Pulmonary Hypertension Association Europe

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Pulmonary Hypertension Association Europe

PHA Europe is the European umbrella organization for pulmonary hypertension. PHA Europe has 40 member associations from 33 European countries.
(1)

It was founded in 2003 and is registered in Vienna, Austria, as an international non-profit organization.

12/01/2026

💜 🖤 PHAEurope pays tribute to Denneys Niemandt, founder of the PH Association of South Africa, a PH patient, and a global leader and patient advocate from South Africa.

Denneys Niemandt was a pioneer, advocate, and tireless fighter for people living with pulmonary hypertension in South Africa. Diagnosed in 2006 after years of unexplained symptoms and misdirection, he faced the frightening reality of PH while fearing he might not live to see his children grow up. At the time of his diagnosis he was only one of ten known cases of PH in South Africa. Instead of retreating, Denneys chose to act. In 2008, he founded the Pulmonary Hypertension Association of South Africa, becoming a leading voice in a region where PH was little known, underdiagnosed, and often misunderstood. He fought relentlessly for access to proper medication, greater awareness among healthcare professionals, and the recognition of key contributors in Africa such as HIV-related PH. He also pushed for the creation of a national PH registry, understanding that data and visibility are essential for change.

Even when cancer forced him to step down from formal leadership, Denneys never stopped advocating. His strength, persistence, and compassion left a lasting mark on patients, families, and the wider PH community. Denneys will be remembered for his courage, his commitment to justice in healthcare, and his unwavering belief that every PH patient deserves to be seen, diagnosed early, and treated with dignity.

PHAEurope extends its sincere condolences to Denney’s family, loved ones, and the entire PH community of South Africa.🖤

Pulmonary Hypertension Association of South Africa

09/01/2026

Without You, There Would Be No Us 💙

From Ukraine, a pulmonary hypertension (PH) patient shares a message of deep gratitude to a healthcare professional whose dedication goes far beyond clinical care.

Dr. Valentyna Khanenova
A PH patient from Ukraine, Iryna, expresses her sincere thanks to her cardiologist and PH doctor, Dr. Valentyna Khanenova. Iryna, who works at the Center for Pediatric Cardiology and Cardiac Surgery, shares that Dr. Khanenova is always by her side—offering daily support, guidance, and recommendations that give her strength and confidence not to give up. She is deeply grateful for Dr. Khanenova’s professional expertise, compassion, kindness, and friendship.

Stories like this remind us that healthcare professionals play a vital role not only in treatment, but in empowering patients to continue forward with hope and resilience.

Without you, there would be no us. 💙

ВГО "Асоціація хворих на легеневу гіпертензію"

07/01/2026

from Spain 🇪🇸💙
On behalf of PHAEurope, we warmly congratulate FCHP - Fundación Contra la Hipertensión Pulmonar on the successful organization of the VII Training Days for Patients with Pulmonary Hypertension.

The event brought together patients, families, and healthcare professionals in a collaborative setting to exchange knowledge, experiences, and support. Key topics included pulmonary hypertension, emerging treatments, genetics, and the importance of clinical trials, with contributions from Matt Granato (PHA USA) and Dr. Alejandro Cruz (HU October 12).

The programme also included sessions on nutrition led by Silvia Garcia, and a psychology workshop facilitated by Rocío Cuenca Tejada, providing emotional support and fostering patient empowerment. In addition, participants contributed to ongoing complete genome studies at HU La Paz, supported by FCHP funding.

This initiative exemplifies the value of education, collaboration, and community in advancing care and improving outcomes for patients with pulmonary hypertension. We extend our gratitude to all organizers, collaborators, and participants for their commitment.

💙 Together, we continue to move forward.

https://www.facebook.com/share/p/17en83RgAc/

Fundación Contra la Hipertensión Pulmonar

06/01/2026

Without You, There Would Be No Us 💙

From North Macedonia, our member association Moment Plus shares a heartfelt message of gratitude to the individuals and community partners whose long-standing commitment has profoundly strengthened the pulmonary hypertension (PH) community. Their support, expertise, and solidarity continue to make a meaningful difference in the lives of patients and families.

