง ุชู‚ุฏู…ู‹ุง ูƒุจูŠุฑู‹ุง โ€” ู…ู† ุงู„ุฏุนู… ุงู„ุญูƒูˆู…ูŠ ุฅู„ู‰ ุงู„ู…ุฑุงูู‚ ุงู„ู…ุชุทูˆุฑุฉ. ู„ูƒู† ู„ุง ุชุฒุงู„ ุงู„ุนุฏูŠุฏ ู…ู† ุงู„ุฃุณุฑ ุงู„ู†ุงุทู‚ุฉ ุจุงู„ุนุฑุจูŠุฉ ุชูุชู‚ุฑ ุฅู„ู‰ ู…ูˆุงุฑุฏ ุชุนู„ูŠู…ูŠุฉ ุนุงู„ูŠุฉ ุงู„ุฌูˆุฏุฉ ูˆุณู‡ู„ุฉ ุงู„ูˆุตูˆู„. ูŠุจู‚ู‰ ุงู„ูˆุนูŠ ุจู„ุบุชู†ุง ูุฌูˆุฉ ุญุฑุฌุฉ ู„ู… ุชูุณุฏ ุจุนุฏ."

๐ŸŽ™๏ธ ู‡ู„ ู‡ู†ุงูƒ ู…ุจุงุฏุฑุงุช ุดุฎุตูŠุฉ ุชูˆุฏูŠู† ุชุณู„ูŠุท ุงู„ุถูˆุก ุนู„ูŠู‡ุงุŸ

"ุฃุทู„ู‚ู†ุง ู…ุคุฎุฑู‹ุง ุงู„ู…ู†ุตุฉ ุงู„ุนุฑุจูŠุฉ 'ู‚ุงุฏุฑูˆู† ูŠุฏุงู‹ ุจูŠุฏ'ุŒ ูˆุงู„ุชูŠ ุชุชุถู…ู† ู…ูˆุงุฑุฏ ุชุนู„ูŠู…ูŠุฉ ู…ู† ุฎุจุฑุงุก ุฅู‚ู„ูŠู…ูŠูŠู† ููŠ ุงู„ุชุฑุจูŠุฉ ุงู„ุฎุงุตุฉ. ูƒู…ุง ู†ู†ุธู‘ู… ูˆุฑุด ุนู…ู„ ุนู„ู‰ ู…ุฏุงุฑ ุงู„ุนุงู… ู…ุฎุตุตุฉ ู„ู„ุฃู…ู‡ุงุช ุงู„ู„ูˆุงุชูŠ ู„ุฏูŠู‡ู† ุฃุทูุงู„ ู…ู† ุฐูˆูŠ ุงู„ุฅุนุงู‚ุฉ."

๐Ÿ“ข ู„ู†ุชุงุจุน ู…ุนู‹ุง ู†ุดุฑ ุงู„ูˆุนูŠุŒ ูˆุงู„ุงู†ูุชุงุญ ููŠ ุงู„ุญุฏูŠุซุŒ ูˆุจู†ุงุก ุฃู†ุธู…ุฉ ุชุญุชุถู† ุฌู…ูŠุน ุฃูุฑุงุฏ ู…ุฌุชู…ุนู†ุง.

hashtag hashtag hashtag hashtag #ุงู„ุฏู…ุฌ hashtag hashtag hashtag hashtag #ุงู„ุฑุนุงูŠุฉ hashtag hashtag hashtag hashtag hashtag ู‹_ุจูŠุฏ hashtag hashtag

๐ŸŒ ๐‚๐š๐ซ๐ž๐ซ ๐–๐ž๐ž๐ค 2025: ๐€ ๐‚๐จ๐ง๐ฏ๐ž๐ซ๐ฌ๐š๐ญ๐ข๐จ๐ง ๐จ๐ง ๐‚๐š๐ซ๐ž, ๐ˆ๐ง๐œ๐ฅ๐ฎ๐ฌ๐ข๐จ๐ง, ๐š๐ง๐ ๐‡๐จ๐ฉ๐ž ๐ข๐ง ๐ญ๐ก๐ž ๐Œ๐„๐๐€ ๐‘๐ž๐ ๐ข๐จ๐งAs the world recently observed Carer We...
26/06/2025

