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taiba rare

Taiba Rare is dedicated to making life better for people with rare diseases in the MENA region.

31/03/2026

Lipodystrophy is a rare disorder characterized by abnormal or absent body fat distribution. It may be genetic or acquired and can lead to serious metabolic complications such as insulin resistance, diabetes, and high triglyceride levels.

Because fat tissue plays a vital role in hormone regulation and metabolism, its absence disrupts the body’s balance. Patients may experience visible physical changes along with metabolic disturbances that require lifelong medical management.

On , we raise awareness about early diagnosis and comprehensive care for individuals living with this rare metabolic condition.

05/03/2026

Trisomy is a genetic condition that occurs when a person has three copies of a chromosome instead of two, leading to developmental and medical challenges. The most well-known form is Trisomy 21 (Down Syndrome), but other types such as Trisomy 13 and Trisomy 18 are rarer and often associated with more complex health concerns. These conditions arise due to chromosomal nondisjunction during cell division.

Individuals with trisomy may experience intellectual disabilities, congenital heart defects, feeding difficulties, and varying developmental delays. However, the impact differs greatly depending on the type of trisomy and the individual. Early intervention programs, medical monitoring, and supportive therapies significantly improve quality of life and long-term outcomes.

Raising awareness during promotes understanding, inclusion, and early diagnosis. Through education and community support, we can advocate for better healthcare access and social inclusion for families affected by .

22/02/2026

في ذكرى يوم التأسيس السعودي نستحضر بفخر الجذور الراسخة التي بدأت مع تأسيس الدولة السعودية الأولى على يد الإمام محمد بن سعود عام 1727م، لتشكل انطلاقة تاريخية لوطنٍ قام على الوحدة والاستقرار والهوية المتجذرة.

15/02/2026

Duchenne Muscular Dystrophy ( ) is a severe genetic muscle disorder caused by the absence of dystrophin, a protein essential for muscle strength and stability. Symptoms usually appear in early childhood with progressive muscle weakness.

As the disease advances, individuals may experience loss of mobility, respiratory complications, and cardiac involvement, requiring coordinated multidisciplinary care.

People with this condition typically live into early adulthood, though life expectancy varies. Advances in treatment and supportive care have helped many live longer than once expected.

DMD Awareness Week focuses on early diagnosis, supportive management, and ongoing research efforts aimed at improving survival and quality of life.

09/02/2026

SCN8A-related disorders ( ) are rare genetic neurological conditions caused by mutations affecting sodium channels in the brain. These mutations often lead to early-onset epilepsy, developmental delay, and movement abnormalities.

Symptoms that may suggest SCN8A-related epilepsy include seizures beginning in infancy or early childhood, especially when combined with intellectual disability, autism spectrum disorder, or movement disorders. Seizure onset is typically from birth to 18 months with an average age of onset of 4-5 months.

Seizures associated with SCN8A can be severe and difficult to control, significantly impacting cognitive development and quality of life. Early diagnosis through genetic testing is essential for personalized care planning.

08/02/2026

Living with means managing a rare, inherited disorder of copper metabolism in which the body is unable to properly eliminate excess copper. Over time, copper accumulates in vital organs leading to progressive damage. The disease can present at any age, often with highly variable symptoms, ranging from unexplained liver disease in children to neurological or psychiatric manifestations in adolescents and adults, making diagnosis particularly complex.

Wilson disease may cause chronic hepatitis, cirrhosis, tremors, difficulty with speech and movement, mood changes, or cognitive decline. One of its hallmark signs is the Kayser–Fleischer ring, a copper deposit visible in the cornea.

Living with Wilson disease requires lifelong treatment and monitoring. Chelating agents and zinc therapies are used to reduce copper accumulation and prevent further toxicity, while regular liver function tests and neurological assessments help track disease progression. With early diagnosis, strict treatment adherence, and continuous follow-up, many individuals can lead full and productive lives.