Valentina Uzunova🙏
Moment Plus extends sincere thanks to Valentina Uzunova for many years of unwavering support, encouragement, and kindness. Her dedication and generosity have left an enduring mark on the PH community and will always be remembered with deep appreciation.

Dr. Ivan Milev🙏
With heartfelt gratitude, Moment Plus acknowledges Dr. Ivan Milev, who has been part of this journey from the very beginning. His continued dedication, medical expertise, and compassionate care have been essential in supporting patients throughout the years.

Athletic Club 7mi Noemvri Gevgelija🙏
Moment Plus also expresses its sincere appreciation to Athletic Club 7mi Noemvri Gevgelija for their continuous support. By running for PH and raising awareness, they have played an important role in inspiring solidarity and increasing visibility for pulmonary hypertension within the wider community.

These contributions remind us that progress is built together.
Without you, there would be no us. 💙

Pulmonary Hypertension r.Macedonia Moment Plus

05/01/2026

First two episodes of the PVRI’s 11-part empowerment series to support people living with pulmonary hypertension (PH), their families, and carers 💪📣

🔎 Theme 1: Understanding PH & Its Treatment – Sandeep Sahay, Associate Professor, Houston Methodist

Sandeep Sahay explains what pulmonary hypertension is, how it affects the body, and why early diagnosis and personalised treatment matter. Prepare for appointments by writing down questions, seek reliable information from patient associations and trusted sources, and explore clinical trials with your doctor. Clear knowledge empowers patients and strengthens conversations with healthcare teams.

🔎 Theme 2: Psychological Support & Mental Wellbeing – Lynsay MacDonald, Research Nurse, Great Ormond Street Hospital, London

Lynsay MacDonald highlights the impact of PH on mental and emotional wellbeing. Feeling anxious or overwhelmed is normal, but seeking help from psychologists, counsellors, or support groups is crucial. Coping strategies like mindfulness, meditation, and relaxation exercises can help, and involving family ensures everyone affected receives support.

You don’t have to face pulmonary hypertension alone — and you don’t have to do it all at once.

➡Explore the series and be empowered: https://pvrinstitute.org/pulmonary-hypertension/how-empower-yourself-others

💜Thank you, PVRI, for this important series and valuable resource for the PH community. PH patients are not powerless.

Pulmonary Vascular Research Institute (PVRI)

02/01/2026

As we enter 2026, we at PHAEurope want to thank the incredible PH patients who took part in our Without You There Would Be No Us campaign 2025. By sharing their gratitude for the doctors, carers, associations, organizations, researchers, friends, and supporters who stood by them, they reminded us all of the power of compassion, dedication, and love in moments of need.

Your courage, your voice, and your willingness to honor those who care for you inspire hope for everyone living with PH. Without you, the world would be far less joyful, far less bright, and thanks to all PH patients and advocates, the path for those newly diagnosed becomes much easier and brighter.

Thank you for shining a light on the people who make our lives, and our community - possible. 💙

31/12/2025

🎉✨ Welcome, 2026 a year we step into together 🌟

To our extraordinary PH community and PHamily 💙

A new year does not erase the challenges behind us, but it gives us something just as powerful: the courage to continue. In 2026, we carry forward the voices, stories, and strength that unite us, patients, families, caregivers, clinicians, and advocates standing side by side.

May this year bring steadier breaths, renewed hope, and moments of light even on the hardest days. Together, we will keep raising awareness, demanding progress, supporting one another, and moving step by step toward a future where pulmonary hypertension no longer defines lives.

Thank you for your trust, your resilience, and your unwavering presence. Because of you, this community is not just surviving, it is shaping change.

Here’s to 2026: a year of compassion in action, courage in community, and hope turned into impact. 💪💙

30/12/2025

💙 A Story of Mission, Miracles & Voice 💙

During Christmas and as we approached the New Year, December Tales of the Miracle by Terra Cultura shared inspiring real-life stories—including Natalia Maeva, PHAEurope board member and pulmonary hypertension advocate.

Natalia’s life was saved by a lung transplant, a miracle she now carries forward by fighting for access to transplantation in Bulgaria and for all PH patients around the world. Natalia explains that her name comes from Latin and means “born with a mission.” For a long time, she wondered what that mission might be. Today, she knows: to be a voice for those who can’t speak, to open doors long closed, and to remind us all that hope and resilience matter.