๐ŸŒ ๐‚๐š๐ซ๐ž๐ซ ๐–๐ž๐ž๐ค 2025: ๐€ ๐‚๐จ๐ง๐ฏ๐ž๐ซ๐ฌ๐š๐ญ๐ข๐จ๐ง ๐จ๐ง ๐‚๐š๐ซ๐ž, ๐ˆ๐ง๐œ๐ฅ๐ฎ๐ฌ๐ข๐จ๐ง, ๐š๐ง๐ ๐‡๐จ๐ฉ๐ž ๐ข๐ง ๐ญ๐ก๐ž ๐Œ๐„๐๐€ ๐‘๐ž๐ ๐ข๐จ๐ง

As the world recently observed Carer Week (9โ€“15 June 2025), we spoke with ๐ƒ๐ซ. ๐…๐ข๐๐š ๐ƒ๐ข๐ฒ๐š๐›, an advocate for families of people of determination in the Arab world, to shed light on the unique challenges carers faceโ€”and what our societies can do to better support them.

๐ŸŽ™๏ธ ๐–๐ก๐š๐ญ ๐š๐ซ๐ž ๐ญ๐ก๐ž ๐›๐ข๐ ๐ ๐ž๐ฌ๐ญ ๐œ๐ก๐š๐ฅ๐ฅ๐ž๐ง๐ ๐ž๐ฌ ๐Ÿ๐š๐œ๐ž๐ ๐›๐ฒ ๐œ๐š๐ซ๐ž๐ซ๐ฌ ๐จ๐Ÿ ๐ฉ๐ž๐จ๐ฉ๐ฅ๐ž ๐จ๐Ÿ ๐๐ž๐ญ๐ž๐ซ๐ฆ๐ข๐ง๐š๐ญ๐ข๐จ๐ง ๐ข๐ง ๐ญ๐ก๐ž ๐€๐ซ๐š๐› ๐ซ๐ž๐ ๐ข๐จ๐ง?

"Acceptanceโ€”both within families and across societyโ€”is still a major obstacle. Even with financial resources available for treatment or support, the journey doesnโ€™t begin without emotional acceptance. Rejection in nurseries, schools, or institutions leaves families feeling isolated and misunderstood."

๐ŸŽ™๏ธ ๐–๐ก๐š๐ญ ๐๐จ ๐Œ๐„๐๐€ ๐ฌ๐จ๐œ๐ข๐ž๐ญ๐ข๐ž๐ฌ ๐ง๐ž๐ž๐ ๐ญ๐จ ๐›๐ž๐ญ๐ญ๐ž๐ซ ๐ฌ๐ฎ๐ฉ๐ฉ๐จ๐ซ๐ญ ๐œ๐š๐ซ๐ž๐ซ๐ฌ?

"Awareness, awareness, awareness. Lack of understanding leads to rejection. We must educate all segments of societyโ€”parents, children, educatorsโ€”so inclusion becomes a shared responsibility, not just a burden on the family."

๐ŸŽ™๏ธ ๐–๐ก๐š๐ญ ๐œ๐š๐ง ๐ข๐ง๐ฌ๐ญ๐ข๐ญ๐ฎ๐ญ๐ข๐จ๐ง๐ฌ ๐๐จ ๐ญ๐จ ๐จ๐Ÿ๐Ÿ๐ž๐ซ ๐›๐ž๐ญ๐ญ๐ž๐ซ ๐ฌ๐ฎ๐ฉ๐ฉ๐จ๐ซ๐ญ?

"Schools, hospitals, and NGOs need expert committees that include both professionals and parents. True progress only comes when institutions become systems that guideโ€”not overwhelmโ€”families."

๐ŸŽ™๏ธ ๐–๐ก๐š๐ญโ€™๐ฌ ๐ญ๐ก๐ž ๐ซ๐ข๐ ๐ก๐ญ ๐ฐ๐š๐ฒ ๐ญ๐จ ๐๐ž๐ฅ๐ข๐ฏ๐ž๐ซ ๐š ๐๐ข๐š๐ ๐ง๐จ๐ฌ๐ข๐ฌ ๐ญ๐จ ๐Ÿ๐š๐ฆ๐ข๐ฅ๐ข๐ž๐ฌ?

"Itโ€™s a life-altering moment. The person delivering the diagnosis must choose their words carefully, offering hope and showing families what can be done. Sharing success stories is powerfulโ€”it turns fear into courage."

๐ŸŽ™๏ธ ๐‡๐จ๐ฐ ๐ก๐š๐ฌ ๐ญ๐ก๐ž ๐ซ๐ž๐ ๐ข๐จ๐ง๐š๐ฅ ๐ฅ๐š๐ง๐๐ฌ๐œ๐š๐ฉ๐ž ๐œ๐ก๐š๐ง๐ ๐ž๐ ๐จ๐ฏ๐ž๐ซ ๐ญ๐ก๐ž ๐ฅ๐š๐ฌ๐ญ ๐๐ž๐œ๐š๐๐ž?

