Haemophilia Foundation Queensland

26/11/2025

🩸 People with haemophilia A don’t produce enough clotting factor VIII (8) for blood to clot properly.

🔎 Bispecific antibody therapies for haemophilia A are a type of non-factor therapy that mimics factor VIII (8).

💉 Examples of bispecific antibody therapies include:
• emicizumab (Hemlibra®)
• Mim8 (in clinical trial)

The new ✨ Bispecific antibody therapy ✨ factsheet is for people with haemophilia, their families, and carers. It walks you through:

✅ What are bispecific antibody therapies
✅ How do these therapies work?
✅ When & how they are given
✅ Treatment safety

And much more!

👉 You can download the factsheet (or order a print copy) from our website: https://tinyurl.com/bispecific-antibody-therapy

26/11/2025

🌟Join WFH tonight 26 November 2am AEDT for “Progress toward a cure for hemophilia: gene editing explained.” Discover how gene editing is reshaping care, learn key concepts, and join the live Q&A.

Plus, get their latest educational resource “Genetic Technologies for Hemophilia”!

Register now: https://bit.ly/4i0vO4z

(Note that this webinar will be held in GMT-5 which will be late evening/very early morning for Australians. A recording will be made available afterwards).

25/11/2025

🎄✨ What a Wonderful Morning with Our HFQ Ladies! ✨🎄

On Sunday 23rd November, we gathered for a beautiful Christmas Wreath Making Workshop at , hosted through , and it was simply delightful!

Twelve ladies came together, got creative, shared plenty of laughs, and each walked away with our very own unique, crafty, handmade Christmas wreath, ready to bring some festive cheer to our homes. 🎀🌿

But more than the wreaths and the festive fun, the heart of these events is bringing our community together. They provide a safe, welcoming space where our ladies can share their experiences however haemophilia touches their life.

Many conversations today revolved around these shared journeys, and the ladies often say how comforting it is to talk with others who truly understand… to connect, to relate, and to realise they’re not alone. ❤️

With a lovely platter to enjoy and great company all around, it truly was a morning well spent.

Thank you to all the wonderful women who joined us! It’s moments like these that make our HFQ community so special. 💙✨

18/11/2025

Just in case you missed it, you can catch up on all the Australian Bleeding Disorders Conference presentations and poster information online now... see link below 👇

The Conference presentations and posters are now available for you to view online!

During the Australian Bleeding Disorders Conference we heard 77 presentations from 59 speakers and viewed 15 posters, exploring new and emerging therapies, newly diagnosed, women and girls with bleeding disorders, youth, and so much more!

Check them out on our website: https://tinyurl.com/conf25-presos-and-posters

18/11/2025

HFQ Men's and Partners Christmas Lunch! Have you RSVP’d yet?
Don’t miss out on a relaxed afternoon of good food, great company, and Christmas cheer!

📅 Saturday 6th December OBE's Christmas Lunch with Partners.
🕛 12:00pm – 2:30pm
📍 BrewDog, 77 Metroplex Ave, Murarrie

👉 RSVP by Friday 28th November
Email info@hfq.org.au
or call/text Lauren on 0419 706 056.

It’s the perfect way to wrap up the year together... we’d love to see you there! 🎅✨

14/11/2025

🩸 People with haemophilia have an alteration (or mutation) on their F8 or F9 gene, preventing their body from producing enough clotting factor for blood to clot properly.

🧬 Gene therapy for haemophilia aims to give the body a functional version of the F8 or F9 gene.

The new ✨ Gene therapy for haemophilia ✨ factsheet is for people with haemophilia, their families and carers. It walks you through:

✅ What is gene therapy?
✅ Types of gene therapy
✅ How gene therapy works
✅ Who is eligible for gene therapy
✅ Potential benefits
✅ Risks and side effects
✅ Treatment process
✅ Making a decision

And much more!

👉 You can download the factsheet (or order a print copy) from our website: https://www.haemophilia.org.au/GETsFactSheets

12/11/2025

🎅🎄Make sure to RSVP to the HFQ Christmas events! 🎅🎄

1. HFQ Men’s & Partners 2025 Christmas Lunch!

📅 Saturday 6th December
🕛 12:00pm – 2:30pm
📍 BrewDog, 77 Metroplex Ave, Murarrie.

OR

2. Christmas Wreath Workshop just for the ladies! 🌸

📅 Sunday 23rd November, 10:30am – 12:30pm
📍 Vend Marketplace, Virginia
👉 RSVP by 14th November 2025
You’ll design and take home your very own Christmas wreath. It's the perfect way to kick off the festive season! All materials are provided - just bring your creativity and Christmas spirit.

📧 Email info@hfq.org.au or call/message Lauren on 0419 706 056 to RSVP.
It’s the perfect chance to catch up, share some laughs, and celebrate the holiday season together 🎁✨

10/11/2025

? The gene alteration causing haemophilia is passed down from parent to child through generations.
Men with haemophilia will pass the gene alteration on to their daughters but not their sons.

Women who carry the gene alteration can pass it on to their sons and daughters.

Haemophilia is a hereditary condition and occurs in families. However, in 1/3 of cases it appears in families with no previous history of the disorder. This is called a 'spontaneous mutation' and occurs when there is a gene mutation or alteration during reproduction.

10/11/2025

Today we remember and honour all who have served and sacrificed for our freedom. Lest we forget. 🌺

05/11/2025

⏳THE EVOLUTION OF HAEMOPHILIA TREATMENTS⏳

From nonfactor therapies to the development of gene therapy, haemophilia treatments have evolved a lot since the introduction of cryoprecipitate in the 1960s.

❔ Where did your journey begin, and how has your treatment changed over the years? Let us know in the comments! ✏
This infographic was adapted from 'The Evolution of Hemophilia Therapeutics: An Illustrated Review', produced by María G. Español, Jessica N. Mistretta, Michael D. Tarantino and Jonathan C. Roberts. View the full version here: https://www.rpthjournal.org/article/S2475-0379(23)05736-9/

04/11/2025

🎄🎅 HFQ Men’s & Partners 2025 Christmas Lunch! 🎅🎄

Join us as we wrap up the year with some festive cheer! 🌟
Our O.B.E.'s and partners are invited to a relaxed afternoon filled with good company, great food, and plenty of Christmas spirit.

📅 Saturday 6th December
🕛 12:00pm – 2:30pm
📍 BrewDog, 77 Metroplex Ave, Murarrie.

It’s the perfect chance to catch up, share some laughs, and celebrate the holiday season together 🎁✨

🎄 RSVP by Wednesday 26th November to secure your spot!

We can’t wait to celebrate Christmas with you! 🎅🍻
To RSVP or for more info, contact Lauren Green on 0419 706 056 or email info@hfq.org.au.

04/11/2025

🏇💙 Did you know that horses can have bleeding disorders too? Just like humans, Haemophilia A and von Willebrand Disease (VWD) have been found in a range of horse breeds - even thoroughbred racehorses!

HFQ wishes all the punters the best of luck today for Melbourne Cup! 🍀🐎