HERAQoL

25/05/2025

EndoChill Trial

16/05/2025

Really interesting research from the UK Verity - PCOS Charity

28/04/2025

Hear how Finland’s exceptional health data system is unlocking new insights into endometriosis. This talk delves into a nationwide study of nearly 50,000 women, revealing striking trends in diagnosis and treatment over 25 years. It’s a compelling look at how big data can transform our understanding of women’s health.

Get tickets on Humanitix - Finnish Registry Studies in Endometriosis - Prof Oskari Heikinheimo hosted by Robinson Research Institute. Room 4050a/b, Level 4, AHMS Building, 4 North Terrace, Adelaide SA 5000, Australia. Wednesday 28th May 2025. Find event information.

18/04/2025

Please help us in the final stage of our developing a new quality of life tool for PCOS - the HERAQoL-P.
We are looking for women with PCOS aged 18 Years and over with PCOS. This study looks at refining and helping to validate this questionnaire so it can be used in community, clinical settings and future PCOS research. This study should take approximately 20 minutes to complete and is completely voluntary. We would love you to complete the survey now, and again in 2 weeks. Thanks for your help.
Please find the survey here:
https://redcap.link/fg8qgeva
HREC Approval Protocol H-2021-153
Robinson Research Institute

17/04/2025

Help us understand how PCOS is impacting your life through this quick 10 min survey!

Please use the QR code below

25/02/2025

Are there any you girls out there with PCOS who would like to be part of an amazing research study at the WCH?

Adolescent females diagnosed with polycystic o***y syndrome (PCOS)
needed for a research study looking at
whether meditation improve quality of life in adolescents with PCOS
If you are a female aged 12-22 years and diagnosed with PCOS, you can help us with this study in Adelaide evaluating a simple strategy to improve quality of life in adolescents with PCOS.
This study has been approved by the Women’s and Children’s Health Network Human Research Ethics Committee (HREC/18/WCHN/168), Adelaide, South Australia.
If you are interested in finding out more information about this research, please contact Dr Alexia Peña (paediatric endocrinologist) on 8161 8134 or via email alexia.pena@adelaide.edu.au

21/12/2024

My favourite song too!

20/12/2024

Exciting news - we have started developing the HERAQoL tool for Endometriosis and we are delighted to announce that our hounours student Rachel Hosking was accepted to present a poster at the World Congress of Endometriosis to be held here in Australia next year. Well done

06/12/2024

Here is another opportunity to be involved in endometriosis research in SA.
Do you or someone you know in Adelaide experience ? If so, we need your help! 🌱❄️
We’re now recruiting for The EndoChill Trial, a pilot study investigating how a novel combination of breathwork, meditation, and cold-water therapy (ice baths!) can help alleviate endometriosis pain and improve other symptoms.
Who can participate?
✅ Adults (18+) in South Australia with a confirmed or suspected diagnosis of endometriosis
✅ Regular pelvic pain and other endometriosis symptoms
✅ Visible endometriosis lesions on ultrasound (we can assist if unknown)
What’s involved?
🌐 Baseline data collection (symptom tracking, ultrasound, blood tests, surveys)
🌬️ Intervention phase: learning breathwork, meditation, and cold immersion techniques, plus continued symptom tracking
❄️ Follow-up phase: ongoing practice, tracking, and final assessments
This is a unique opportunity to contribute to important research aiming to uncover a drug-free method of managing endometriosis pain. Help us spread the word across your networks—together we can drive meaningful change!
For more information and to register interest:
👉 Visit our study page on EndoZone: https://lnkd.in/g4bjQxZE
👉 Email the EndoChill Study Coordinators at: endochill@adelaide.edu.au
👉 Complete our screening questionnaire: https://lnkd.in/g5XzfWVX
Please share this post with anyone in Adelaide who might benefit. Let’s help shape a future with better, more accessible treatments for endometriosis. 🌸❄️

This link will take you to a page that’s not on LinkedIn

11/11/2024

If anyone takes weight loss drugs, here is an interesting study from our colleagues https://www.facebook.com/share/15ZCoP2JW6/

04/10/2024

Madeleine Burgess says she's spent the majority of her life "feeling really unfeminine". Diagnosed with PCOS in her early teens, she says managing excess hair growth, a common symptom, is expensive and embarrassing.