"In the UAE, weโ€™ve seen great progressโ€”from government support to advanced facilities. But many Arabic-speaking families still lack accessible, high-quality educational resources. Awareness in our own language remains a critical gap."

๐ŸŽ™๏ธ ๐€๐ง๐ฒ ๐ฉ๐ž๐ซ๐ฌ๐จ๐ง๐š๐ฅ ๐ข๐ง๐ข๐ญ๐ข๐š๐ญ๐ข๐ฏ๐ž๐ฌ ๐ฒ๐จ๐ฎโ€™๐ ๐ฅ๐ข๐ค๐ž ๐ญ๐จ ๐ก๐ข๐ ๐ก๐ฅ๐ข๐ ๐ก๐ญ?

"We just launched the Arabic platform 'ู‚ุงุฏุฑูˆู† ูŠุฏุงู‹ ุจูŠุฏ' (Capable, Hand in Hand), featuring educational resources from regional leaders in special education. We also run year-round workshops tailored for mothers of children with disabilities."

๐Ÿ“ข Letโ€™s continue to raise awareness, speak openly, and build systems that embrace every member of our society.

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ุฃุณุจูˆุน ู…ู‚ุฏู…ูŠ ุงู„ุฑุนุงูŠุฉ 2025: ุงู„ุงุนุชุฑุงู ุจู…ู† ูŠุญู…ู„ูˆู† ุงู„ุนุจุก ุจุตู…ุช.ู…ู† 9 ุฅู„ู‰ 15 ูŠูˆู†ูŠูˆุŒ ุงุฌุชู…ุน ุงู„ุนุงู„ู… ู„ุฅุญูŠุงุก ุฃุณุจูˆุน ู…ู‚ุฏู…ูŠ ุงู„ุฑุนุงูŠุฉ 2025...
25/06/2025

ุฃุณุจูˆุน ู…ู‚ุฏู…ูŠ ุงู„ุฑุนุงูŠุฉ 2025: ุงู„ุงุนุชุฑุงู ุจู…ู† ูŠุญู…ู„ูˆู† ุงู„ุนุจุก ุจุตู…ุช.

ู…ู† 9 ุฅู„ู‰ 15 ูŠูˆู†ูŠูˆุŒ ุงุฌุชู…ุน ุงู„ุนุงู„ู… ู„ุฅุญูŠุงุก ุฃุณุจูˆุน ู…ู‚ุฏู…ูŠ ุงู„ุฑุนุงูŠุฉ 2025 โ€” ุชุฐูƒูŠุฑ ู‚ูˆูŠ ุจุงู„ุนู…ู„ ุบูŠุฑ ุงู„ู…ุฑุฆูŠ ูˆุบูŠุฑ ุงู„ู…ุฏููˆุน ุงู„ุฐูŠ ูŠู‚ูˆู… ุจู‡ ู…ู„ุงูŠูŠู† ู…ู‚ุฏู…ูŠ ุงู„ุฑุนุงูŠุฉ ูƒู„ ูŠูˆู….

ุฃูุทู„ู‚ ู‡ุฐุง ุงู„ุฃุณุจูˆุน ููŠ ุงู„ุฃุตู„ ู…ู† ู‚ุจู„ Carers UKุŒ ูˆุชุญูˆู„ ุฅู„ู‰ ุญุฑูƒุฉ ุนุงู„ู…ูŠุฉ ุชู‚ูˆุฏู‡ุง Carers WorldwideุŒ ู„ู„ุงุนุชุฑุงู ุจู…ู‚ุฏู…ูŠ ุงู„ุฑุนุงูŠุฉ ุบูŠุฑ ุงู„ู…ุฏููˆุนูŠู† ูˆุฏุนู…ู‡ู… โ€” ุฎุงุตุฉู‹ ุฃูุฑุงุฏ ุงู„ุนุงุฆู„ุฉ ุงู„ุฐูŠู† ูŠู‚ุฏู…ูˆู† ุงู„ุฑุนุงูŠุฉ ู„ุฃุญุจุงุฆู‡ู… ู…ู…ู† ูŠุนุงู†ูˆู† ู…ู† ุฃู…ุฑุงุถ ู…ุฒู…ู†ุฉ ุฃูˆ ุฅุนุงู‚ุงุช ุฃูˆ ุญุงู„ุงุช ู…ุฑุชุจุทุฉ ุจุงู„ุชู‚ุฏู… ููŠ ุงู„ุนู…ุฑ.

