23/09/2025
A hole in the wall is not at all uncommon in Australian homes. Plasterboard is so fragile. It is however a sign that parents of children with special needs know all too well. Whether your child has a diagnosis of ASD and pathological demand avoidance, oppositional defiant disorder or ADHD and too many other combinations to mention, broken gyprock can be a secret tell that parents caring for similar children can understand too well. We are all often way too tired or burnt out to fix it or get someone to fix it as it is often the least important of many tasks in our overloaded in tray. We’re often just in “survival” mode. We do however feel self conscious about it and often avoid having visitors over so they don’t see it. This also leads us to further isolation, which of course makes things worse, as we lose our support networks and social contact and a valuable means to release tension and relax.
Almost the same is true of the messy house. We are trained to be house proud and the idea of people seeing our messy house is horrifying. The truth is however that in the majority of houses caring for a child with special needs, some housework tasks don’t make the daily priority list and remain undone. We should not feel ashamed of our unfolded washing, our tables covered in junk or even the overflowed recycle bin. These are signs that we have our priorities right and that we are deploying our biggest energies to caring for our child. If there is insufficient time left over to polish the bench tops then the world will have to deal with that. We have to be aware of changing our own behaviour and try to still have friends over regardless. If you can’t get past society’s expectations of the tidy house then consider meeting friends in a park or cafe.
Don’t be afraid to discuss your fears with your friends as you will almost always find them more understanding than you may have thought. Remember that to be the best carer you can be, you have to make time and care of yourself. Remember that we, as parents, are the life raft.
PS - these are the photos my wife would let me post….. meaning our actual house is like a bomb zone.