01/02/2026

is a group of infections caused by Aspergillus fungi, which are commonly found in the environment. While most people inhale these spores without harm, individuals with weakened immune systems or underlying lung disease may develop serious complications.

The condition can range from allergic reactions to chronic pulmonary infection or invasive disease affecting multiple organs. Symptoms may include persistent cough, shortness of breath, chest pain, and fatigue, often making diagnosis challenging.

World Aspergillosis Day highlights the importance of early recognition, accurate diagnosis, and improved access to specialized care for patients facing this potentially life-threatening condition.

22/01/2026

is a rare congenital neurological condition characterized by facial paralysis and limited eye movement. It results from underdevelopment of specific cranial nerves, affecting facial expression, speech, feeding, and eye coordination from birth.

Individuals with Moebius Syndrome may face challenges related to communication, social interaction, and motor development, despite having normal intelligence. Early intervention, speech therapy, and supportive care play a crucial role in improving functional outcomes.

19/01/2026

Alternating Hemiplegia of Childhood ( ) is an ultra-rare neurological condition that typically begins before 18 months of age. It is characterized by recurrent episodes of temporary paralysis affecting one or both sides of the body, often accompanied by abnormal eye movements, seizures, and developmental delays.

AHC episodes can be unpredictable and triggered by stress, temperature changes, or fatigue, significantly impacting daily life for both patients and caregivers. Between episodes, individuals may experience ongoing motor and cognitive challenges.

While currently there is no cure for AHC, there is active research on new kinds of therapies. These new therapies could potentially have major impacts on the symptoms and quality of life of these patients.

13/01/2026

Ehlers-Danlos Syndromes ( ) are a group of rare genetic connective tissue disorders that affect collagen production. Collagen plays a critical role in providing strength and flexibility to skin, joints, blood vessels, and organs, making EDS a multi-system condition.

Common features include joint hypermobility, fragile or stretchy skin, chronic pain, and frequent joint dislocations. Some subtypes can involve serious complications such as vascular fragility or organ rupture, making early recognition and subtype identification extremely important.

Healthcare providers classify EDS into 13 types based on where it affects and the symptoms

05/01/2026

is a rare, inherited neurodegenerative disorder that affects movement, cognition, and behavior. It is caused by a genetic mutation that leads to progressive damage of nerve cells in the brain, usually appearing in adulthood. Because symptoms develop gradually, early signs are often overlooked or misinterpreted.

People living with Huntington’s may experience involuntary movements, difficulty with coordination, changes in mood, and cognitive decline over time. The condition affects not only individuals but entire families, as it carries a 50% inheritance risk for children of an affected parent. Emotional, psychological, and social support is essential throughout the disease journey.

Huntington's disease cannot currently be prevented. There's currently no cure for Huntington's disease and no treatments that can stop the symptoms getting worse. Raising awareness helps promote early diagnosis, genetic counseling, and better support systems for families affected by Huntington’s Disease.

29/12/2025

Hunter Syndrome, medically known as , is a rare inherited metabolic disorder caused by the absence or deficiency of a specific enzyme responsible for breaking down complex sugars in the body. When this enzyme is missing, these substances accumulate in cells, tissues, and organs, leading to progressive health complications.

This condition primarily affects boys and is passed down through families in an X-linked pattern. Symptoms usually begin in early childhood and gradually worsen over time, affecting multiple systems including the skeletal structure, respiratory system, heart, and sometimes the nervous system.

Raising awareness about is essential for improving understanding of , supporting early diagnosis, and encouraging timely referral to specialized care centers.

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Dubai

Opening Hours

Monday	08:00 - 17:00
Tuesday	08:00 - 17:00
Wednesday	08:00 - 17:00
Thursday	08:00 - 17:00
Sunday	08:00 - 17:00

Website

https://taibarare.com/

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Dr Tarek Sultan
Dubai Healthcare City

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