ู‡ุฐุง ุงู„ุนุงู…ุŒ ู†ูˆุงุตู„ ุชุถุฎูŠู… ุฃุตูˆุงุชู‡ู… ูˆุชุณู„ูŠุท ุงู„ุถูˆุก ุนู„ู‰ ุงู„ุชุญุฏูŠุงุช ุงู„ุชูŠ ูŠูˆุงุฌู‡ูˆู†ู‡ุง.

๐Ÿ“Š ูˆูู‚ู‹ุง ู„ุงุณุชุทู„ุงุน ู…ุฑุถู‰ ุงู„ุฃุทุจุงุก ุงู„ุนุงู…ูŠู† ููŠ ุงู„ู…ู…ู„ูƒุฉ ุงู„ู…ุชุญุฏุฉ ู„ุนุงู… 2021:

๐Ÿ”ธ ู…ุง ูŠู‚ุฑุจ ู…ู† ูˆุงุญุฏ ู…ู† ูƒู„ ุฎู…ุณุฉ ู…ุดุงุฑูƒูŠู† (18.2ูช) ุนุฑู‘ููˆุง ุฃู†ูุณู‡ู… ูƒู…ู‚ุฏู…ูŠ ุฑุนุงูŠุฉ ุบูŠุฑ ู…ุฏููˆุนูŠู†.
๐Ÿ”ธ ูƒุงู† ู…ู‚ุฏู…ูˆ ุงู„ุฑุนุงูŠุฉ ุฃูƒุซุฑ ุนุฑุถุฉ ู„ู„ุดุนูˆุฑ ุจุงู„ุนุฒู„ุฉ ู…ู‚ุงุฑู†ุฉ ุจุบูŠุฑู‡ู… (18ูช ู…ู‚ุงุจู„ 14ูช).
๐Ÿ”ธ 61ูช ู…ู† ู…ู‚ุฏู…ูŠ ุงู„ุฑุนุงูŠุฉ ูŠุนูŠุดูˆู† ู…ุน ุญุงู„ุฉ ุตุญูŠุฉ ุทูˆูŠู„ุฉ ุงู„ุฃู…ุฏ โ€” ู…ู‚ุงุฑู†ุฉ ุจู€ 49ูช ู…ู† ุบูŠุฑ ู…ู‚ุฏู…ูŠ ุงู„ุฑุนุงูŠุฉ.

ูƒู…ุง ุฃู†ู‡ู… ุฃูƒุซุฑ ุนุฑุถุฉ ู„ู„ุฅุตุงุจุฉ ุจู€:

๐Ÿ”ธ ู…ุดูƒู„ุงุช ููŠ ุงู„ุตุญุฉ ุงู„ู†ูุณูŠุฉ (14ูช ู…ู‚ุงุจู„ 9ูช)
๐Ÿ”ธ ุงู„ุชู‡ุงุจ ุงู„ู…ูุงุตู„ ุฃูˆ ุขู„ุงู… ุงู„ุธู‡ุฑ ูˆุงู„ู…ูุงุตู„ (22ูช ู…ู‚ุงุจู„ 15ูช)
๐Ÿ”ธ ูˆุนู†ุฏ ุงู„ุญุฏูŠุซ ุนู† ุงู„ูˆุตูˆู„ ุฅู„ู‰ ุงู„ุฑุนุงูŠุฉ ุงู„ุตุญูŠุฉุŒ ุดุนุฑ ุนุฏุฏ ุฃู‚ู„ ู…ู† ู…ู‚ุฏู…ูŠ ุงู„ุฑุนุงูŠุฉ ุจุงู„ุฑุถุง ุนู† ุงู„ู…ูˆุงุนูŠุฏ ุงู„ุชูŠ ุญุตู„ูˆุง ุนู„ูŠู‡ุง (78ูช ู…ู‚ุงุจู„ 84ูช).

ูˆุฑุงุก ู‡ุฐู‡ ุงู„ุฅุญุตุงุฆูŠุงุช ูˆุงู‚ุน ู…ุฑูŠุฑ:
ู…ู‚ุฏู…ูˆ ุงู„ุฑุนุงูŠุฉ ูŠุชุญู…ู„ูˆู† ุฃุนุจุงุกู‹ ูƒุจูŠุฑุฉุŒ ุนู„ู‰ ุญุณุงุจ ุตุญุชู‡ู… ุงู„ุฌุณุฏูŠุฉ ูˆุงู„ู†ูุณูŠุฉ.

