Spinal CSF Leak Australia

13/08/2025

IN THE NEWS: Wallabies' World Cup flyhalf set for first game of footy in 357 days after 'scary' surgery derailed NRL career

"Former Wallabies star Carter Gordon is set to play his first rugby league game in 357 days after an inspirational return from surgery following a spinal fluid leak."

https://www.theroar.com.au/2025/08/12/wallabies-world-cup-flyhalf-set-for-first-game-of-footy-in-357-days-after-scary-surgery-derailed-nrl-career/?fbclid=IwY2xjawMJ9tRleHRuA2FlbQIxMQABHjB3b7-jRJ_v-xc6iC_toq91GX8ANAippjD0aVIkWjrw46zXiDfXrPbsKNAX_aem_ppPGALQmHnPRathjORUR9Q

Former Wallabies star Carter Gordon is set to play his first rugby league game in 357 days after an inspirational return from surgery following…

12/08/2025

12/08/2025

Our Director, Nicole Frost, was at the 2025 Intracranial Hypotension Symposium held recently in Amsterdam and had the wonderful opportunity to meet with representatives from other international spinal CSF leak charities.

We want to acknowledge and congratulate the organisers of the 2025 Intracranial Hypotension Symposium held recently in Amsterdam. It was a jam-packed program highlighting the progress being made in this space and an excellent opportunity to connect with outstanding clinicians and colleagues from the international charities who do fantastic work raising awareness and supporting progress towards better outcomes from this debilitating condition. Great to see some Australian contributions from: Prof. Marcus Stoodley, Macquarie Neurosurgery; Victoria Tan, Jorn Van der Veken, Steve Chryssidis from the Flinders Medical Centre in South Australia, and exciting to hear about the launch of the International Society for Spinal CSF Leak, a spinal CSF leak organisation for clinicians. https://isscl.org/

Thank you to Spinal CSF Leak Foundation CSF Leak Association - The Cerebrospinal Fluid Leak Charity Spinal CSF Leak Canada

01/08/2025

SURVEY CLOSING SOON

The University of Melbourne are conducting an online survey and interview study to understand the lived experience of people with spinal CSF leak in Australia and New Zealand. If you have a diagnosed SPINAL CSF leak or have recovered from a SPINAL CSF leak, your experience is highly valued for this study.

Thank you to everyone who has already participated in this study.

To read more, please go to our website at the link below:

A new Australian charity to help create a brighter future for people experiencing Spinal Cerebrospinal Fluid (CSF) Leak

12/06/2025

Hoping this will create some interest in CSF leaks from Neurologists 🤞🏼
If you're a neurologist reading this, and ARE interested in CSF leaks, we would love to hear from you.

Professor Marcus Stoodley has been invited to speak at the Australian and New Zealand Association of Neurologists (ANZAN) Annual Scientific Meeting, a leading event that brings together experts in neurological research and clinical care. The 2025 meeting marks the 75th anniversary of ANZAN.

Taking place from 10–13 June, the ANZAN Annual Scientific Meeting is the largest gathering of neurologists across Australia and New Zealand, with 700 delegates attending the 2024 event in Adelaide.

This year, Professor Stoodley is delivering two insightful talks:
🔹 Low Pressure Headaches and Spinal CSF Leaks
🔹 Intracranial Arterial Stenosis and Moyamoya Disease

📍 Learn more about the conference here: https://www.anzanasm.com.au

10/06/2025

Join the Superficial Siderosis Research Alliance (SSRA) for a three-day symposium dedicated to patients, caregivers, clinicians, and researchers focused on advancing care, treatment, and research for superficial siderosis.

Requests for a remote viewing link may be made up to the day of the event. You will receive three unique daily links, but you need to sign up only once.

The Superficial Siderosis Research Alliance sponsors this event, and it is free for all participants. Tickets for in-person attendance are closed.

Superficial siderosis, bibrachial amyotrophy, and spinal cord herniation are unusual but serious long-term sequelae of persistent spontaneous spinal CSF leaks in patients with spontaneous intracranial hypotension (SIH), particularly ventral spinal CSF leaks.

https://ssra.livingwithss.com/blog/event/symposium-reservations/?fbclid=IwY2xjawK00wRleHRuA2FlbQIxMQBicmlkETE1ck8zM0UxVlhFd1ZJNGNwAR4HvFg5148IHOVn4JxkvWU5KQ7EAHTLMHmaqF9ZRv4J6goWzKyqB3SaaSm7Fg_aem_SteLJiKQz5ZyL_On6hvOcw

Requests for a remote viewing link may be made up to the day of the event.

05/06/2025

As a complement to our leakweek myths and facts slides, we will be sharing talks from our 2024 Spinal CSF Leak: Bridging the Gap conference that relate to the leakweek myth of the day.

For this afternoon, we are sharing a talk from Dr. Kranz on the knowns and unknowns of the CSF-venous fistulas, an increasingly common type of spontaneous spinal CSF leak. Dr. Peter Kranz is an associate professor of neuroradiology and the division Chief of neuroradiology at Duke University.

https://spinalcsfleak.org/2024-kranz-csf-venous-fistulas-overview/

05/06/2025

04/06/2025

04/06/2025

As a complement to our leakweek myths and facts slides, we will be sharing talks from our 2024 Spinal CSF Leak: Bridging the Gap conference that relate to the leakweek myth of the day.

This afternoon’s post is from Dr. Deborah Friedman, a neurologist, neuro-ophthalmologist, and headache specialist from Yellow Rose Headache and Neuro Opthalmology, who presented this talk on atypical presentations of spinal CSF leak: https://spinalcsfleak.org/2024-friedman-atypical-symptoms-spinal-csf-leak/