Mind my Pain

26/05/2025

🗣️ Pain is silent, they need to hear our voices.

Take the survey now. Help drive change in chronic pain.

💪 Your voice matters. Your experience counts.
👉 Take the survey today and be part of the change.

It will only take 15 minutes to complete. This week is the last chance for your voice to be counted https://redcap.hmri.org.au/surveys/?s=AEM7AWMMN4KE7RTY

Please complete the 2025 National Pain Survey with Chronic Pain Australia to support advocacy for you.

We are asking politicians to make integrated pain management more accessible and affordable to the 3.6 million Australians living with chronic pain.

Chronic Pain Australia (CPA) is dedicated to supporting and advocating on behalf of people with chronic pain. Our 2025 National Pain Survey invites people living with chronic pain and their carers to share their experiences.

26/05/2025

Powerful insights from last week's Australian Ethical Health Alliance Symposium in Sydney!
Joined by Painaustralia CEO Monika Boogs and fellow Consumer Advisory Board Member Mary-Lynne Cochrane, we heard from exceptional speakers including Professor Michael Kidd, Dr Emily Kirkpatrick, Professor Stacy Carter, Professor Christopher Bain, Nina Roxburgh, moderated by Journalist Natasha Robinson Health Editor for the Australian, and Tracey Duffy Department of Health and Aged.

Key takeaways:
- Healthcare misinformation isn't just about wrong facts - it actively delays treatment, disrupts care continuity, and erodes the essential trust between patients and providers.
- Every speaker prioritised the impact of the consumer and patient above all else.

Natasha Robinson summed it up perfectly, noting how reassuring it was to witness our experts truly listening to and centring the patient experience in their work.

In an era where misinformation travels faster than truth, safeguarding integrity in healthcare has never been more urgent. When we prioritise evidence-based care and transparent communication, we protect both individual patients and public health.

14/05/2025

Anyone else not sleeping due to menopause? Your participation in this research will contribute to valuable advancements in women’s health 🙌
The study is open to women Australia-wide aged 45-65.

I’ve been taking a medicinal cannabis capsule at night for the last 2 months and I’m finally getting a full night’s sleep 😴 after years and years of living on very limited sleep - Life changing 🙌

Are you a woman going through peri-menopause or are you post-menopausal (12 months since last period) and suffering from symptoms such as hot flushes, night sweats, sleep problems, fatigue, muscle or joint pain, vaginal dryness and discomfort during s*x, urinary symptoms, mood changes including anxi...

20/02/2025

Thank you Chronic Pain Australia for sharing my story. What began as a way to make sense of my own health journey has evolved into something truly meaningful. When people tell me the MINDmyPAIN journal feels like I 'read their minds,' it validates exactly what I hoped to achieve - a communication tool that understands the complex needs of people living with chronic pain. 💙

With the arrival of the new year, it’s an opportunity for many of us to review and refine our chronic pain self-management strategies for the year ahead. The MINDmyPAIN Health Management Journal is a powerful resource that can support others in navigating their pain management more effectively, bringing order to things out of our control. 💙

'As people living with chronic pain, we need a resource that documents our own health records and information that is not reliant on doctors or medical teams. One that can be instantly accessed anytime, and can be seen by our family, carers, different medical teams, etc. so we are all working together to get the best possible outcome.' 💙

As I always say, 'Pain is silent, and we need a voice.' I'm grateful to Chronic Pain Australia for helping amplify this message and supporting a tool that empowers people to take control of their own health management. 💙

Please read the full article here https://chronicpainaustralia.org.au/blog/mindmypainwithkimsullivan/

Kim Sullivan, drawing from her own journey, has created a powerful resource to support others in navigating their pain management more effectively.

21/09/2024

📣 Wear it Red day! 💃 Media Launch 🎥
What an honour to be the voice of the consumer, representing the 3.6 million people living across Australia with chronic pain.
is an initiative by PainAustralia supported by and 's Panadol.

We raised awareness 🙌, we wore it red ❤️, and pharmacies across Australia dressed their stores up all in red 🪭 to support those living with chronic pain.

In the voice of Giulia Jones CEO of PainAustralia
Speak about your pain 🗣️
Get your pain treated!
You can live well ❤️

27/08/2024

Today, I had the privilege of speaking at the University of Sydney in my role as Chronic Pain Consumer Advocate for PainAustralia, sharing my experience of managing chronic pain with fourth-year Physiotherapy students. This presentation allowed students to gain a deeper understanding of patient experiences and develop essential skills for effective patient-practitioner relationships. Painaustralia

22/08/2024

Very excited about attending this Wellbeing Summit

Join us for the 2024 Women’s Health and Wellbeing Summit, an event dedicated to supporting the health and wellbeing of Australian women both at home and at work.

Click the link for more information and to buy tickets.

https://events.ringcentral.com/events/2024-women-s-health-summit/registration

22/07/2024

Be in control of who sees your sensitive health information and data.
Record and then present your own data in appointments.

💪 Be your own advocate.
💪 Be seen. Be heard.
💪 Be believed... and don’t have your pain dismissed.

MINDmyPAIN Health Management Journals are being used throughout Australia in NSW Health, QLD Health and SA Health.

Buy yours today, and take back control of your PAIN.

National Pain Week 2024

Chronic pain self-management journal helps monitor and record health and wellbeing, organise details of doctor's appointments, medical history and medication

21/07/2024

National Pain Week 2024 🙌

I will be watching 👀, join the pain management industry leaders online to watch what’s happening.

25/05/2024

A few weeks ago, I had the honor of attending the Pinnacles Pain Sector Awards at NSW Parliament House. The event was hosted by Dr Nick Coatsworth, former Deputy Chief Health Officer, and featured leading Australian health journalist Sophie Scott and ABC journalist and author Sarah Macdonald ABC Radio Mornings

I was nominated for Consumer Advocate of the Year, and I would like to thank Painaustralia and Pain Foundation Ltd - Australia for recognising the hard work that clinicians, consumers, and the media have put into raising awareness of chronic pain.

Advocating and banging on about -

📣 Be your own Advocate.

📣 Present with records of your own pain.

📣 If we present our own information to medical teams, we must be believed.

📣 Help consumers understand and organise their health information and records.

📣 Mind my Pain Health Management Journal.

💁‍♀️ and schmoozing with The Hon. Jodie Harrison MP NSW Minister for Women, The Hon. David Harris MP NSW Minister for Medical Research, The Hon. Ryan Park MP NSW Minister for Health, The Hon. Matt Kean MP Shadow Minister for Health and Mr Tim James MP
Shadow Minister for Work Health & Safety.

07/05/2024

Please complete this survey 💪

Be a pain-changer today and complete the 2024 National Pain Survey.

https://redcap.link/klhtqu0c

04/04/2024

Today, I had the opportunity to take part in the ‘National Consumer Involvement Statement’ at the University of Sydney on consumer and community involvement in health and medical research.
🙌 Amazing to have a voice on behalf of the consumer and be part of the conversation about what’s needed nationally to build in and