ูˆู…ุน ุฐู„ูƒุŒ ูƒุซูŠุฑู‹ุง ู…ุง ุชุธู„ ุฌู‡ูˆุฏู‡ู… ุบูŠุฑ ู…ุฑุฆูŠุฉ.

๐Ÿ’ก ุฃุณุจูˆุน ู…ู‚ุฏู…ูŠ ุงู„ุฑุนุงูŠุฉ ู‡ูˆ ู„ุญุธุฉ ู„ู„ุงุนุชุฑุงู ุจู‡ุคู„ุงุก ุงู„ุฃูุฑุงุฏ โ€” ูˆู‡ูˆ ุฏุนูˆุฉ ู„ู„ุชุญุฑูƒ:

๐Ÿ“ ู„ู„ุงุณุชู…ุงุน ุฅู„ู‰ ุชุฌุงุฑุจู‡ู….
๐Ÿ“ ู„ุฏุนู… ุตุญุชู‡ู… ุงู„ู†ูุณูŠุฉ ูˆุงู„ุฌุณุฏูŠุฉ.
๐Ÿ“ ู„ู„ุฏูุงุน ุนู† ุณูŠุงุณุงุช ุชุฎูู ู…ู† ุฃุนุจุงุฆู‡ู… ูˆุชูˆูุฑ ุงู„ู…ูˆุงุฑุฏ ุงู„ุชูŠ ู‡ู… ููŠ ุฃู…ุณู‘ ุงู„ุญุงุฌุฉ ุฅู„ูŠู‡ุง.

ุฅู„ู‰ ูƒู„ ู…ู‚ุฏู… ุฑุนุงูŠุฉ โ€” ุณูˆุงุก ูƒู†ุช ูˆุงู„ุฏู‹ุงุŒ ุฃุฎู‹ุง ุฃูˆ ุฃุฎุชู‹ุงุŒ ุงุจู†ู‹ุง ุฃูˆ ุงุจู†ุฉุŒ ุฌุงุฑู‹ุง ุฃูˆ ุตุฏูŠู‚ู‹ุง โ€” ู†ุฑุงูƒุŒ ู†ุดูƒุฑูƒุŒ ูˆู†ุญู† ุฅู„ู‰ ุฌุงู†ุจูƒ.

ู„ู†ูˆุงุตู„ ู‡ุฐู‡ ุงู„ู…ุญุงุฏุซุฉุŒ ู„ูŠุณ ู‡ุฐุง ุงู„ุฃุณุจูˆุน ูู‚ุทุŒ ุจู„ ุทูˆุงู„ ุงู„ุนุงู….

๐Ÿ”— ุงุนุฑู ุงู„ู…ุฒูŠุฏ:
Carers Week โ€“ carersweek.org
Carers Worldwide โ€“ carersworldwide.org
ุงุณุชุทู„ุงุน ู…ุฑุถู‰ ุงู„ู…ู…ู„ูƒุฉ ุงู„ู…ุชุญุฏุฉ 2021 โ€“ ุงู„ุชู‚ุฑูŠุฑ ุงู„ูู†ูŠ

๐‘๐ž๐Ÿ๐ฅ๐ž๐œ๐ญ๐ข๐ง๐  ๐จ๐ง ๐‚๐š๐ซ๐ž๐ซ ๐–๐ž๐ž๐ค 2025: ๐‡๐จ๐ง๐จ๐ฎ๐ซ๐ข๐ง๐  ๐ญ๐ก๐ž ๐”๐ง๐ฌ๐ž๐ž๐ง ๐๐š๐œ๐ค๐›๐จ๐ง๐ž ๐จ๐Ÿ ๐‚๐š๐ซ๐žFrom 9โ€“15 ๐‰๐ฎ๐ง๐ž, the world came together to observe ๐‚...
24/06/2025

๐‘๐ž๐Ÿ๐ฅ๐ž๐œ๐ญ๐ข๐ง๐  ๐จ๐ง ๐‚๐š๐ซ๐ž๐ซ ๐–๐ž๐ž๐ค 2025: ๐‡๐จ๐ง๐จ๐ฎ๐ซ๐ข๐ง๐  ๐ญ๐ก๐ž ๐”๐ง๐ฌ๐ž๐ž๐ง ๐๐š๐œ๐ค๐›๐จ๐ง๐ž ๐จ๐Ÿ ๐‚๐š๐ซ๐ž

From 9โ€“15 ๐‰๐ฎ๐ง๐ž, the world came together to observe ๐‚๐š๐ซ๐ž๐ซ ๐–๐ž๐ž๐ค 2025โ€”a powerful reminder of the unseen, unpaid work done by millions of carers every day.

