11/08/2025
5 year old Koa was born with Posterior Urethral Valves (PUV), a congenital condition that causes urine build-up, difficulty emptying the bladder and kidney problems.
After many failed urethral ablations (when abnormal tissue in the bladder is removed using a laser), Dr Bec Cooksey, Paediatric Urologist at the Womenโs and Childrenโs Hospital (WCH), successfully performed mitrofanoff stoma surgery when Koa was 2 years old.
This is a surgical procedure in which the appendix or piece of bowel are used to create a connection between the bladder and the abdominal skin surface to allow for the bladder to drain urine through a stoma (a surgically created opening on the outside of your body that connects to an organ on the inside).
โKoa now voids (empties his bladder) out of his belly button and is catheterised (a tube inserted into his bladder, allowing your urine to drain freely) every 3 to 4 hours. Before the stoma, Koa was very unwell and spent a lot of time in hospital. Life was a rollercoaster, and every day was filled with anxiety,โ says Nicola, Koaโs mum.
โDr Bec is incredible, I canโt thank the team at WCH enough. Itโs just amazing how far medicine has come. For someone to create a mitrofanoff from his appendix and for it to work and grow with him, is just incredible.โ
The surgery was life saving for Koa and his family, and heโs now back to his cheeky self โ enjoying swimming, football, surf lifesaving, and playing superheroes!
โKoa is a little warrior and has fought some big battles in his little life and has learnt to live with his condition.โ
Nicola shares her advice to other parents, โTrust your gut, if something doesnโt feel right it probably isnโt. Speak to the doctors, they really are here to help.โ
โIโd also seek advice through support groups โ the Muddy Puddles Foundation support group are real families living real situations like you and are there to support anyone who has a stoma, bladder or bowel issue.โ
โYou are not alone. It does get easier and you all learn to live with the new normal.โ
A heartfelt thank you to Nicola and Koa for raising awareness around stomal therapy and sharing your story. ๐
For more information on stomal therapy at WCH, visit https://tinyurl.com/3j858ecv