Aaron's Day

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Aaron is 4yrs old diagnosed Stage 4 Refractory Neuroblastoma

Treatment commenced Dec 2022 COG protocol until Bumel Transplant and Siopen Protocol to finish Chemo/Immuno and Lutetium Radiation

After 1 year of monitoring we have disease progression.

Found this picture from our Camp Quality family camp earlier this year. You had the best smile buddy. It was much needed...
08/10/2025

Found this picture from our Camp Quality family camp earlier this year. You had the best smile buddy. It was much needed fun after all that we had been through. I'll cherish memories at that place and will probably make sure we go there every year to remember you πŸ’ž

27/09/2025

I love you so much. We have been hit hard, Ella and I, with missing you more intensely. It's hurting. The flashbacks. The ache. We were busy and now that things are slowing down it's like I'm coming back into my body and feeling things. My breath is hard to catch. I'm burning food I try to cook when I feel hungry which is rare. We were doing ok and now, especially Ella, outbursts of feelings are coming and I can only hope it doesn't become our new normal. I will always miss you but I want to miss you beautifully, peacefully with love. Not in a suffocating, overwhelming pit of loss and despair. I will go through the motions of this as we always have. With your strength and love as a reminder, we will be ok.

With Ed Sheeran – I just earned their Sheerio badge!πŸŽ‰
26/09/2025

With Ed Sheeran – I just earned their Sheerio badge!πŸŽ‰

My gorgeous boy πŸ’›Among the   for Childhood Cancer Awareness Month. I love you always my sweet boy πŸŽ—οΈElla is missing you ...
25/09/2025

My gorgeous boy πŸ’›
Among the for Childhood Cancer Awareness Month.

I love you always my sweet boy πŸŽ—οΈElla is missing you but we are doing ok πŸ‘ΌπŸͺ½

πŸ’› A A R O N πŸ’›

This September, we're sharing to raise awareness of childhood cancerβ€”specifically .

Aaron was diagnosed with neuroblastoma in 2022, at just 2 years old.

He underwent a long and gruelling treatment regime that devastated his tiny body and left his immune system shattered. Aaron's cancer was deemed refractory, but his treatment continued. His mum, Cass, was his most fierce advocate; she stayed by his side until the end, holding him while he took his last breath. His big sister, Ella, just as cheeky, was his best friend and protector. He loved his Nanny beyond words.

Aaron was surrounded by so much love during his short life. He was surrounded by so much love when he passed away in the early morning of August 27.

His mum will never forget the first sunrise without him.

It has been almost 4 weeks since Aaron's passing. While his family miss him beyond words and continue to search for him everywhere they go, they find peace in the fact that Aaron is no longer in pain – he is no longer suffering.

We will never forget Aaron. We will always say his name. We will always remember his gorgeous, cheeky smile. Aaron was, and always will be, a beam of sunshine.

πŸ’‘ Neuroblastoma treatment should not be locked into standard protocols. Individualised care would help reduce the number of children who pass away from treatment side effects. It would also help kids like Aaron who have slipped through the cracks of standard scheduled screening post-treatment. The brutality of treatment and the effect it has on families is beyond devastating. More needs to be done. More funding is desperately needed for safer and more effective treatments that adopt a more individualised approach.

πŸ’¬ Awareness is the first step toward a cureβ€” to quicken the pace.

πŸ™ Together, we can make neuroblastoma a thing of the past.

The last jobs at the hospital are done for me. This wasn't as gut wrenching as I expected it might be but I also didn't ...
24/09/2025

The last jobs at the hospital are done for me. This wasn't as gut wrenching as I expected it might be but I also didn't like how much I felt him there. I know he was with me today, but I know I feel him there because he spent a large part of his life within those walls.

Some of the people I had seen, a couple of his nurses, admin ladies on 11B and 5C, our favourite food service lady who didn't know he'd passed, Aaron's two oncologists and the social worker. I feel so drained. I've not felt this exhausted since he's been gone. I will welcome it though I think. I left another piece of us behind today. I don't have to do anything more there now. We will likely do some surprises but that's by choice and in memory of you buddy. I found it amusing that he can be wiped so easily and quickly from all the databases but he still exists at the playrooms in the hospital.

Thank you for all that you do for our kids πŸ’›
20/09/2025

Thank you for all that you do for our kids πŸ’›

15/09/2025

Half way through Childhood cancer awareness month. 15 days ago we had Aaron's funeral. This video was from 3 months ago. There was one I recorded just before this clip that I can't share just yet. I love that on this morning Aaron woke up his usual self and was actually letting me record him. He had some messages in there for me that I appreciate so much. I get that some people may not like seeing him shared. If it bothers you please just skip to the next post. I will have you up on a billboard one day buddy. You are going to help me make some changes.

You were so proud of your puppy this day πŸ’› Mr Luigi is doing better I think. He was missing you so much but I think he k...
14/09/2025

You were so proud of your puppy this day πŸ’› Mr Luigi is doing better I think. He was missing you so much but I think he knows now and he's doing a great job looking after Ella.

I am missing you a lot today. Ella and I said goodnight to you last night and I felt you with us but at the same time I got upset because you feel so far away. Your presence is like an echo. Sometimes it's loud but sometimes it's like I only get the third or fourth bounce back.

I am hurting and I'm grateful to be. I want to feel this but also I don't want to either. Part of me just wants to scream that I want you back. I have an acceptance of things and that is annoying at times because I feel like normal would be feeling the earth crumble beneath me where I find it hard to breathe. Losing you was so hard but we did it for so long and it was your fight. You did it. I feel it would be disrespectful to you to let grief take me out. I love you always. I still get to love you always. I just carry you in my heart and not in my arms.

It's always after school drop off. I'm supposed to take you to kindy today. You pushed away the things you loved the most first. I knew before we really knew because you changed. I think that's how I'm surviving this.

Love you guys πŸ’œπŸ’œπŸ’œ Happy and Safe
09/09/2025

Love you guys πŸ’œπŸ’œπŸ’œ

Happy and Safe

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Brisbane, QLD

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