Originally launched by Carers UK, this initiative has grown into a ๐ ๐ฅ๐จ๐›๐š๐ฅ ๐ฆ๐จ๐ฏ๐ž๐ฆ๐ž๐ง๐ญโ€”spearheaded by Carers Worldwideโ€”to acknowledge and support ๐ฎ๐ง๐ฉ๐š๐ข๐ ๐œ๐š๐ซ๐ž๐ซ๐ฌ, ๐ž๐ฌ๐ฉ๐ž๐œ๐ข๐š๐ฅ๐ฅ๐ฒ ๐Ÿ๐š๐ฆ๐ข๐ฅ๐ฒ ๐ฆ๐ž๐ฆ๐›๐ž๐ซ๐ฌ who provide care for loved ones with chronic illness, disability, or age-related conditions.

This year, we continue to amplify their voices and shed light on the challenges they face.

๐Ÿ“Š ๐€๐œ๐œ๐จ๐ซ๐๐ข๐ง๐  ๐ญ๐จ ๐ญ๐ก๐ž 2021 ๐”๐Š ๐†๐ ๐๐š๐ญ๐ข๐ž๐ง๐ญ ๐’๐ฎ๐ซ๐ฏ๐ž๐ฒ:

๐Ÿ”ธ Nearly 1 in 5 respondents (18.2%) identified as unpaid carers.
๐Ÿ”ธ Carers were more likely to feel isolated than non-carers (18% vs. 14%).
๐Ÿ”ธ 61% of carers themselves live with a long-term health conditionโ€”compared to 49% of non-carers.

They are also more likely to report conditions such as:

๐Ÿ”ธ Mental health issues (14% vs. 9%)
๐Ÿ”ธ Arthritis/back/joint problems (22% vs. 15%)
๐Ÿ”ธ And when it comes to healthcare access, fewer carers felt satisfied with the appointments they were offered (78% vs. 84%).

These statistics highlight what many of us may already suspect: ๐‚๐š๐ซ๐ž๐ซ๐ฌ ๐š๐ซ๐ž ๐ ๐ข๐ฏ๐ข๐ง๐  ๐ฌ๐จ ๐ฆ๐ฎ๐œ๐ก ๐จ๐Ÿ ๐ญ๐ก๐ž๐ฆ๐ฌ๐ž๐ฅ๐ฏ๐ž๐ฌโ€”๐จ๐Ÿ๐ญ๐ž๐ง ๐ญ๐จ ๐ญ๐ก๐ž ๐ฉ๐จ๐ข๐ง๐ญ ๐จ๐Ÿ ๐ฉ๐ž๐ซ๐ฌ๐จ๐ง๐š๐ฅ ๐ฌ๐š๐œ๐ซ๐ข๐Ÿ๐ข๐œ๐ž.

Yet too often, their efforts remain invisible.

๐Ÿ’ก Carer Week is a moment to recognise these individualsโ€”it's a call to action:

๐Ÿ“ To listen to carers' experiences.
๐Ÿ“ To support their health and wellbeing.
๐Ÿ“ To advocate for policies that ease their burden and provide resources they urgently need.

To every carer out thereโ€”๐ฐ๐ก๐ž๐ญ๐ก๐ž๐ซ ๐ฒ๐จ๐ฎ'๐ซ๐ž ๐š ๐ฉ๐š๐ซ๐ž๐ง๐ญ, ๐ฌ๐ข๐›๐ฅ๐ข๐ง๐ , ๐œ๐ก๐ข๐ฅ๐, ๐ง๐ž๐ข๐ ๐ก๐›๐จ๐ฎ๐ซ, ๐จ๐ซ ๐Ÿ๐ซ๐ข๐ž๐ง๐โ€”๐ฐ๐ž ๐ฌ๐ž๐ž ๐ฒ๐จ๐ฎ, ๐ฐ๐ž ๐ญ๐ก๐š๐ง๐ค ๐ฒ๐จ๐ฎ, ๐š๐ง๐ ๐ฐ๐ž ๐ฌ๐ญ๐š๐ง๐ ๐ฐ๐ข๐ญ๐ก ๐ฒ๐จ๐ฎ.

