Brain Tumour Research SA

13/01/2026

𝗣𝗕𝗔𝗖 𝘁𝗼 𝗰𝗼𝗻𝘀𝗶𝗱𝗲𝗿 𝘃𝗼𝗿𝗮𝘀𝗶𝗱𝗲𝗻𝗶𝗯 𝗳𝗼𝗿 𝗣𝗕𝗦 𝗹𝗶𝘀𝘁𝗶𝗻𝗴 – 𝗠𝗮𝗿𝗰𝗵 𝟮𝟬𝟮𝟲
𝗦𝘂𝗯𝗺𝗶𝘀𝘀𝗶𝗼𝗻𝘀 𝗰𝗹𝗼𝘀𝗲: 𝟮𝟭 𝗝𝗮𝗻𝘂𝗮𝗿𝘆 𝟮𝟬𝟮𝟲

The Pharmaceutical Benefits Advisory Committee (PBAC) will consider vorasidenib for potential PBS listing at its March 2026 meeting.

For people living with IDH-mutant glioma, access to effective treatments can be life-changing. Personal perspectives help PBAC better understand the real-world impact of brain cancer and the importance of timely, affordable access to new therapies.

The NRF encourages patients, carers, and families to contribute.

If you or someone you support has experience with vorasidenib—or would benefit from access to it—your insight can help inform this decision!

https://shorturl.at/W5YbP

11/01/2026

https://www.facebook.com/share/p/1C4ZgQXXEJ/

PBAC will consider vorasidenib for PBS listing at its March 2026 meeting.

If you or someone you care for has been affected by an IDH-mutant glioma, your story can make a real difference. Personal experiences help the Committee understand what life is really like with brain cancer, and what access to treatment could mean.

BTAA are submitting consumer comments on behalf of our community and we invite you to amplify our voice. Tell the committee how vorasidenib has helped you or your loved one, or what you HOPE it could change.

🗓️ Submissions close 21 January 2026
💻 Share your comment here: https://ohta-consultations.health.gov.au/ohta/pbac-march-2026/

Your voice matters. Every story helps shape access to life-changing treatments.

23/12/2025

As 2025 draws to a close, we want to extend our heartfelt thanks to everyone who has supported the NRF this year — our researchers, donors, partners and community.

Together, we're advancing neurosurgical research and making a real difference in people’s lives.

This year brought exciting progress, innovative projects and powerful collaborations. Your ongoing support makes it all possible.

We’re looking forward to an even bigger 2026 filled with discovery, breakthroughs and impact.

Wishing you and your loved ones a joyful Christmas and a safe, happy New Year 🎁💫

17/12/2025

𝗚𝗶𝗳𝘁 𝗮 𝗟𝗮𝘀𝘁𝗶𝗻𝗴 𝗟𝗲𝗴𝗮𝗰𝘆 𝘁𝗵𝗶𝘀 𝗖𝗵𝗿𝗶𝘀𝘁𝗺𝗮𝘀

This Christmas, give a gift that goes beyond the season and creates a legacy of hope. By including the NRF in your Will, you’ll help fund vital medical research, support people affected by neurosurgical conditions, and contribute to groundbreaking discoveries that save lives.

Planning your Will is simple and can take as little as 15 minutes. Create an online Will today with Willed and support the NRF.

https://www.nrf.com.au/gifts-in-wills

12/12/2025

𝗗𝗲𝗱𝗶𝗰𝗮𝘁𝗲 𝗮 𝗦𝘁𝗮𝗿 𝗼𝗳 𝗛𝗼𝗽𝗲 𝘁𝗵𝗶𝘀 𝗖𝗵𝗿𝗶𝘀𝘁𝗺𝗮𝘀 🌟

Give the gift of hope to those affected by brain and spinal conditions.

By dedicating a Star of Hope, you’re helping fund life-changing research — leading to better treatments, earlier diagnoses, and brighter futures.

Every star shines in honour of someone special, and every donation brings us closer to breakthroughs that could transform lives.

Make a difference this festive season 💛

09/12/2025

𝗢𝘂𝗿 𝗡𝗘𝗪 𝗕𝗿𝗮𝗶𝗻 𝗦𝗼𝗰𝗸𝘀 𝗮𝗿𝗲 𝗵𝗲𝗿𝗲 🧠💙

Bright, comfy, and impossible to ignore, our new blue design is made to support Brain Research in South Australia.

Grab a pair today for $20, including postage in Australia:
https://nrf.supporterhub.net.au/events/brain-socks

Step up, stand out, and make a difference!

08/12/2025

Australian kids and adults with complex cancers are still being sent overseas for proven, life-saving proton therapy. The Bragg Centre in Adelaide is ready to go; the building and bunker are finished, clinical teams are preparing, yet the machine still hasn’t been procured. Families are running out of time.

We need the government to prioritise proton therapy now, especially for children, and activate Australia’s first treatment site without further delays.

Please sign and share the petition. 🙏

Australians Need Proton Therapy Here at Home

07/12/2025

Happy International Volunteer Day! Today we’re celebrating the incredible people who keep our community thriving. Whether it’s running events, designing graphics, gifting auction items, selling raffle tickets, or fundraising, you make it all happen! 💛

Your dedication, energy, and support have a lasting impact, and we couldn’t do it without you. Thank you for being such a vital part of our journey!

Want to jump in and be part of our fun, inclusive volunteer community? We’d love to have you!

📧 Email: ginta.orchard@nrf.com.au
📞 Call us today: (08) 8371 0771

05/12/2025

This Christmas with the NRF This Christmas, give a gift that goes beyond the season and creates a legacy of hope. By including the NRF in your Will, you’ll help fund vital medical research, support people affected by neurosurgical conditions, and contribute to groundbreaking discoveries that save lives.

Planning your Will is simple and can take as little as 15 minutes. Create an online Will today with Willed and support the NRF.

Follow the link in our bio to get started

02/12/2025

The holidays are a time for joy and togetherness, but for families affected by brain tumours and other neurosurgical conditions, this season can be especially difficult.

✨ Every donation helps drive research forward.
🎁 Your support this Giving Day brings us closer to better treatments and more precious moments with loved ones.

Donate here: https://drct-nrf.prod.supporterhub.net/donations/neurosurgical-general-appeal

05/08/2025