“Going through a lung transplant is an incredible experience. What I received as a gift from fate must be passed on to others who need it,” Natalia says.

Today, she breathes. And as long as she breathes, she fights - for life, for patients, for miracles. 💙 Thank you, Natalia, for all that you do, and for reminding us to believe in miracles. 💙

➡Read her full story: https://bit.ly/3YhU60P

26/12/2025

from Serbia 🇷🇸💙

December brought encouraging moments for the PH community in Serbia, highlighting both patient empowerment and medical progress.

On 13 December 2025, an information day for PH patients was held in Belgrade, bringing together patients and healthcare professionals in an open, supportive setting. The meeting enabled valuable exchange of information, discussion of next steps for the patient association, and continued joint work on a petition to improve access to PH treatments—another important step in strengthening patient advocacy.

In parallel, members of the community attended the inspiring MSD event “Discoveries Forever”, dedicated to medical innovations that change lives. Prof. Dr Arsen Ristić reflected on how far pulmonary hypertension care has come, highlighting major advances in diagnostics and treatment, and the growing impact of innovative therapies. The message was clear: sustained scientific progress is translating into better outcomes and quality of life for patients.

These moments together remind us that collaboration, knowledge-sharing, and innovation are driving real hope for people living with PH.

Organizacija Plućna hipertenzija Srbija - PH Serbia

24/12/2025

Without You, There Would Be No Us 💙

Ayala Rozental, PH patient – Israel

In life, we sometimes meet heroes who change everything.
I’m fortunate to have more than one.

Dr. Rok from HaEmek Hospital was the one who looked deeper and didn’t give up until he discovered I had scleroderma and pulmonary hypertension. Because of him, I began to understand what I was facing—and how to fight it.

Professor Alexandra Balbir from Rambam Hospital walks this journey with me with extraordinary wisdom and compassion.

And then there is Professor Adir Yochai, my lung specialist—my miracle worker. Because of him, I quite literally got my breath back.

Finally, Aryeh. Even while walking the hardest path alongside his wife’s illness, he never stops giving—to other patients, to this community, to all of us. That kind of strength and generosity never goes unnoticed.

Without you, there would be no us.

Pulmonary Hypertension Israel העמותה הישראלית ליתר לחץ דם ריאתי

23/12/2025

As we approach the final days of 2025, we look back on a year full of experiences and cherished memories that guide us with optimism, strength and positivity into the year ahead.✨🎄🌟

As always, PHAEurope would like to thank all our member associations, partners, sponsors, friends, and PH patients worldwide. We are deeply grateful for your support, collaboration, and trust in our community and PHamily. Above all, we are encouraged and motivated by the ever-growing strength and hope of our PH community.

May this holiday season bring you peace, joy, and cherished moments with your loved ones, and may the New Year 2026 be filled with health, success, and new opportunities as we continue to advance together in the fight against pulmonary hypertension. 🎉

Thank you for being part of our story and for making a difference with us. 🙏

United, PH patients are not powerless.💪
PHAEurope Team

22/12/2025

from Austria 🇦🇹👏

Science Meets Fun

PH Austria came up with something special for our young members. The target group was individuals between 17 and 30 years of age, who were welcome to attend with a companion.

We invited Associate Professor Dr. Christina Binder from the Cardiology Department of Vienna General Hospital (AKH Wien) to give a lecture on the topic “Understanding Echocardiography.” This was followed by an open Q&A session where all remaining questions could be addressed. The lecture was so well received that plans for another meeting next year are already underway.👈

During the subsequent lunch, participants had the opportunity to get to know one another better.

The event took place at Hotel Wimberger, a venue already well acquainted with the needs of our special guests.

🌟Afterwards, it was time for fun: we deliberately chose the date to coincide with the Comic Con Vienna that weekend. Equipped with VIP tickets, our young participants were able to experience stars such as Jamie Campbell Bower and Elijah Wood up close—and, of course, take plenty of photos.

We would like to sincerely thank MSD for their support, which gave our young members valuable insights into their hearts and an afternoon during which they could, for a while, forget about their condition.

Lungenhochdruck Austria

Adresse

Wilhelmstrasse 19
Wien
1120

Telefon

+4314023725

Webseite

http://www.phaeurope.org/

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