Letโ€™s keep the conversation going, not just this weekโ€”but all year round.

๐Ÿ”— Learn more:

Carers Week โ€“ carersweek.org

Carers Worldwide โ€“ carersworldwide.org

UK GP Patient Survey 2021 โ€“ Technical Report

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21/03/2025

Join us at the session ๐๐ฌ๐ฒ๐œ๐ก๐จ๐ฌ๐จ๐œ๐ข๐š๐ฅ ๐‚๐ก๐š๐ฅ๐ฅ๐ž๐ง๐ ๐ž๐ฌ ๐ข๐ง ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ on the second day (Friday, 18 April 2025) of the ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ 2025, Abu Dhabi, 17โ€“20 April 2025.

Topics will cover innovative ๐ฉ๐ฌ๐ฒ๐œ๐ก๐ข๐š๐ญ๐ซ๐ข๐œ ๐œ๐š๐ซ๐ž, ๐ฉ๐ฌ๐ฒ๐œ๐ก๐จ๐ฌ๐จ๐œ๐ข๐š๐ฅ ๐ข๐ฆ๐ฉ๐š๐œ๐ญ ๐จ๐ง ๐œ๐ก๐ข๐ฅ๐๐ซ๐ž๐ง ๐š๐ง๐ ๐š๐๐จ๐ฅ๐ž๐ฌ๐œ๐ž๐ง๐ญ๐ฌ, ๐ญ๐ก๐ž ๐ซ๐จ๐ฅ๐ž ๐จ๐Ÿ ๐ญ๐ž๐š๐œ๐ก๐ž๐ซ๐ฌ ๐š๐ง๐ ๐ฉ๐š๐ซ๐ž๐ง๐ญ๐ฌ ๐ข๐ง ๐ฌ๐ฎ๐ฉ๐ฉ๐จ๐ซ๐ญ, ๐š๐ง๐ ๐š๐๐๐ซ๐ž๐ฌ๐ฌ๐ข๐ง๐  ๐ž๐ฆ๐จ๐ญ๐ข๐จ๐ง๐š๐ฅ ๐ง๐ž๐ž๐๐ฌ ๐ข๐ง ๐œ๐ก๐ข๐ฅ๐๐ซ๐ž๐ง ๐ฐ๐ข๐ญ๐ก ๐ซ๐š๐ซ๐ž ๐๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ.

For more information and registration: www.menararediseases.com

Only 1 ๐ฆ๐จ๐ง๐ญ๐ก to go until the ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ 2025!Join us from 17-20 April 2025, at Beach Rotana Hotel, ...
18/03/2025

Only 1 ๐ฆ๐จ๐ง๐ญ๐ก to go until the ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ 2025!

Join us from 17-20 April 2025, at Beach Rotana Hotel, Abu Dhabi and don't miss the opportunity to be part of the ๐ฅ๐š๐ซ๐ ๐ž๐ฌ๐ญ ๐ซ๐š๐ซ๐ž ๐๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ ๐ž๐ฏ๐ž๐ง๐ญ ๐ข๐ง ๐ญ๐ก๐ž ๐ซ๐ž๐ ๐ข๐จ๐ง!

For more information and registration: www.menararediseases.com

Join us at the 1๐ฌ๐ญ ๐Œ๐„๐๐€ ๐’๐ฎ๐ฆ๐ฆ๐ข๐ญ ๐Ÿ๐จ๐ซ ๐€๐ฎ๐ญ๐ข๐ฌ๐ฆ ๐š๐ง๐ ๐๐ž๐ฎ๐ซ๐จ๐๐ข๐ฏ๐ž๐ซ๐ ๐ž๐ง๐œ๐ž taking place on the first day (Thursday, 17 April 2025) of...
17/03/2025

Join us at the 1๐ฌ๐ญ ๐Œ๐„๐๐€ ๐’๐ฎ๐ฆ๐ฆ๐ข๐ญ ๐Ÿ๐จ๐ซ ๐€๐ฎ๐ญ๐ข๐ฌ๐ฆ ๐š๐ง๐ ๐๐ž๐ฎ๐ซ๐จ๐๐ข๐ฏ๐ž๐ซ๐ ๐ž๐ง๐œ๐ž taking place on the first day (Thursday, 17 April 2025) of the ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ 2025, Abu Dhabi, 17โ€“20 April 2025.

