ANZDATARegistry

15/10/2025

Celebrating the Inaugural Indigenous Datathon
On October 11–12, Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) proudly partnered in the first-ever Indigenous Datathon at QUT Brisbane, hosted by the Indigenous Data Network. This was an inspiring event that brought together clinicians, data scientists, policy experts, and Indigenous leaders to explore ethical, impactful uses of health data.
Mentors from across disciplines supported the teams, including Christopher Davies and Dana Forcey from ANZDATA, who brought valuable expertise in clinical registry interpretation and Indigenous data governance.
Guided by the CARE Principles for Indigenous Data Governance, teams worked with de-identified ICU and renal datasets which included a first of its kind linked dataset from ANZICS and ANZDATA which to address real world health challenges and proposed community led solutions.

This event set a new benchmark for collaboration, cultural respect, and innovation in clinical research. We’re excited to continue building on this momentum to support Indigenous health equity and data sovereignty.
📸: Australian Research Data Commons (ARDC) - Marc Grimwade

15/10/2025

2025 Wrap up
Huge congratulations to members of the ANZDATA Parenthood Working Group for their outstanding contributions at this year’s ADIPS/SOMANZ Conference held in Auckland last week!

🏆 Su Jen Chua received the SOMANZ Best Clinical Oral Presentation: Claire McLintock Memorial Award for her impactful presentation using ANZDATA:
“Graft outcomes following pregnancy with a functioning kidney transplant in Australia and New Zealand.”

📊 Sagun Banjade presented a poster based on ANZDATA analysis:
“Pregnancy and neonatal outcomes in women receiving home-based dialysis: An ANZDATA Registry Analysis.”

12/10/2025

Congratulations, Georgie!

We are excited to announce our first finalist for SAHMRI’s 2025 Discovery Circle!

Dr Georgina Irish, Senior Research Fellow with ANZDATARegistry, has been selected for her project looking to increase kidney transplant success by using more precise allocations.

Stay tuned to find out who our other two finalists are!

01/10/2025

Team Bean There Run That – the official ANZDATA crew – is proud to support the Red Socks Run this October, raising awareness and funds for kidney health across Australia.

We’re running, walking, and moving to stand with the 1.8 million Australians living with kidney disease. Every step we take helps fund life-changing research, support services, and advocacy through Kidney Health Australia.

Team members: Alexa Dinant, Christopher Davies, Dana H, Georgina Irish, Feruza Kholmurodova, Isabelle Haklar, Lachlan McMichael, Lavern Greenham, Madison Cachagee

💥 Want to help us make a difference?

👉 Support our team or join the movement:

I'm raising money for a cause close to my heart and would love your support.

01/10/2025

19/09/2025

🚨 New Publication Alert! 🚨: The Impact of Donor and Recipient Diabetes on Patient and Graft Survival in Kidney Transplant Recipients
Excited to share a recent publication in Kidney International Reports that explores how diabetes in kidney transplant donors and recipients affects both patient survival and graft longevity.
Authors: Alessandra Orsillo, Feruza Holmuradova, Philip A. Clayton, Steven Chadban, Alison Weightman, Georgina Irish

📊 Using data from the ANZDATA Registry (2003–2022), the study found:
Recipient diabetes is associated with reduced patient and graft survival.
Donor diabetes also negatively impacts graft outcomes, especially when both donor and recipient have diabetes.
These findings underscore the importance of risk stratification and personalized care in transplant decision-making.
🔗 Read the full article: https://lnkd.in/gj3wTYCm

19/09/2025

🌟We’re delighted to celebrate the achievements of 𝐃𝐫. 𝐆𝐞𝐨𝐫𝐠𝐢𝐧𝐚 𝐈𝐫𝐢𝐬𝐡, ANZDATA’s Executive Director of Projects and Analytics, who has recently been awarded her PhD for her thesis “𝐷𝑒𝑐𝑖𝑠𝑖𝑜𝑛 𝑀𝑎𝑘𝑖𝑛𝑔 𝑖𝑛 𝐾𝑖𝑑𝑛𝑒𝑦 𝑇𝑟𝑎𝑛𝑠𝑝𝑙𝑎𝑛𝑡𝑎𝑡𝑖𝑜𝑛.”

