CareSearch Project

30/01/2026

It's hard to know what to do if you are supporting someone who is seriously ill and may be dying. Talking to patients and families about death and dying can also be very hard as their background, experiences and understanding can affect how they approach a situation.

If you're a support worker, CarerHelp has developed tips and resources to assist you in working with people who are at the end of life and with the families who are caring for them 👉 https://www.carerhelp.com.au/Res.../Support-worker-resources

29/01/2026

📊 Many aged care services collect data, but turning it into action isn’t always easy.

Join the FREE ELDAC - End of Life Directions for Aged Care webinar: Using Your Data to Improve Palliative Care and hear from leaders at Ageing Australia, Catholic Health Australia and Palliative Care Australia as they discuss how digital data can strengthen palliative and end-of-life care in aged care.

👉 Register now and turn insights into impact: f6f77209-d5a7-467b-a579-4e12e8b87176@72157dbb-e8bd-40dc-8d00-3f08c234ac47" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/f6f77209-d5a7-467b-a579-4e12e8b87176@72157dbb-e8bd-40dc-8d00-3f08c234ac47

Free ELDAC Webinar: Using Your Data to Improve Palliative Care.

Many aged care services collect data but translating it into action can be a challenge.

ELDAC invites you to join leaders from Ageing Australia, Catholic Health Australia and Palliative Care Australia for an important conversation about how digital data can strengthening palliative and end-of-life care in aged care

Register > f6f77209-d5a7-467b-a579-4e12e8b87176@72157dbb-e8bd-40dc-8d00-3f08c234ac47" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/f6f77209-d5a7-467b-a579-4e12e8b87176@72157dbb-e8bd-40dc-8d00-3f08c234ac47

29/01/2026

Hearing other carers talk about their experiences can help realise that you are not alone in what you are doing and feeling. These videos 🎥 cover different issues and parts of the carer journey.

Watch videos to learn about other carers experiences ▶️ https://www.carerhelp.com.au/Resources/Carer-Voice

28/01/2026

Study spotlight 💡

Developed a 12-element framework 🧩 to help palliative care researchers find and use grey literature such as reports 📄, guidelines, policies and other documents not published in journals. This approach helps include more diverse voices and reduces bias in research.

Read here👉 https://pubmed.ncbi.nlm.nih.gov/41127980/

27/01/2026

“The goal of paediatric palliative care is to improve the quality of life of children with life-limiting or life-threatening disease and their families through a holistic care approach. 🤍👨‍👩‍👧‍👦 A key element of this care are the parents of the sick child. But what are the needs of parents whose children are in palliative care? “

In this blog, Dr Piyumi Senanayake and Dr John Oldroyd from Australian Catholic University (ACU) share insights from their recent systematic review📚, highlighting significant gaps in parents’ experiences of paediatric palliative care. The findings point to unmet needs across care coordination, emotional and psychosocial support, communication, practical assistance, and support during end-of-life and bereavement🕊️. Their work underscores why supporting parents is not optional, but essential to delivering high-quality paediatric palliative care. 💛

Read the blog👉 https://www.caresearch.com.au/About-Us/Newsroom/Palliative-Perspectives/Palliative-Perspectives-Blog-Details/ArtMID/17907/ArticleID/6274/What-are-the-needs-of-parents-who-have-a-child-in-in-paediatric-palliative-care

23/01/2026

🌍 International Day of Education 2026 📚✨

Today we celebrate the power of learning and recognise education as a fundamental human right that drives peace, development and lifelong growth for all 🌍 The International Day of Education reminds us that learning is a lifelong journey that strengthens dignity, opportunity, and social wellbeing.

CareSearch supports learning across all stages of life, including through our Dying2Learn section—an accessible space where people can explore information about dying, advance care planning and end-of-life care with confidence and compassion. 💬🌱

Learn more about the International Day of Education through UNESCO:
🔗 https://www.unesco.org/en/articles/how-you-can-join-international-day-education-2026

Let’s keep learning with Dying2Learn 👉 https://www.caresearch.com.au/Community/Dying2Learn

22/01/2026

Preparing for the last weeks of life can feel overwhelming, but having the right information makes a real difference. Join Leona Molloy, an experienced palliative care nurse, for a free 1‑hour online session on what to expect in the last weeks of life:

✅ recognise that the person is getting closer to dying
✅ provide comfort to that person
✅ available services and supports
✅ what to do following a death

Register now: https://www.carerhelp.com.au/News/Register-for-online-sessions

22/01/2026

Caring for someone with a life-limiting illness is such an important role — but it can also be challenging. CarerHelp is now running free online information sessions with health professionals to provide carers with practical guidance and support.

🤝 Join Leona Molloy, an experienced palliative care nurse, on 10 February for a 1‑hour online session covering key conversations, planning ahead, essential resources, and looking after yourself.

Register now: https://www.carerhelp.com.au/News/Register-for-online-sessions

20/01/2026

Aboriginal & Torres Strait Islander Care in Practice 💛🖤❤️

Quality palliative and end‑of‑life care means honouring culture, Country, family, and connection. Aboriginal and Torres Strait Islander peoples hold diverse traditions, stories, and ways of knowing that shape how care is understood and experienced.

To support Aboriginal and Torres Strait Islander patients on their palliative care journey with culturally safe care 🤝, health professionals need both clinical expertise and cultural understanding. Genuine engagement with patients, families and communities helps ensure care is respectful, responsive and grounded in what matters most.

Explore CareSearch resources 📚 to support culturally appropriate care, including guidance on communication, care journeys and person-centred practice🔗 https://www.caresearch.com.au/Health-Professionals/Aboriginal-and-Torres-Strait-Islander-Care/

20/01/2026

“When my husband was finally diagnosed at 50 with Young Onset Parkinson’s, we were overwhelmed💔. We were told it was progressive and incurable, but no one mentioned palliative care, let alone how to assemble a care team.”

In this blog, Tina Gillespie from Parkinson's Australia and the Young Onset Parkinson's Exchange (YOPX) draws on lived experience to highlight common misconceptions about palliative care in Parkinson’s disease, emphasising its role in supporting quality of life from diagnosis, not just at the end of life. She outlines how early, holistic palliative care can help manage complex symptoms, support families and care partners🤝, and introduces practical resources such as the YOPX app📱 to help people live well throughout their Parkinson’s journey.

Read the blog🔗 https://www.caresearch.com.au/About-Us/Newsroom/Palliative-Perspectives/Palliative-Perspectives-Blog-Details/ArtMID/17907/ArticleID/6271/Palliative-care-Parkinson%e2%80%99s-It%e2%80%99s-about-living-well-not-just-dying-well

19/01/2026

Study spotlight 💡

Highlights the emotional impacts of bereavement in haemodialysis units, emphasising the need to support both patients and staff to promote overall unit wellbeing 🌱 and prevent maladaptive grief. 🕊️

Read here https://pmc.ncbi.nlm.nih.gov/articles/PMC12548588/

16/01/2026

Whether you’re a support worker, disability worker, aged care worker, Aboriginal health worker, volunteer, or community leader, CarerHelp has free, practical resources to help you:

✔ Understand end-of-life care
✔ Support families through a difficult time
✔ Communicate with compassion, including across diverse cultural backgrounds
✔Access printable fact sheets and share them with those who need them

Explore the resources here 👉

https://www.carerhelp.com.au/Communities/Aboriginal-and-Torres-Strait-Islander