Topics will cover ๐ง๐ž๐ฎ๐ซ๐จ๐๐ข๐ฏ๐ž๐ซ๐ฌ๐ข๐ญ๐ฒ, ๐Ÿ๐จ๐ฌ๐ญ๐ž๐ซ๐ข๐ง๐  ๐ง๐ž๐ฎ๐ซ๐จ๐ข๐ง๐œ๐ฅ๐ฎ๐ฌ๐ข๐ฏ๐ž ๐ฌ๐ฉ๐š๐œ๐ž๐ฌ, ๐ง๐ž๐ฎ๐ซ๐จ๐š๐Ÿ๐Ÿ๐ข๐ซ๐ฆ๐ข๐ง๐  ๐š๐ฉ๐ฉ๐ซ๐จ๐š๐œ๐ก๐ž๐ฌ, ๐š๐ฎ๐ญ๐ข๐ฌ๐ฆ ๐ซ๐ž๐ฌ๐ž๐š๐ซ๐œ๐ก, ๐€๐ƒ๐‡๐ƒ, ๐š๐ง๐ ๐ฉ๐ž๐ซ๐ฌ๐จ๐ง๐š๐ฅ ๐ฃ๐จ๐ฎ๐ซ๐ง๐ž๐ฒ๐ฌ ๐จ๐Ÿ ๐ง๐ž๐ฎ๐ซ๐จ๐๐ข๐ฏ๐ž๐ซ๐ ๐ž๐ง๐ญ ๐ข๐ง๐๐ข๐ฏ๐ข๐๐ฎ๐š๐ฅ๐ฌ.

For more information and registration: www.menararediseases.com

Join us at the 1๐ฌ๐ญ ๐Œ๐„๐๐€ ๐’๐ฎ๐ฆ๐ฆ๐ข๐ญ ๐Ÿ๐จ๐ซ ๐‡๐ž๐ฆ๐จ๐ ๐ฅ๐จ๐›๐ข๐ง๐จ๐ฉ๐š๐ญ๐ก๐ข๐ž๐ฌ that takes place on the first day (Thursday, 17 April 2025) of the...
17/03/2025

Join us at the 1๐ฌ๐ญ ๐Œ๐„๐๐€ ๐’๐ฎ๐ฆ๐ฆ๐ข๐ญ ๐Ÿ๐จ๐ซ ๐‡๐ž๐ฆ๐จ๐ ๐ฅ๐จ๐›๐ข๐ง๐จ๐ฉ๐š๐ญ๐ก๐ข๐ž๐ฌ that takes place on the first day (Thursday, 17 April 2025) of the the ๐Œ๐„๐๐€ ๐‚๐จ๐ง๐ ๐ซ๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐‘๐š๐ซ๐ž ๐ƒ๐ข๐ฌ๐ž๐š๐ฌ๐ž๐ฌ 2025, Abu Dhabi, 17-20 April 2025

Topics include:
- ๐๐ž๐ฐ ๐ญ๐ก๐ž๐ซ๐š๐ฉ๐ข๐ž๐ฌ ๐Ÿ๐จ๐ซ ๐›๐ž๐ญ๐š-๐ญ๐ก๐š๐ฅ๐š๐ฌ๐ฌ๐ž๐ฆ๐ข๐š
- ๐”๐ง๐๐ž๐ซ๐ฌ๐ญ๐š๐ง๐๐ข๐ง๐  ๐š๐ฅ๐ฉ๐ก๐š-๐ญ๐ก๐š๐ฅ๐š๐ฌ๐ฌ๐ž๐ฆ๐ข๐š
- ๐ˆ๐ง๐ง๐จ๐ฏ๐š๐ญ๐ข๐ฏ๐ž ๐ญ๐ซ๐ž๐š๐ญ๐ฆ๐ž๐ง๐ญ๐ฌ ๐Ÿ๐จ๐ซ ๐ฌ๐ข๐œ๐ค๐ฅ๐ž ๐œ๐ž๐ฅ๐ฅ ๐๐ข๐ฌ๐ž๐š๐ฌ๐ž
- ๐€๐๐ฏ๐š๐ง๐œ๐ž๐ฆ๐ž๐ง๐ญ๐ฌ ๐ข๐ง ๐ก๐ž๐ฆ๐จ๐ ๐ฅ๐จ๐›๐ข๐ง๐จ๐ฉ๐š๐ญ๐ก๐ข๐ž๐ฌ ๐ข๐ง ๐ญ๐ก๐ž ๐”๐€๐„ ๐š๐ง๐ ๐›๐ž๐ฒ๐จ๐ง๐

For more information and registration: www.menararediseases.com

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