Her research presents studies exploring decisions in kidney transplantation, including the creation of tools to assist with decision making and the development of a risk prediction model aimed at forecasting survival and quality of life after a transplant.

Remarkably, five of her thesis chapters have already been published, and during her PhD journey she also authored an additional 14 papers.

🎓A huge congratulations to Georgie on this outstanding accomplishment!🌟 ANZDATARegistry Georgina Laura

17/09/2025

🚨 Publication Alert! 🚨
Sharing our latest work published in Nephrology:
"Variability in Dialysis Access Over Time and Across Centres in Australia and New Zealand"

This study dives into how dialysis access varies across centres and over time, and how both patient and centre-level factors influence these outcomes. Using data from ANZDATA and unit surveys, we found that things like having a home haemodialysis nurse or a “PD-first” policy can make a real difference in ensuring patients start dialysis with definitive access.
Why does this matter? Because better dialysis access planning means lower risks, better outcomes, and more equitable care for people living with kidney failure.
📄 Read the full article here:

Aim The Australian and New Zealand Society of Nephrology (ANZSN) established a quality indicator (QI) program to measure performance and reduce variation of nephrology care. This program relies on r...

08/09/2025

🚀🖥️ The NIKTT Dashboard Prototype is Live!

We’re excited to announce that the national and state-level NIKTT dashboard prototype is now available for public viewing!

🔗 Explore it here: https://www.niktt.com.au/data-dashboard

📢 We would like to know what you think-please provide feedback here: https://forms.cloud.microsoft/pages/responsepage.aspx?id=XXVkol8hb0i1uwDNSzpQWEyB1x9PG8JAm4OcYGwiQ8lUMzA5UktCT1A0SFRNN1Q5NDk5VDNXRFBVSC4u&route=shorturl

📌 Note: The dashboard is best viewed on a desktop computer, as it’s not yet optimised for mobile devices.

Please note, this is a working model that we are actively reviewing and seeking feedback on. If you would like to speak with us in more detail about this dashboard, please email info@niktt.com.au. This dashboard has not yet been optimised for mobile use, so we strongly advise users to view this on a...

05/09/2025

🌟 The ANZDATA session at the ANZSN 60th Congress brought together clinicians to reflect on the Past, Present, and Future of the registry.

🔹 Prof Stephen McDonald shared ANZDATA’s proud history as the world’s longest-running dialysis registry.
🔹 A/Prof Shradha Kotwal gave a first look at the 2024 Survey summary.
🔹 Dr Dana Forcey launched the 2024 Special Report, focusing on workforce and dialysis capacity.
🔹 Dr Kate Brotherton reflected on the Advanced Trainees Research Project Program.
🔹 Dr Georgina Irish highlighted future innovations, including interactive reporting.

📊 2024 Survey Summary Released!
Check out the latest insights and infographics for Australia and Aotearoa New Zealand: https://www.anzdata.org.au/report/anzdata-48th-annual-report-2025-data-survey-2024/

02/09/2025

New Job Alert-Biostatistician

We are seeking a Biostatistician to join SAHMRI, supporting the Australia & New Zealand Organ Replacement Therapies Registry Group (ANZORRG) as part of the reporting and analytics team. The role will collaborate with the team on internal projects, including analyses for reports, support a variety of quality improvement and research projects and assist the registry team to respond to requests for analysis of data.

The position will offer an excellent opportunity to develop your career while working with other Biostatisticians and Registry staff both medical and scientific and build strong networks with contributors to the ANZORRG registries across Australia and New Zealand.

Apply here:

Join the ANZORRG Team at SAHMRI, exciting role offering collaboration and growth opportunities with health research

02/09/2025

📢 Want to learn more about ANZDATA?
Join us at the ANZDATA Symposium at the Australian New Zealand Society of Nephrology (ANZSN) Congress 2025 today at 3:30pm (AWST)

Location: Meeting Room 8
15:35- PAST: HISTORY & IMPACT OF ANZDATA- Stephen McDonald AM
15:50- PRESENT: CAPACITY & DIVERSE USE- A/Prof Sradha Kotwal, Dana Forcey
16:15-FUTURE: INNOVATION & VISION-Georgina Irish

💬 Can’t make the session? No worries!
Our friendly team is ready to chat at the ANZDATA/NIKTT booth, stop by anytime during the Congress.